Generously sponsored by:
SOURCES 1. http://www.decipheringlife.com/theme-pages/pics/animal-human-love/ Elephant_friend_girl.jpg 14. http://www.monkeyhelpers.org/, http://www.nepwildcatrugby.org/ 15. www.thepaulcenter.org, www.thebostonhome.org 16. www.minuteman.org/ 17. www.pyd.org, www.outsidethelinesstudio.org 18. www.thebridgectr.org/, http://www.mabcommunity.org/site/ 19. http://www.t-h-e-farm.org/ , www.wsdeaf.org/aws.html 22. http://www.ada.gov/, http://www.mrsc.org/subjects/legal/ada/adainfo.aspx 23. http://www.usa.gov/webcontent/reqs_bestpractices/laws_regs/ accessibility.shtml 24. http://www.dol.gov/odep/pubs/fact/mythfact.htm 25. http://www.disabled-world.com/disability/statistics/, http://dsc.ucsf.edu/
publication.php 26. http://266fincom1.hqusareur.army.mil/EEO/etiquette.htm, http:// www.ucp.org/uploads/Instead.jpg, http://www.wvddc.org/people_first.html 27. http://autism.emedtv.com/autism/autism-statistics.html,http:// oboerista.files.wordpress.com/2008/08/autism_awareness_logo.jpg 28. http://curry.edschool.virginia.edu/sped/projects/ose/categories/vi.html#defin http://atoz.iqhealth.com/HealthAnswers/encyclopedia/HTMLfiles/3023.html 29. http://www.nhsdirect.nhs.uk/en.asp? TopicID=713&AreaID=4697&LinkID=3772, http://psychcentral.com/psypsych/ Hearing_impairment, http://www.nichcy.org/Disabilities/Specific/pages/ DeafnessandHearingLoss.aspx 30. http://www.eddfund.org/assets/images/photos/nysoccer_1.JPG, http:// www.csun.edu/~sp20558/dis/physical.html 31. http://www.bu.edu/disability/
FYSOP 21 Disabilities Love, Mike & Kristely
Table of Contents Schedule of Events…………...………………………….……..………….3 A Letter from Your Program Manager…...………..………….…...….….4 A Word from Your Coordinators…...………………………….…….…....5 Meet the Team …………………………………………………………6-13 Education Day Speakers……………………...…………….………..….14 Disabilities 21 Sites………………………………………………..….15-19 Where Are We Going……………………………………………..………20 Disabilities Information & Helpful Hints…………..……….……...…21-31 FYSOP Fusion ……………………………...…………………....…..32-33 Other Volunteer Opportunities…………………….…………..…....34-35 Sources…..……………………..…………...…..………...……………...36
Opportunities MAPP Volunteers work with refugees, immigrants and international students to enhance their understanding of English and their experience in America. Special emphasis is placed on literacy, English and their experience in America. Time Commitment: 2-4 hours per week Student Studio seeks to bring a visual arts education to area students whose schools do not have art programs. Volunteers will design lesson plans about an artist, movement, or technique and develop a fun, hands-on project for the students to express their creativity and show the skills they have learned through that week’s lesson. Time Commitment: 2-3 hours a week Voices from the Middle Volunteers work with middleschool students to write and perform their own plays. This creative outlet gives the students the opportunity to voice their concerns though a productive medium in a positive environment. Time Commitment: 2-3 hours per week
Student Food Rescue Volunteers collect food from local restaurants, supermarkets and bakeries and distribute it to meal programs, food pantries and shelters. Volunteers also serve meals at community suppers and prepare food baskets for distribution. Time Commitment: 2-4 hours per week Wizards Volunteers travel to various Boston-area schools to introduce children to the wonders of science. Volunteers teach weekly experiments that allow the children to make real connections between scientific principles and the world around them. Time Commitment: 2-3 hours per week Project Hope seeks to show compassion, gain understanding and educate others about the HIV/AIDS virus. Volunteers may work with organizations such as t he AI DS Acti on Committee, Cambridge Cares About AIDS, the Boston Living Center and others. Time Commitment: 2-4 hours per week
“Those who can, do. Those who can do more, volunteer.” ~Author Unknown
FYSOP 21 Schedule
Other Volunteer The Community Service Center boasts 13 student-run programs and hosts many one-time service projects and events. Through these programs and events, more than 3,000 volunteers contribute over 90,000 hours of service annually in the Greater Boston area and across the U.S. If you love FYSOP, you’ll love the other 12 BU CSC programs. For more information, check out our website: www.bu.edu/csc Afterschool Volunteers tutor, offer one-on-one homework assistance, make arts and crafts, tell stories and lead educational games at a variety of local Afterschool programs. Such programs have been shown to reduce juvenile delinquency. Time Commitment: 2-4 hours per week Children’s Theater Volunteers create original variety shows that they perform for young children in hospitals and shelters. Shows range from storybook adaptations to improvisation and feature lessons and morals relevant to today’s youth. Time Commitment: 2 hours per week Siblings Volunteers are paired with elementary school children in one-on-one mentoring relationships. Siblings pairs meet regularly & participate in activities such as an annual Halloween party & “Siblympics,” museum trips, Fitrec adventures and dinners at BU dining halls. In the past, Siblings has received free tickets to Disney on Ice & Celtics games. Time Commitment: 3-5 hours biweekly (full year)
