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Voice (PPV)

CONTENTS

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Content

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PPV – Editorial

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What’s on?

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Working Together Health Workshop

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Home Education and SEN Workshop

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Autism Workshops

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Volunteering Matters

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Laser Quest

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Local Offer Live in Pictures

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School SEN Champion

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Parent Reps Update

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Appreciation Award

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Your Views and Consultations

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Autism Hampshire- Autism Alert Apps

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News in Brief

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How to contact Portsmouth Parent Voice

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Hi Everyone! Thank you to all of you who attended our Local Offer Live event on Saturday 1st April. As you will see from the front page, we had a visit from our mascot, Arty, the Italian Spinone who is a trained Pet as Therapy dog. As you will see from the picture on the front page, Arty was rather exhausted by the end of the day after being much loved by children and adults alike. I am sure you are all looking forward to a well-deserved break over the Easter holidays and as the sun is shining as I write this, spring is definitely in the air! March was a busy month for us. Our Home Education and SEN workshop was very well attended and we are planning a follow up event in June. We also have our Health Workshop taking place Friday 5th May and our Coffee Morning on Tuesday 16th May. You may remember that we conducted a survey about our newsletter earlier this year. The feedback was overwhelmingly positive, however, we have received feedback from parents and professionals saying that it is sometimes an information overload. With this in mind, we are planning a lighter version of the newsletter and include links to our new website: http://www.portsmouthparentvoice.org/ It is still working progress but Alison and I will be busy updating and uploading information over the Easter holidays. You might have also noticed that we have a new logo! Wishing you all a very happy Easter and thank you for your continuous support. See you soon! Barbara and the Team General enquiries: ppv@p-d-f.org Barbara McDougall: PPVcoordinator@p-d-f.org.uk Kara Jewell: engagementofficer@p-d-f.org.uk Alison Cooper: ppvadmin@p-d-f.org.uk 3


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What’s On?

Events and workshops coming up soon Are you a parent or carer of a child or young person with additional needs and disability and living in Portsmouth? We run various coffee mornings, events and training sessions in partnership with various voluntary groups ( Autism Hampshire, Contact A Family) and statutory agencies (such as CAMHS- Child and Adolescent Mental Health Services) Event

Date and Time

Venue

Working with Health Workshop

Friday 5th May 10 am to 2.30pm

PPV Coffee Morning

Tuesday 16th May 10 am to 12 noon

Home Education and SEN workshop

Saturday 17th June 10.30 am to 12:30 pm

The Frank Sorrell Centre Prince Albert Road Southsea PO4 9HR The Frank Sorrell Centre Prince Albert Road Southsea PO4 9HR The Frank Sorrell Centre Prince Albert Road Southsea PO4 9HR

You will find further details in this newsletter about the booking details for our training sessions and workshops. Our coffee mornings and drop-ins are free to attend and you are always welcome to bring a friend or relative. Remember to check our Facebook page and Twitter for the latest information. ppvadmin@p-d-f.org.uk or call 07825 185 608 4

ppv@p-d-f.org.uk or call 07825 185 608


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Autism Workshops These workshops were specifically designed in response to parents’ feedback and enquiries. If you are a parent carer and have concerns that your child might have autism, these workshops are for you. Your child does not need a diagnosis for you to attend. Tuesday 25th April What now? Understanding Autism and what it holds for the future Tuesday 2nd May Understanding and Managing Behaviours that Challenge. Tuesday 9th May SLT – Use of Language with Autistic children, PECS/Makaton etc. Tuesday 16th May Explanation of diagnosis. Explaining a diagnosis to siblings, family and friends. Tuesday 23rd May **Supporting the anxious child,

You can book individual workshops via Eventbrite: https://www.eventbrite.co.uk/e /parents-autism-workshopstickets-33528030241

Tuesday 6th June Sensory issues and management. Tuesday 13th June Life with autism – Impact on the family.

