Spring newsletter 2013 Autumn newsletter 2012
Welcome to the Spring edition of our newsletter In this issue we’ll update you with what’s been happening here at our hospice, tell you about some of our upcoming events and show you what some of you, our fabulous supporters, have been up to.
Read all about our fabulous upcoming events & find out how you can be a hero for Children’s Hospice Week!
Over the past few months our support for children and families has continued to increase and we now look after over 160 families. We need to raise over £3 million every year to ensure that we can help every family that needs our support, and as we receive no statutory government funding, the help of local people is vital to us. We hope you enjoy reading about Bluebell Wood and learning more about what goes on at the hospice; our outstanding care, excellent facilities and our fabulous children and young people. We hope this will inspire you to come on board with us and get involved. On behalf of all our children and their families, a huge thank you for all your help and support! The Bluebell Wood Team x
Bluebell Wood Child
Lilly’s Story Six-year-old Lilly is a happy, smiley, little girl who loves books, Disney characters and musicals, however, she was born with an unknown condition which throughout her early years has caused her many health problems. Her Mum Vikki, tells her story; “Lilly was very poorly when she was born in 2006 and it wasn’t until she was two that she was finally diagnosed with 'Koolen Syndrome,' a very rare chromosome condition which means for Lilly, the future is uncertain. “Koolen Syndrome affects her in many different ways, she has severe learning difficulties and global delay, she is visually impaired, has worsening mobility issues which at times cause her to be wheelchair bound and also suffers from severe epilepsy. Lilly is also autistic and has a low immune system and respiratory problems; however, despite all this she really is the happiest, funniest and bravest little girl who makes us so proud every day. “Lilly doesn't sleep often and never has; she is always on the go even on days when her mobility isn't very good, she is never, ever still. Due to her worsening visual impairment alongside her other issues she can't be left for a second. She needs constant supervision so she doesn't hurt herself, so looking after her is a 24/7 job and is very, very exhausting.
Spring newsletter 2013
Spring newsletter 2013
quality time as that is rare in our lives. It gives us the chance to get a full night’s sleep as her endless medication and continuous therapy is taken over by the care team and we know no matter what the future holds for Lilly they will always be there for us. “On other occasions Lilly will stay in Bluebell alone so we can take Ryan out. Ryan has missed out on so much due to Lilly's needs so while Lilly is at Bluebell Wood we can do something like take Ryan to the cinema. At these times we have complete trust in the staff as they care for Lilly as if she was their own, so we know she's really happy there. “There have been times when her health has not been so good and we've really appreciated her being able to go to Bluebell to recover in such lovely surroundings. The hospice has been a lifeline to us; we've also made some great friends and had lots of emotional support from them which is much needed to people like us who've had little or no family support. “There is even a parent group and I’ve always found this to be really supportive and helpful to us. We couldn't cope without the hospice’s help in our life with advice, support and help when Lilly's sick, thank you so much for all you do Bluebell Wood!”
Thank you to the 12 Jail and Bail
ers who raised
couldn’t have done it without HMP/YOI Marshgate, The Regent Hotel, Doncaster and our fabulous photographer Nick from Foo tprint photography who captured those memorab le moments! We must also thank HMP Mar shgate for their fundraising efforts over the year s raising over £10,000 for us!
The Barrack Hotel in Apperknowle held a Halloween party night for Bluebell Wood and Chesterfield Neonatal and raised £470 for us.
Mr and Mrs Turton got into the festive spirit and raised £408 over the Christmas period, as Mr Turton dressed as Father Christmas and delivered presents to children in the area where he lived on Christmas Day!
16 year-old student, Meg an Nicholson shaved her head and ra ised £1500!
Pauline Albrecht Dronfield Support group member d for aske and day celebrated her 70th birth 0! £200 g raisin us for tions dona Natalie Wilkinson and pupils from her Piano School in Chapeltown have spent 6 months fundr aising for us and have raised £5470!
Aubrey Hill and all of the 180 participa nts that took part in the Park 2 Pa rk bike ride raised £1 5,000!
Lilly lives with her mum, dad and big brother Ryan who is nearly 15. Vikky continues: “We come to Bluebell as a family, sometimes for
71 year-old Bertie Mather completed the 200 mile Coast to Coast walk for us in 15 days!