Alternative Spring Breaks The alternative to the traditional spring break. Volunteers travel to sites throughout North America to assist with community service projects ranging from disaster relief, environmental protection and restoration, and many more. Time Commitment: Week Making Music Volunteers teach instrumental music, vocal music and dance to school children who do not have access to a formal music education program. Both students and volunteers have the opportunity to perform on campus at the annual Making Music Recital. Time Commitment: 2-3 hours per week (full year)
Monday, August 23rd 7:15-7:45 8:00-10:00 10:00-10:45 Plaza
Meet your Groups! Look for your Issue Area sign! Opening Ceremonies Ice-breakers with your group
Marsh Plaza GSU, Grand Ballroom Ziskind Lounge/Marsh
Tuesday, August 24th 7:45-8:45
Opening: FYSOP Fusion Disabilities Education Day
1:55-2:35 3:45-4:15 5:00-6:30 7:00 & on
Lunch Museum: Dinner SOCIAL EVENTS
SAC Gym, next to the GSU GSU, Grand Ballroom GSU, East Enclosure/ SAC Gym GSU, Union Court GSU, Ziskind Lounge Warren or West Campus Dining Hall
Wednesday, August 25th 6:00-8:00 9:00-5:00
Breakfast First Day on Site! Lunch on Site
5:00-6:30 Dinner 7:30-9:30 Program Night
SAC Gym Boston! Warren or West Campus Dining Hall
GSU, Grand Ballroom
Thursday, August 26th 6:00-8:00 9:00-5:00 6:30-7:30 7:00 and on
Breakfast Second Day of Service! Lunch on Site Dinner Social Events
SAC Gym Boston! Warren or West Campus Dining Hall
Friday, August 27th Joining Hands Volunteers work with people with disabilities and elders in a variety of settings in the Greater Boston Area. Volunteers may serve organizations including Newton Special Athletes, Best Buddies or Winners on Wheels. Time Commitment: 2-4 hours per week
6:00-8:00 8:00-5:00 5:00-6:30 7:00-10:00
Breakfast Last Day of Volunteering! Lunch on Site Dinner Closing Ceremonies
SAC Gym Boston! Warren or West Campus Dining Hall
A Letter from the PM August 23, 2010 Dear FYSOPers, Welcome to FYSOP 21! By taking part in FYSOP you are joining the ranks of FYSOPers who have been doing service for the past 21 years. FYSOP started in 1989 when Stephen McMahon had an idea to unite a group of first-year students through a shared experience of community service. McMahon’s initial program involved ten staff leaders and 60 volunteers arriving at Boston University a week early to complete a house with Habitat for Humanity. This year, FYSOP 21 has 1,000 volunteers, 220 staff members, 20 coordinators and ten issue areas! This year, FYSOP has gone green with online registration, added a brand new issue area: Urban Renewal, increased its impact by adding educational content on the web and will broadcast live during parts of FYSOP. You couldn’t have picked a better time to join FYSOP! FYSOP will not only introduce you to Boston, but you may find it opens doors to you—be it new friends, passions and opportunities. Whether this is your first time doing service or you are a seasoned volunteer, you are about to join a quarter of the incoming freshmen class who are giving their time and service. You will be amazed by the volunteers in your group, your staff leaders, your coordinators and the sites you will work with. In this next week, I challenge you to let go and be yourself. Seize every moment and truly let yourself embrace every hour of service, every minute you “ride the pony” (you’ll learn what that is soon enough) and every second you take in reflection. If you let it, FYSOP can build a solid foundation for your career at Boston University. This week is just the beginning. Thank you so much for joining the coordinators, staff leaders and myself for FYSOP 21. We have been eagerly awaiting your arrival all summer! As you venture out into the JUNGLE that is Boston, don’t forget the bare necessities. Bring an open mind, compassionate heart and willingness to branch out (pun intended) and try new things. Don’t be afraid to ask for directions, share your sunscreen and mind your lunch. This is going to be a safari you will never forget. a So, ….welcome to the…. as
Jump into something that is Unique and Nothing you have experienced before. Get to know yourself, your group and staff leaders. Learn to let go and Experience FYSOP and your new community! FYSOPlovin’,
HIV/AIDS Awareness •
Homeless & Housing •
People—especially adults—with disabilities often live in group home settings because their families cannot afford to let their caretaking interfere with work. These group homes; however, are often very expensive because insurance typically will not cover the need for a person to live in them. Many people with mental disabilities unfortunately end up being homeless because of the high cost of medication and medical care. Such situations often lead to negative stereotypes of people who are homeless and/ or disabled.
