LORRINDA GRAY-DAVIS

A diagnoses of fatty liver disease in 2014 began Lorrinda’s patient experience and hastened her move back to Oklahoma to be closer to family In 2017 she was diagnosed with inoperable liver cancer and needed a transplant. Lorrinda went to NazihZuhdi Transplant Institute Integris Baptist where they treated her liver cancer with a TACE procedure She was listed in February of 2018 and was transplanted August 8, 2018. Lorrinda went into emergency surgery 4 days post transplant because of internal bleeding Since that time, she has undergone a TAVR procedure to replace her Aortic Valve

As a patient, Lorrinda recognized the need for peerto-peer meetings. She started and moderates support group meetings every Tuesday and Thursday The meetings have pre-and posttransplant patients sharing their experience and dispelling myths. This results in having a better understanding for patients’ pre-transplant and helps post- transplant patients heal from sharing their experience.

Lorrinda mentors’ liver cancer patients with Immerman Angels, and advocates for LifeShare and is an Ambassador for UNOS. She serves on the national public policy committee for TRIO and has conducted outreach with politicians both locally and nationally regarding patient needs. She has served as an HHS panelist and is active with Part D outreach, American Liver Foundation and Global Liver Institute Capitol Hill Day and worked on a patient facing document on women’s health for the American Association of the Study of Liver Diseases

Currently, she serves on the Patient Affairs Committee for UNOS Region 4 and Global Liver Institute patient A-3 Alumni

She has spoken about her transplant experience to patients locally, regionally, and nationally. Lorrinda founded TRIOOklahoma, has one-on-one meetings with pre-and post-transplant patients, advocates for others, and brings the message of organ transplantation to minority groups.

My name is Audrey Bella Langston, and I am a retired Chicago Police Officer, mother and grandmother. My journey with kidney disease began in 1993 Iwent on a weekend trip with friends for my birthday and suddenly became very ill. Physically, I was in the best shape of my life. At that time, however, I began experiencing symptoms such as extreme fatigue, nausea, severe headache and a frequent pressure to urinate with very little output

By the next morning, my symptoms had worsened, and I was rushed back to the hospital in Chicago While enroute, I went completely blind I found out later that my vision loss was due to a dangerously high blood pressure. After immediate admission to the hospital, the doctors did a biopsy of my kidney, and I was diagnosed with focal segmental glomerulosclerosis