Spring newsletter 2013
With the theme of heroes it takes place each year and culminates on Superhero Friday - a special day of hero inspired fundraising activities. Just like heroes, children’s hospices are there for people when they need them most. Children’s Hospice Week aims to raise awareness of the needs of children with a shortened life expectancy and of the services - children’s hospices like Bluebell Wood - that support them. It also raises much needed funds to ensure that these services can continue to provide vital support to children, who may not reach adulthood and their families. We are asking everyone to support Bluebell Wood and ‘be a hero’ during Children’s Hospice Week which will take place Friday 26 April - Friday 3 May.
How can you get involved? There are lots of ways to get involved whether you’re an individual, school, community group, work place or a group of friends. You could dress up as a superhero for the day and ask family and friends to sponsor you, organise a quiz with people paying to take part, hold a raffle or bring and buy sale, cake sale, coffee morning, the list is endless, you could even hold a purple and orange themed event as these are Bluebell Wood’s colours. Please go to our website and download our Children’s Hospice Week superhero booklet for more information and ideas at; www.bluebellwood.org/childrens-hospice-week.php Or call one of our friendly fundraisers on 01909 517365 who will be happy to chat to you to give you more information and discuss ideas. We think you’ll agree with us that all our children are Super heroes every day, get involved and help us to help them by continuing to provide our much needed support.
Our Care Team - always there for you
Our dedicated care team consists of 26 staff made up of nurses, carers, nursery nurses, a physio, music therapist, activity co-ordinators, counsellors, a Family Liaison Manager and a Practice Educator.The team are all headed up by our new Director of Care, Julie Devine, who came to us from NHS, Rotherham and has a background in delivering award winning services for children and young people who have complex, life limiting conditions and their families. Our care team look after over 160 children with a vast range of complex medical needs. We support our children and their families on their life journey, offering respite care, day care provision, community support, crisis intervention and end of life treatment and care. Our highly trained care team support our families in many different ways and our underlying philosophy is to ensure the children are cared for in the way their families wish. This gives them peace of mind, enabling them to to have a break from their caring responsibilities during their stay. We offer a whole family approach to care and support, working with parents, carers, grand-parents, siblings, in fact anyone who is important to the child. A lot of families arrive completely exhausted and our aim is to help them re-charge their batteries. Julie says: “When families walk through our door they should have the feeling of a warm blanket being wrapped around their shoulders on a cold winter’s day. “Our hospice is a warm, friendly home from home for the whole family and our motto is ‘living with love and laughter’ and anyone that has visited us will agree that there’s a lot of this going on!”
Pat Thomas from Carlton-in-Lindrick recently won £1,000 on the Bluebell Wood lottery after playing for only four months! Pat and her husband were absolutely thrilled and spent their winnings on a holiday to Norfolk. Next time it could be you! For only £1 per week you could be in with a chance of winning £1,000 in our weekly draw or up to £5,200 on our rollover! Go to www.bluebellwood.org/weekly-lottery.php for more information and to sign up now!
Spring newsletter 2013
1st Prize £1,000
Spring newsletter 2013
Due to Alexia’s complex medical needs, when she was one year old, her parents were told about Bluebell Wood Children’s Hospice.
pays £5 a month phone call for a 10 minute rent who at 3 a.m. to a pa k tal to s just need
Spring newsletter 2013
We know that getting fit can be a battle and hitting the streets at the end of a busy day can be a chore, however, running for your local children's hospice could be just the motivation you need. By running for ‘Team Bluebell’ you could help us continue to provide this valuable service for local families who need our help. The children at Bluebell Wood have inspired International Football Referee Howard Webb, who is a patron of the charity, to dig out his running shoes and run for the hospice. Howard said; “I have visited Bluebell on several occasions and always feel very humbled when I’m there.
Alexia is now two and a half years old and suffers from Coffin Siris syndrome (a rare genetic disorder which causes developmental delays), PierreRobin Sequence (lower set ears and jaw), she has a small ASD on her heart, (Atrial Sept Defect, also known as a hole in the heart) and Subglottic Stenosis, a narrowing of the subglottic airway. She visits Bluebell Wood on a regular basis. Mum Lizzie says: “Every time we get here she just smiles from ear to ear and is keen for us to leave so she can enjoy the place on her own. It gives us chance to have a break and get a full night’s sleep as Alexia often stays awake throughout the night, I don’t know what we’d do without it.”