Human Rights •
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After the 1998 case of Bragdon v. Abbott, HIV positivity is considered a chronic, physical disability. This ruling meant to guarantee the right to healthcare and equal employment for those living with HIV in the United States.
The Persons with disabilities are more likely to be victims of violence or rape, according to a 2004 British study, and less likely to obtain police intervention, legal protection or preventive care.
Vitamin A deficiency causes almost half a million children to go blind every year. Iodine Deficienc y Disorder has caused over 50 million people to be born with some degree of mental disability.
Urban Renewal •
Not all MBTA subway stops are accessible. This causes wheelchair users to have a very difficult time traveling on Boston’s subway system. Only one of the eight stops that travel through BU is accessible.
FYSOP Fusion The greatest thing about FYSOP is that each Issue Area directly relates to all the others! This phenomenon is called “FYSOP Fusion.” Here are some ways in which Disabilities relates to the other nine Issue Areas:
Cases of Autism have been on the rise for many years. Now, in 2010, estimates are that 1 in 110 babies born in the U.S. will have autism. Children who have disabilities make up 42 percent of all children subject to domestic violence in the United States.
• Senior citizens make up the fastest growing population who are blind or visually impaired, deaf or hearing impaired. • The number of elders with Alzheimer’s disease and other cognitive impairments due to aging has doubled since 1980.
Environmental pollution can lead to disabilities for unborn babies due to complexities during pregnancy. Radiation, for example, can cause extreme physical and intellectual disabilities if an individual is exposed before birth and/or several years after. Many farms have begun offering jobs to workface-aged people living with disabilities. This has helped to answer the problem of underemployment of people with disabilities.
Gender Focus •
Women and girls with disabilities are particularly vulnerable to abuse. A small 2004 survey in Orissa, India, found that virtually all of the women and girls with disabilities were beaten at home, 25 percent of women with intellectual disabilities had been raped and 6 percent of disabled women had been forcibly sterilized.
A Letter from Your COordinators Dear Disabilities 21 FYSOPers, Oh snap, FYSOP 21 is about to get poppin’! We can’t express in words exactly how excited we are for this week to begin, after months of planning, calling, e-mailing, calling again, researching and coordinating. We know how awesome you all must be for giving up the last week of your summer break to come to school early and volunteer in your new community, Boston. We want to thank you for being the reason why FYSOP 21 is going to be abso-FYSOPing-lutely unforgettable! Our sincere hope is that you take away from this week a new and positive perspective on what disabilities are and on the people who have them. We want you to recognize that respect is a universal human right, owed to all people, regardless of age, gender, sexual orientation, financial status, place of origin or ability. Something to keep in mind as you do service in the Disabilities Issue Area is that you may see things that make you feel sad, uncomfortable, or angry. Know that FYSOP is meant to remove you from your comfort zone and expose you to a major social issue that needs attention. To insure a successful week, keep an open mind and be ready to learn new things at any moment – you’ll be surprised at how much you learn and from whom you will learn it. Most importantly, remember that regardless of one’s disability and the severity of that person’s disability, we are all people and deserve to be treated with respect. We want you to know that by participating in FYSOP, you are making a huge impact not only on Boston, but on the world. In the words of Scott Hamilton, “the only disability in life is a bad attitude.” The fact that you are all here, enthused and ready for a great week of service tells us that no one has that problem. So strap on that saddle and get ready to ride the pony! Mucho Mucho FYS<3P Love, Kristely Bastien & Mike Barry
“To know even one life has breathed easier because you have lived—that is to have succeeded.” - Ralph Waldo Emerson 5
Meet The Disabilities 21 Team
Office of Disabilities Services The Office of Disability Services is located at 19 Deerfield Street and offers services for the following disabilities: hearing and visual impairments, along with physical, psychological, and learning disabilities. Below are their policies.