Tuesday 20th June Wash up session, questions? – Entitlements, EHCP etc These sessions are designed with you in mind as parents, so please do come to as many mornings as you feel you need. There will be space put aside to get your feedback and views on how we can improve these group sessions. This group programme is being held at the Training and Learning Centre (Portsmouth Academy for Girls), St Mary’s Road, Portsmouth, PO1 5PF from 9.30-11.30am. Please contact Barbara McDougall (ppvcoordinator@p-d-f.org.uk) or Daniel Bevan (dan.bevan@nhs.net) for further information.

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PPV Local Offer Live 2017

A huge thank you to everyone, parents, carers, exhibitors and volunteers, who took part in our event held at Miltoncross Academy on Saturday 1st April.

You will find more pictures on our website and you can also view the article published in the Portsmouth News here: http://www.portsmouth.co.uk/news/support -showcase-1-7896719 Special thanks to Martin from Manic Bounce and Carmen from The Smelly Wind Pirate Ship for donating the use of the bouncy castle on the day: http://www.manicbounce.co.uk/ https://www.facebook.com/The-SmellyWind-1546146885399754/ Not forgetting Boogie Mites for providing the entertainment! Thank you Pauline! 10


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School SEN Champion Would you like to be more involved in your child's school?

Would you like to find out more about the support for children with Send in schools? Would you like to meet other parents of children and young people with Send at your child's school? Would you like to work alongside your child's SENco and help improve the schools Send work? If so why not become a school Sen Champion? We are looking for volunteers to help organise coffee mornings and help distribute information to parents. We are looking for representatives across the city. Full training and support will be offered as well as a free DBS check. If you would like to find out more please email engagementofficer@p-df.org.uk

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Parent Reps Update Our parent reps either attend monthly meetings such as empowering Children and Families (ECAF), our co-production group or take part in strategic meetings, training, tendering process or focus groups. Last month, parents took part in “Our aims for 2017/18” event and here are a few of the suggestions made on the day:       

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Managing / support for transition from children to teenager puberty; where does hormones / disability begin / end? Personal hygiene Support for siblings o Explain their brothers / sisters condition Social stories o What else is available? Would schools with Practical tips for older age group – apps? sensory rooms be willing Safety and steps towards independence to let parents use them Sensory toy / equipment for a fee? o Borrow o Try before you buy o Make your own o Connors Toy Library o Sensory room sessions in children centre / schools Gap in services o OT / Sensory processing / S&L o Autism training – delivered by parents to share perspective o Healthy eating Language used by professionals – o Easy read document Better Early Years Counselling sessions for parents/peer support information Early Years provisions: list of toddlers and baby groups

Would you like to add anything to this list? Some if these points are already being addressed through various projects our parent reps are working on. Want to join the team to make a difference and improve what is on offer in Portsmouth? Please get in touch 

For more information, please contact: ppvcoordinator@p-d-f.org.uk or call 07825 185 608

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Appreciation Awards The Appreciation Award was created by the Co-production Group (or CoPro) in order to celebrate and recognise professionals who have helped parents and families of children and young people with special educational needs and disability. We are in the process of setting up a web page on our website to make it easier for you to nominate a professional who has helped you and your child/ young person. We often receive more complaints than compliments so it is important to recognise that there are individuals who are committed to make a difference to parent carers and their families. Maybe by highligting good practice in the city, we will be able to change the way services are delivered to you and benefitting other families in the same situation. So go on, get nominating!

Our latest awards go to: Sue Thomas, Mrs Duffle, Mrs Warren and Mrs Shiers from Portsdown DAU Mrs McDonald from Fernhurst Junior School

If you would like to nominate an individual who has made a difference for your child, young person or family, please contact Kara Jewell: engagementofficer@pd-f.org.uk

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Your Views and Consultations Digital Technology – HAVE YOUR SAY!!!

Child and Family services at Solent NHS Trust are keen to hear from you about how you think we can use technology differently which will meet your needs. Please answer the following questions or use our online link. There are 2 surveys available: -

Parent carers https://www.surveymonkey.co.uk/r/ZVDNBFZ Young People https://www.surveymonkey.co.uk/r/6Z97DQP

Your responses will inform how health services might use digital technology to community with you such as mobile phone, skype, website etc‌

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NEWS IN BRIEF

Celebra Template Letters We’ve created a series of template letters to help families write to their local council or health body about one of the problems listed below. These letters can be used by parents living in England and Wales, unless the letter’s heading says otherwise. These are general template letters and they may not suit your specific situation. If you need more help, contact our Legal Entitlements and Problem-Solving (LEaP) Project or read our Parent Guide on Finding and Assessing Sources of Legal Help.              

