Tolia: Because so little is known about it. Doctors have very little knowledge on how to treat it properly. They treat it the best they can with physical therapy and vitamins; and even those remedies are not effective on all patients. BCF: From what you have seen, is there a lot of research being done to find a cure? Tolia: Research is being done, but the issue is money. Funds are not as abundant for researching this disease as it is say for cancer and A.I.D.S, I want to change all that by having more fundraisers to generate more awareness, I will walk the streets if I have to, to get the word out. BCF: What can we do to shed more light on this disease? Tolia: Research and read up on it. It is a terminal disease that handicaps those who suffer from it and it cuts their lives short. BCF: Speaking of fundraisers, I hear that Style Star Online is working with you on a fundraiser scheduled for November 13th, 2010? Tolia: Yes, this is a mixer that we plan to have on a monthly basis to raise funds for the disease to educate and inform people. The launch mixer is November 13th and it is not just to raise funds, but to also support families who are dealing with the disease. We are also inviting doctors to share information about this illness. Elijah's doctor, Dr. Camacho will be speaking at the June event along with our MC and Hostess, Beauty Come Forth Founder & Editor In Chief, Myra Wallace. We are also blessed to have other celebrities who are lending their support. BCF: Where is this event going to be held? Tolia: The event will be held Saturday, November 13th at 6:00pm at 427 E Broadway, Long Beach, CA. All the proceeds from the event will go to the UCI Research Center for Mitochondria. BCF: Saying goodbye to your angels was difficult I am sure and such experiences can sorely try ones faith, in the mist of such circumstances, how can you advise others to keep living fabulous? Tolia: My family, friends and church home keep me grounded. Any trial we can oversee, but we still praise God. I thank God for giving me strength. If I can get through it, anyone can. It is God that keeps me, for he will not put on you more than you can bear. I am excited about what I can do to change how people see this disease. My life is not over, I still have a lot to learn. And Tolia, you have taught me a lot! If you cannot attend the event and would like to send a donation or would like more information about how you can support Take Flight Fundraiser & Fashion Show, please call 562-456-7211 or email Tolia at email@example.com. All the proceeds from the event will go to the UCI Research Center for Mitochondria.