The FYCOs Kristely “Sunshine” Bastien SAR 2012 Health Science West Roxbury, MA Role Model: Bill Cosby (Not because I look like his fictional daughter, Rudy Huxtable, but he’s the reason I want to be a doctor.) Current Infatuation: Justin “Drew” Bieber (The kid has so much swag!) I can sing "One Time" in Spanish & "One Less Lonely Girl" in French! Funny Story: My prom date’s little brother peed on me on the way to prom. Some advice for freshman: Take a new language! How do you think I learned “One Time” in Spanish?
Mike “MikeBarry” Barry CAS & COM 2013 Anthropology & Mass. Comm. Woburn, MA Some advice for freshmen: Take a class in cultural anthropology; it will open your eyes to a lot of things. Current infatuation: Lady GaGa. Saw her July 1st. Changed my life. Already have tickets for March 8th. Don’t hate. In case you were wondering… my favorite animal is a panda. I’m also partial to seahorses. I laugh at most things. Pokémon are (still) cool. And the rumors are true—I was on my Junior high’s hip-hop dance team. 6
Admissions and Academics Students with disabilities apply through the Office of Admissions, not the Office of Disability Services. They must reach the competitive Boston University standards in order to become accepted. However, the Office of Disability Services does help such students meet the requirements through assistive technology. Housing Accessible and fully integrated housing is available to students in need. Integrated housing is available in a number of different types of residences. Finally, Services Offered… • ASL interpreter services • Audiotaping of class lectures • Alternative format textbooks • Brailled materials • Lab assistance • Notetaker service • Orientation to campus and mobility training • Reduced course load • Work Processor for essay exams
Beastly Braille Readers Melinda “Chingy” Ching CAS 2013 / Undeclared San Diego, CA
Physical impairment refers to a broad range of disabilities which include orthopedic, neuromuscular, cardiovascular and pulmonary disorders. People with these disabilities often must rely upon assertive devices such as wheelchairs, crutches, canes and artificial limbs to obtain mobility. The physical disability may either be congenital or a result of injury, muscular dystrophy, multiple sclerosis, cerebral palsy, amputation, heart disease, pulmonary disease or more. Some persons may have hidden (nonvisible) disabilities which include pulmonary disease, respiratory disorders and epilepsy.
1.6 million Americans residing outside of institutions use wheelchairs. “If you want others to be happy, practice compassion. If you want to be happy, practice compassion.” - The Dalai Lama 30
Some advice for freshmen: Don't be intimidated by the thousands of people at BU; rather, think of BU as a place with thousands of opportunities. Join a club or organization that you are truly passionate about and participate in school events to make your BU experience a lot more memorable!
Bridget “B-rader” Darby CAS 2013 / Biology Amherst, MA Some advice for freshmen: Office hours are so helpful. Who do you think you resemble: Velma from Scooby Doo If you could be any animal what would you be? An echidna because I could still be a mammal without having to give live birth.
Tiffani “T.B.” Burks SAR 2012 / Health Science Hudson, MA Some advice for freshmen: Let go of any inhibitions you might have going into freshman year because you’ll only restrict yourself from the many possibilities. Favorite Boston Restaurant: Brown Sugar
Carnivorous Cochlear Implants
Sam “Little Social Butterfly” Leone CAS 2013 / Economics & Arabic Mendon, MA A quote: “Live as if you were to die tomorrow. Learn as if you were to live forever.” Gandhi Advice for freshmen: Professors are like rattle snakes: deadly, but more afraid of you than you are of them.
Lesley “Gigantaur “Pepin CAS 2011 / Biology Melbourne Beach, FL Favorite song: "Shinning Star" by Earth, Wind and Fire If you could be any animal what would you be? Peregrine falcon, I would be able to fly at speeds up to 200 mph. And they live almost everywhere on earth, so I'd have a lot of choice in where I wanted to settle down with my birdy family.
Shannon “Shang” Gallant SAR 2013 / Health Science Pelham, NH Some advice for freshmen: Leave your door open! Favorite song: “Spacebound” by Eminem or ANYTHING with Lil Wayne or Kid Cudi. If you could be any animal what would you be? A really wealthy person’s dog, because they tend to be really spoiled and live a lavish, relaxed life. 8
The four major causes of hearing impairments are genetic, disease processes affecting the ear, medication and physical trauma. Hearing impairments can occur at birth or throughout life. They can also be inherited; both dominant and recessive genes exist which can cause mild to profound impairment. The elderly typically experience agerelated hearing loss known as presbyacusis. Hearing impairments increase with age and by the age of 80, most people experience some sort of hearing loss. People working in occupational fields with loud noises are also more likely to have hearing impairments.