“The work they do is fantastic and I’m honoured to be a patron. They have inspired me to get my running shoes back on again to show my support and I’m urging others to do the same and help raise funds for this amazing place.”
Signing up to gi ve a regular do nation is the most pow erful way you ca n support Bluebell Wood’s children and thei r families, helping us to co ntinue to provid e our services to local children with a shortened life expectancy.
a month pays for the setting up of a drip for a dehydrated chi ld
£10 a monseth ssion for
pays for a play child, a Bluebell Wood d laughter an fun of s lot with
a month pays for a child to have a dip in our hydrotherapy spa with lots of bubbles and giggles
Bec ome a reg ular give r and help local children like Alexia. For more information and to become a regular give r go to; www.bluebellwood.org/standing-orders.php www.bluebellwood.org
Think you’d like to join Team Bluebell? Why not sign up to a fun run, 10K or even a half marathon? Our fabulous fundraising team will be behind you all the way. They will provide you with inspirational stories, top fundraising tips, sponsorship forms and even a free Bluebell Wood running vest! For further information on runs and walks you can take part in for us visit our website at; www.bluebellwood.org/running.php If running is not for you but you like to walk there are also numerous walks out there that you can get involved in for Bluebell Wood. Go to the link below to find a list of local walks plus information about Tom’s Golden Miles, our 35 mile way marked route which was created by Gillian Scotford, proud Mum to one of Bluebell’s children,Tom www.bluebellwood.org/walking-events.php www.bluebellwood.org
Spring newsletter 2013
Bluebell Wood Ambassadors
Since our last newsletter we are thrilled to tell you that we have not one, but two new Ambassadors on board! We are so proud to welcome one fifth of the hottest boy band in the world, One Direction’s Louis Tomlinson, and World Taekwondo Champion, Sarah Stevenson!
What’s on Guide
Spring newsletter 2013
Walk For All 28 April
Don’t miss out on this 5, 14 or 25 mile trek in the Hope Valley and Edale area. For further info. or to sign up and raise money for Bluebell Wood go to www.walkit.com/2012/01/jan e-tomlinsons-walk-for-all-peak -district-walk or contact Emma on 01909 517 368 or emma.vizor@bluebellwoo d.org
Sheffield Half Marathon 12 May
Louis visited us back in October 2012 before taking part in a charity football match for us in his home town of Doncaster. He said:“It was really important for me to support a local charity. Bluebell Wood is such a great cause and I’m very proud to be able to help them with raising funds.” Sarah Stevenson, who read the oath on behalf of all the Olympians at the 2012 Olympic Games, came to see us in January and said: “It was a very humbling experience and I was inspired by the children I met there and their families.” We’re really excited about working with them both in the future- watch this space!!
Jordan Desert Trek
There are still spaces left to sign up for this year’s half marathon and run for Team Bluebell! Go to www.bluebellwood.org/running or contact Gail at the hospice on 01909 517362 or at email@example.com
Dippy Duck Race 7 June
2013 sees the return of the Dippy Duck Race! The ducks will bob down the flume and along the lazy river at Ponds Forge Sports Centre. You can buy a duck for only £1 and if yours is one of the first to the finishing line, you'll win an amazi ng prize! Contact Blu Crew organiser Nigel on 07889 957976 for more details or to buy tickets
Swim For All 17 June
This open water swim at Pugney’s Country Park in Wakefield is the perfect challenge for those Junior swim route, there’s no excuse not to give your swimming a spark this summer. Go to; www.forallevents.co.uk/swim-for-all/ or contact Emma Vizor on 01909 517 368 or email firstname.lastname@example.org
Skydive 30 June
April will see two of our supporters, Maureen Shah from Doncaster and Richard Horn from Sheffield take on the Jordan desert and mountains. The Jordan Desert Trek entails five days of trekking starting at the Dead Sea and finishing in the rose coloured city of Petra. They will trek through mountain and desert terrain using ancient trails, swapping all their home comforts for the four 'S's - sun, spiders, snakes and lots and lots of sand, sleeping under the stars en route to the city of Petra. We wish them all the best and look forward to hearing all about it.