We want to make a complaint about social services Council and/or health officials are arguing about who’s responsible for helping us We want something confirmed in writing The council/health body has said ‘we don’t / can’t do that’ We haven’t had an answer to our first letter The council is blaming a lack of resources We’re still waiting for the council to arrange the support we need The council has put us in an ‘impossible position’ We want to see the personal information that the council / health body holds about us We want to ask for information under the Freedom of Information Act We want to request an assessment of our family’s needs The council still hasn’t completed our assessment or provided any interim support The council says that our child isn’t ‘eligible’ for support The council wants to reduce our child’s package of care

For more information, please go to: http://w3.cerebra.org.uk/help-and-information/legalhelp/precedentletters/?utm_source=wysija&utm_medium=email&utm_campaign=february17

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Questions to Ask When You Visit The Doctor Or Hospital- An Easy Read Guide For more information, please visit the PPV website: http://www.portsmouthparentvoice.org/wp-content/uploads/2017/04/QTA-Easy-Readversion.pdf

Welfare Reforms Many changes have come into force on the 1st April 2017. Please go to our website if you and your family are affected by benefit changes/cuts: http://www.portsmouthparentvoice.org/wp-content/uploads/2017/04/Welfare-reform-2017overview.pdf

Contact A Family Find other families like yours. Chat. Ask. Share. Support A great way to connect with other families in similar situations. http://community.cafamily.org.uk/

Do you have a learning disability or support someone who does? Looking for activities/work opportunities in the City? Portsmouth City Council are holding an event on Wednesday 26th April, 10 am to 3 pm at the Mountbatten Centre, Alexandra Park, Portsmouth, PO2 9PA

A message from John Attrill about Autism and Employment As the Learning Disability Champion's role does include to contribute to the development of services and support for people who do not quite meet the learning disability support service criteria, I would be most grateful if as many people as possible would forward me case studies about problems that people with Autism face trying to gain employment. I need this information to give me ammunition to get funding to extend the 'In to work' service of the YOU trust in the area of Autism. Always trying to be of assistance. John Attrill Learning Disabilities Champion john.attrill@portsmouthcc.gov.uk 17


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Does your family use services for deaf/hearing impaired children? Could you spare a couple of hours each term? The National Deaf Children’s Society are supporting Portsmouth Children’s Hearing Services Working Groups (CHSWG) to find some Parent Representatives for the group. As a parent representative your role would be to liaise with the group and voice the opinions of what families with deaf children need and want, to help the services we have in the Portsmouth area make a difference. The Portsmouth CHSWG is a working group which includes health, education, voluntary sector and parent representatives and the meetings are held termly during the day. If you are interested in sharing your views and feedback, and those of other families with deaf children in your area then please contact us as we would really value your support. Please email Carla.rose-hardman@ndcs.org.uk for more details about this role or contact Carla on 01234 709979.

Fun Easter Activities From Easter egg hunts to bouncy castle activities, you can find more information here: https://www.familiesonline.co.uk/local/portsmouth/in-the-know/easter-activities-2017portsmouth

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You can keep in touch with us using the following

Website: www.portsmouthparentvoice.org

Facebook: Like our page Portsmouth Parent Voice Twitter: You can follow us at @PparentVoice

Email ppvcoordinator@p-d-f.org.uk

Phone: 07825 185 608

Instagram: ppvcoordinator

Pinterest: Portsmouth Parent Voice

Write: Portsmouth Parent Voice The Frank Sorrell Centre, Prince Albert Road, Southsea, PO4 9HR

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Profile for Portsmouth Parent Voice

Portsmouth Parent Voice April 17 Newsletter  

Advice, support and information for parent carers of children and young people (0-25) with special needs and disability living in Portsmouth

Portsmouth Parent Voice April 17 Newsletter  

Advice, support and information for parent carers of children and young people (0-25) with special needs and disability living in Portsmouth

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