“Friends” in American Sign Language
The National Captioning Institute reports the use of closed captioning officially began in March 1980, following around 10 years of research and development by various television stations and government agencies.
Visual Impairments Visual impairments, as most disabilities, are present in varying severities and can be divided into specific types. A person who cannot see beyond a foot away from his face could be said to have a visual impairment, while a person who can see nothing but shadows could be described in the same way.
Congo Crutches Gigi “G-Unit/G-Pain” Jordan CAS 2013 / Biology New Hope, PA
There are approximately 10 million blind and visually impaired people in the U.S.
Favorite place in Boston: Museum of Science because they have space ice cream :D Favorite song: “Non Dairy Creamer” by Third Eye Blind Favorite Boston Restaurant: Sonsie! Who do you think you resemble: Bill Cosby
Alex “Gimpy” Beck SED 2012 / History Education Los Gatos, CA
The Guide Dog Foundation pairs up their severely visually impaired clients with dogs who can act as their “eyes.”
A person can be born with a visual impairment but they can also occur at any time during a person’s life, like in old age. Visual impairments are the consequence of a loss of vision, not an eye disorder. Eye disorders, however, can lead to visual impairments as patients lose their vision. Some examples are retinal degeneration, glaucoma, albinism, cataracts, and diabetes.
Some advice for freshmen: Go to the hockey games for a bit of school spirit and a ton of fun...plus, the tickets are free with the Sports Pass!! Funny story...I was in a full leg brace and on crutches for a sprained knee twice during freshman year, also during Summer Orientation! I am always injured or tripping over something!
Molly “Mol-Mol”Freitag COM 2011 / Advertising Bridgeton, NJ Favorite Boston Restaurant: Carlo's Cucina Italiana Some advice for freshmen: Don't be afraid to speak up and join in around campus. College is what you make it.
AUTISM Spectrum DISORDERS (ASD)
Hairy Hearing Aids Steph “Stephypoo” Wong CAS 2012 / Medical Science Saratoga, CA If you could be any animal what would you be? “The neighborhood dog” of a town or block. Preferably medium-sized, cute and fluffy. I would get to run around as much as I’d like, universally loved by all, and get fed by hand by local shop owners and strangers throughout the day.
Autism is a developmental disability that affects the functioning of the brain. It usually occurs within the first years of life. The areas of the brain that control social and communication skills do not fully develop, making related activities difficult for a person with autism.
Olivia “Liverwurst” Costigan SED 2013 / Math Education New Canaan, CT
Some advice for freshmen: If you’re going to gain the Freshman Fifteen, do it by making ridiculous dessert creations in the dining hall. If you could be any animal what would you be? A penguin. They get away with being super klutzy and they do the coolest sliding tricks on their stomachs.
Autism is a spectrum disorder, meaning that the level of severity changes from person to person. Terms like “high functioning” or “less-abled” may be used to specify the ability of an It is estimated that autism occurs in individual. While there is no as many as 2 to 6 in 1,000 individu- “cure” for autism, specialals, and it is four times more preva- ized education, modified diet, occupational and physilent in boys than girls. cal therapy in addition to The number of children diagnosed with autism in America is continuing various medications can be to increase at a rate of more than 20 used to help people with autism lead productive and percent a year. fulfilling lives. The increase in the number of recorded cases in Massachusetts was 10 percent. About 40percent of children with ASDs do not talk at all.
Rachael “Rock-a-mama” Rubin CAS 2013 / Psychology Naperville, IL Some advice for freshmen: Keep your door open, make conversation on the elevators and make friends on the T. Be open to meeting new people constantly, you’ll meet some of your greatest friends at school when you least expect it. Random Fact: I … tend to crack awful jokes, bear with me, laugh anyway?
1 to 1.5 million Americans live with an autism spectrum disorder.
People FIRst Language Language is power. Our words have the power to inspire, motivate and uplift people. They also have the power to hurt, isolate and oppress individuals or entire segments of society. Generally, in choosing words about people with disabilities, the guiding principle is to refer to the person first, not the disability. In place of saying "the disabled," it is preferable to say "people with disabilities." This way, the emphasis is placed on the person, not the disability. The disability should not be the primary, defining characteristic of an individual but merely one aspect of the whole person.