London Marathon Also in April we’re lucky enough to have two runners running for ‘Team Bluebell’ in the London marathon. Heather Finnerty, wife of the Sheffield Steelers coach Ryan will be taking part along with Maxine Kane who lives in Bermuda and will be travelling all the way to England to take part in the run! To support Heather or Maxine visit their JustGiving pages;
We are looking for adrenaline junkies who would be willing to take part in this year’s skydive, taking off from Hibalds tow airfield this June. If you are interested contact Rachael on 01909 517 367 or email Rachael.dawes@bl uebellwood.org
Tom’s Golden Mile challenge 7 July
This 7 mile hike is a great way to kick start summer and takes place in the glorious Derbyshire countryside. For more information visit www.blueb ellwood.org/goldenmiles.php or contact Emma on 01909 517368 or email emma.vizor@blueb ellwood.org
It’s a Knockout 8 September Looking for an unforgettable experience? You can't beat it for mad moments, belly laughs and nostalgia. Why not enter a team in our It’s a Knockout Event this summer? Contact Rachael or Julie on 01909 517365 for further info. or email them email@example.com or Julie.firstname.lastname@example.org
Hospice Open Day 29 September We will be opening our doors to the hospice to show you the work we do and also, how your fundraising efforts have paid off. For more information visit www.bluebellwood.org/openday.php or give our fundraising team a call on 01909 517 365
Bark Around the Park 13 October
Get your pups paws into action and get involved in Bark Around the Park here at Bluebell Wood. This sponsored dog walk takes place around the beautiful countryside surrounding the hospice. Find out more at www.bluebellwood.org/bark.php or Nigel on 07889 957976
www.justgiving.com/Heather-LondonMarathon-BluebellWood www.justgiving.com/Maxine-Kane We hope you’ll join us in wishing them both good luck! www.bluebellwood.org
All of the events can be viewed on our What’s On Guide on our website at http://www.bluebellwood.org/events.php www.bluebellwood.org
Spring newsletter 2013
Can you help us support local children with a shortened life expectancy? use the form If you would like to show your support by making a donation please below or go to our website www.bluebellwood.org/donate-money.php envelope provided Please complete this form and return in the stamped addressed
Our corporate supporters are always amazing, working alongside us fundraising, and also offering their time volunteering within the hospice.
Bank Park are donating 10% of all their profits to Bluebell Wood from their car parking fees
Your Contact Details Name:
Lynne Robertson from HSBC organised a fabulous night of entertainment with the renowned Acoustic Angels, raising over £5,800
SWFC have been fundraising through a match day
And we mustn’t forget Lindley Catering who have created a fantastic Bluebell Wood kiosk at the SWFC ground and are
Yes I would like to make a donation to Bluebell Wood Children’s Hospice Total donation amount £
Aviva Sheffield have supported us for the last 2 years and have raised £14,439
I enclose a cheque/postal order made payable to Bluebell Wood Children’s Hospice (please delete as appropriate)
Panache Lingerie chose to support us through lots of different fundraising initiatives,
Or, please debit my credit/debit card with the total amount above Card Number: Switch card issue no
have been actively supporting us for the
Security number (last 3 digits on reverse of your card)
Wilkinsons have been incredible with their support throughout 2012 and generated well over £35,000 for us. We are really looking forward to working with them during 2013 too!
Signature Date Increase your gift value to us by 25% at no further cost to yourself by signing a Gift Aid declaration I declare that I am a UK taxpayer and want Bluebell Wood to treat all donations I have made in the last 5 years and any future donations that I make as gift aid donations
charity this year!
Would your company like to sign up for Payroll Giving? Payroll Giving is a tax efficient scheme that allows you to make regular donations to Bluebell Wood straight from your salary – and because your donation is taken out before tax, £10 a month could cost you as little as £5 (depending on your tax contributions). Contact Julie one of our corporate fundraisers for more details on 01909 517361 or email email@example.com Would your company like to enter a team into our fabulous new It’s a Knockout Event? Go to our events guide on page 10 for further information or call 01909 517365 and ask for Rachael or Julie.
You can also support us by following us on LinkedIn; just search ‘Bluebell Wood’ in companies.
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www.bluebellwood.org Registered charity number 1076958
Published on Apr 24, 2013