vii. Resistance from clinicians: Clinical teams vary in their willingness to share information with their patients. Some health professionals will be unaware of the Brain Tumour Patient Information Portal. Some clinical teams will be concerned that explaining information to you will take up time that in their view could be more effectively spent, or that sharing too much information will cause you anxiety. However many clinical teams have found that by being open with you and spending time answering your questions improves the quality of the care and justifies the investment of time. It is for you to decide in partnership with your clinical team and supported by your family and carers, how much information you would like and how you will use it.
Patient Information Portal: User handbook
Portal handbook.indd 13
13
01/07/2013 17:03