Photosynthetic Prosthetics Ellie “Elmo” Mockler SAR 2013 / Occupational Therapy Middleburg, MD Some advice for freshmen: Do not be tempted by City Co. Just because it is open until 3 AM, it doesn’t mean you need food at that hour. If you are hungry after 12 AM, go to bed. Your pants will thank me. Favorite Song: That new LadyGaGaTaylorSwiftJaySeanJasonDeruloKatyPerry song.
Katelyn “Casper” Stokes COM 2011 / Advertising Roswell, GA A Quote: “Twenty years from now, you will be more disappointed in the things you did not do than the ones you did. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sails. Explore. Dream. Discover.” -Mark Twain
Suzanne “Soosie-Q” Schiavone CAS 2013 / International Relations Beachwood, OH
“The difference between the right word and the almost right word is the difference between lightning and the lightning bug." - Mark Twain
A quote: "Be yourself; everyone else is already taken." -Oscar Wilde If you could be any animal what would you be? I would be a cat. They're easily amused and tend to sleep a lot, both excellent skills.
Tropical Transplants Greg “Greggers” Fleming COM 2013 / Film & Television West Chester, PA Favorite Boston Restaurant: Fire & Ice If you could be any animal what would you be? A fox because he works best at night. A quote: “It only ends once. Anything that happens before that is just Progress.” –Lost
Just the FAcTS Nearly 50 million Americans who are 5 years or older have at least one disability, amounting to 1 in 5 Americans.
4.5 million Americans use assistive devices for hearing impairments. 500,000 Americans use assistive devices for vision impairments.
Brooke “Brookie-Cookie” Howat CAS 2013 / Economics Bloomsburg, PA A quote: “One sees clearly only with the heart. Anything essential is invisible to the eyes.” -The Little Prince Some advice for freshmen: Don't be afraid to go outside your comfort zone. If you could be any animal what would you be? A dolphin because they seem very happy, friendly and they live in water.
Counties with the of disabilities are clustered around the coal-mining areas of
West Virginia, Kentucky and Virginia. 60% of working-age men with disabilities are employed, along with 51% of working-age women with disabilities. The likelihood of acquiring a disability increases with age. Fewer than
Sarah “Pumpkin Pie Plate” Costa SED 2011 Elementary & Special Education Bristol, RI A quote: "We are bits of stellar matter that got cold by accident, bits of star gone wrong" - Sir Arthur Eddington Advice for freshmen: Make the most of every day. The four years of college go by so fast and they are some of the best you'll ever have, so don't waste a second. 12
1 in 10 children ages 5-15 have disabilities, while more than 4 in 10 people ages 65 and older have disabilities.
20% of men and 18 % of women ages 16 to 64 have disabilities. 25
Myths about Disabilities Myth:
Disabilities are abnormal conditions that affect a small portion of the population.
People with disabilities are the largest minority population in the country, and almost everyone experiences some sort of disability, at some point, especially as they get older.
Myth: People with disabilities are brave, courageous and inspirational for having overcome their disability. Fact: People with disabilities are only carrying on their normal, dayto-day activities like everyone else.
Wild Wheelchairs Amanda “Amanda Panda” Matteo SAR 2012 / Occupational Therapy Smithfield, RI If you could be any animal what would you be? Either a bird or a horse. A bird because I’ve always wanted to be able to fly. A horse because they are so majestic and graceful when they run. I guess I could be a Pegasus A quote: “Do all things with love.” -Og Mandino
Myth: Disabilities are always visible. Fact: Many hidden disabilities exist, from mental to learning disabili-
Elena “Elena” Acuña CAS & COM 2012 Art History & Advertising Little Silver, NJ
ties. Additionally, sensory disabilities, such as hearing impairments are often difficult to discern.
Myth: Disabilities begin at birth or in early childhood. Fact: Only 20 percent of people with disabilities acquire their disability before 20, while 53 percent have onset after 40.
Most people with disabilities are deprived of sexual relation-
Fact: Anybody is able to have a sexual relationship with adaptation to their specific needs. People with disabilities can have children or adopt like anyone else. Myth: People who are in wheelchairs are confined. Fact: Wheelchairs do not confine, rather they allow individuals to get around, just as cars do.
Myth: People with visual impairments live in complete darkness. Fact: Ninety-five percent of people with visual impairments have some usable vision. 24
Role Model: Beyoncé (it was a draw between her & my mom, but my mom can’t do the “Single Ladies” dance) If you could be any animal what would you be? I would have to say a duck because I could fly, get fed in parks and dry instantly after swimming.
Lauren “Laurengitis” Joseph CAS 2013 Neuroscience & Psychology Wheeling, WV Some advice for freshmen: I'd definitely recommend taking part in the annual International Pillow Fight Day in the spring. It's a blast! If you could be any animal what would you be? I would be a shark, so that I could be featured for a whole week on the Discovery Channel.
Meet Today’s Speakers Mrs. Sally Huysman has a BA in Special Physical Education/ Education from Queens College in NY. She graduated from the University of Pennsylvania with a Post-Grad Certificate in Physical Therapy. Her first training affiliation was at Boston University Hospital and she lived in Warren Towers for six weeks (just like a lot of you!) She has been in home care for the last 20+ years. She has been doing "Abilities Awareness" for 15 years to various age groups and it has evolved over the years. She’s been married for 29 years and is a mother of three girls, one of them you all know as the FYSOP Program Manager. She also loves traveling, walking and sunsets!
The Northeast Passage Wildcats, a Quad Rugby Team, established in 2007, are New England's premiere disabled sports and recreation program based at the University of New Hampshire. The three-year old team has enjoyed early success, such as January 2009 when the Wildcats went undefeated at the Southern Slam Tournament in Jacksonville, FL. The team is led by head coach Chandler Bullard.
Helping Hands began in 1979 when its first client was paired with a trained Capuchin monkey to help him perform daily tasks. Since then, they’ve paired thousands of people with monkey helpers in the Boston area. Website: http://www.monkeyhelpers.org/
Accessibility ac·ces·si·ble 1 : providing access 2 a : capable of being reached <accessible by rail>; also : being within reach <fashions at accessible prices> b : easy to communicate or deal with <accessible people> Definition from the Merriam-Webster Dictionary Inaccessibility has been a problem presented to those with disabilities across the world for as long as disabilities have existed (forever). Inaccessibility can refer to a lack of closed-captioning for the deaf, an elevated door with no ramp for a wheelchair user or a lack of sound for a blind person. People without disabilities often take for granted their five senses and abilities to walk and process information effectively. Avoiding making this mistake, Boston University has made an effort in terms of accessibility on campus– the only inaccessible BU building to a wheelchair user is The Castle on Bay State Road.
Laws and political actions as a result of the Americans with Disabilities Act have sprung up all over the U.S. since the 1990s to make an effort in terms of accessibility. Most local governments require new buildings to be 100 percent accessible, and many of them do not “grandfather” old buildings, but require them to be accessible as well.
“Disability is a matter of perception. If you can do just one thing well, you're needed by someone.” - Martina Navratilova
The Americans with Disabilities Act
Disabilities 21 Sites
The Americans with Disabilities Act (ADA) prohibits discrimination on the basis of disability in employment, state and local government, public accommodations, commercial facilities, transportation and telecommunications. It also applies to the United States Congress. To be protected by the ADA, one must have a disability or have a relationship or association with an individual with a disability. An individual with a disability is defined by the ADA as a person who has a physical or mental impairment that substantially limits one or more major life activities, a person who has a history or record of such an impairment, or a person who is perceived by others as having such an impairment. The ADA does not specifically name all of the impairments that are covered.
The Paul Center is dedicated to assisting individuals with disabilities in developing their maximum potential and independence. They accomplish this goal by providing services to the individual as well as to the family.
The ADA was not passed until 1990. Prior to 1990, people with disabilities had a very hard time obtaining employment. Thanks to the ADA this problem has lessened visibly. Also thanks to the ADA, disabilities awareness has increased significantly. Words like “retarded” and “handicapped” were part of medical terminology and were commonly used in the 1990s. Now, just 20 years later, America has made large strides in terms of acceptance and understanding of disabilities. However, the work is still not done. Thanks to all of the knowledge and experience you’ll have by the end of this week, you can become an advocate for people with disabilities!
The Paul Center
What to wear? Comfortable clothing that you don’t mind getting dirty. You will be outside all day—make sure to bring sunblock, water, hats and sneakers. NO open-toed shoes ! Website: www.thepaulcenter.org
The Boston Home The Boston Home, founded in 1881, serves as an assisted living home for adults with advanced cases of Multiple Scleroses and other neurological diseases. The Boston Home is the only facility of its kind in New England, and one of a few in the nation. Residents of the Home generally retain close ties with their families who play an important role in their care plans and activities. While on site, you will be getting to know many of the residents and helping to keep up the garden. What to wear? Comfortable clothes. Website: www.thebostonhome.org 15
Disabilities 21 Sites
Before we get Started
Minuteman Arc Minute Man Arc is committed to enhancing the quality of life for people with developmental disabilities of all ages. They strive to enhance their inclusion in the community, to maximize personal choice and decision making and to support them in reaching their full potential in all areas of their lives. What to wear? Comfortable clothes. Bring sunscreen, water and hats. Website: www.minutemanarc.org/
Hogan Rehab Center The nursing and rehabilitation center provides a wide range of medical services including post acute care, short-term rehabilitation, respite care, hospice care and long-term care. Working with each resident and their family members, the staff will customize a plan to maximize both self-motivation and functional independence.
It’s easy to view people with disabilities as different—for better or for worse. Many people make the mistake of seeing a person with a disability as a superhero who overcomes a major problem every day of his/her life. It’s also easy to assume the opposite: that those with disabilities are disabled and need help in every activity they perform. Try to remember that people with disabilities are people first and foremost. As people, they experience good days, bad days and everything in between. They do not perceive their disabilities as a major obstacle each day any more than a person may view having brown hair or blue eyes an obstacle. Remember, when you approach a person with a disability, no matter the type or severity of that disability, be sure to be respectful and patient towards him/her. And don’t be nervous, everyone you’ll be working with will be happy to see you. Be open and listen respectfully. Some people may have trouble speaking, but that doesn't mean they don’t have anything good to say! You can learn a lot when you listen.
What to wear? Comfortable clothes
Where are we going?
Disabilities 21 Sites Partners for Youth with Disabilities
The Beastly Braille Readers
The Bridge Center
The Carnivorous Cochlear Implants
Partners for Youth with Disabilities
The Paul Center
Hogan Rehab Center
The Bridge Center
The Boston Home
The Walden School
PYD is committed to empowering young people with disabilities to reach their full potential by providing high quality one-to-one and group mentoring programs where caring adults act as positive role models and provide support, understanding and guidance for youth as they strive to reach their personal, educational and career goals. During FYSOP, volunteers will be working on activities with some of PYD’s clients in the SAC gym.
What to wear? Comfortable clothes. The Congo Crutches
The Hairy Hearing Aids
The Photosynthetic Prosthetics
Hogan Rehab Center
The Walden School
The Paul Center
The Tropical Transplants
Ivy Street School
The Bridge Center
Outside the Lines Studio Outside the Lines Studio is an arts-based alternative day program, collectively run by artists, for individuals with developmental and physical disabilities. Their mission is to provide a creative, supportive community, where each individual can explore their own unique potential in a way that best suits their interests, talents and learning styles. What to wear? Comfortable clothes.
The Wild Wheelchairs
Outside the Lines Studio
The Paul Center
Hogan Rehab Center
“Service is what life is all about.” ~ Marian Wright
Website: :http:/ www.outsidethelinesstudio.org/ aboutus.html
Disabilities 21 Sites The Bridge Center
Disabilities 21 Sites Tewksbury Hospital Equestrian Farm Where Special Horses Help Special People
The Bridge Center supports families by providing children with opportunities to build social, emotional, & physical skills so they may participate fully in their communities. It’s is a non-profit agency that provides recreational activities for children and young adults with disabilities. They also provide programs and services that meet the needs of all children regardless of the nature or the severity of their disability. What to wear? Comfortable clothes that you don’t mind getting dirty. You will be outside all day—make sure to bring sunblock, water, hats, etc. NO open-toed shoes !
T.H.E. FARM is a non-profit organization that provides equine therapeutic programs for the general public, as well as for clients of Tewksbury Hospital, schools and other service agencies for individuals of all abilities. What to wear? Comfortable clothes that you don’t mind getting dirty. You will be outside all day—make sure to bring sun block, water, hats, boots, sneakers or closed toed shoes. NO open-toed shoes !
Website: www.thebridgectr.org/ Website: www.t-h-e-farm.org
The Ivy Street School The Ivy Street School is the headquarters of the Massachusetts Association for the Blind, which caters to patients all over the state both in group homes and private residences. The School’s students have varying degrees of disabilities, which are typically present in the form of brain injuries. Many of the students of the school live on a dormitory floor and have very structured education plans. What to wear? Comfortable clothes. Bring sunscreen, water and hats. Website: http:// www.mabcommunity.org/site/
The Walden School Walden School is a non-profit, nationally-recognized educational institution which provides comprehensive treatment and educational services for deaf children and adolescents between the ages of 8 and 21. Its students are challenged by severe social and emotional difficulties, resulting from childhood trauma, mental illness and/or organic dysfunctions. All are deaf, and have significant treatment needs that were not successfully addressed in other academic and residential settings. What to wear? Comfortable clothes that you don’t mind getting dirty. Website: www.wsdeaf.org/aws.html