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  The  Affordable  Care  Act  included  research  provisions  that  are  transforming  how  research  is   conducted  and  what  is  being  studied;  these  changes  will  mean  new  and  hopefully  more   effective  treatments  for  patients.    The  following  describes  key  provisions  from  the  ACA:   •

Creation  of  the  Patient-­‐Centered  Outcome  Research  Institute  (PCORI)   -­‐ PCORI  is  a  non-­‐profit  corporation  charged  with  helping  patients,  clinicians,   purchasers  and  policymakers  make  informed  health  decisions  ,  improving  health   care  delivery  and  outcomes,  and  producing  and  promoting  high  integrity  evidence-­‐ based  information  that  comes  from  research  guided  by  patients,  caregivers  and  the   health  care  community.   -­‐ It  is  funded  though  the  newly  established  Patient  Centered  Outcomes  Research   Trust  Fund.   -­‐ PCORI  has  identified  national  priorities  for  research  which  can  be  found  here.     -­‐ More  information  on  PCORI  can  be  found  on  its  website.     Establishment  of  the  Cures  Acceleration  Network  (CAN)  at  NIH   -­‐ This  program  is  designed  to  bridge  the  gap  in  the  therapeutic  development  pipeline   between  basic  and  clinical  research.       -­‐ CAN  is  housed  at  the  National  Center  for  Advancing  Translational  Sciences  (NCATS)   at  the  NIH.   -­‐ CAN  is  authorized  to  make  three  types  of  awards:   1. Large  grant  awards  of  up  to  $15  million  per  fiscal  year;   2. Partnership  awards  that  require  1:3  matching  funds;  and   3. Flexible  research  awards  using  the  special  funding  mechanism  called  other   transactions.      

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Center  for  Medicare  and  Medicaid  Innovation   -­‐ The  Innovation  Center  charge  is  threefold:  better  health  care  by  improving  all   aspects  of  patient  care,  better  health  by  encouraging  healthier  lifestyles  in  the  entire   population,  and  lower  costs  through  improvement  by  promoting  preventive   medicine,  improved  care  coordination  and  reducing  waste  and  inefficiencies.   -­‐ The  Center  is  fostering  health  care  transformation  by  finding  new  ways  to  pay  for   and  deliver  care.    This  work  is  done  by  identifying,  developing,  supporting  and  

American Liver Foundation Ÿ 39 Broadway, Suite 2700, New York, NY 10006-3003 Ÿ Tel: 212-668-1000 Ÿ Fax: 212-483-8179 HelpLine: 800-GO-LIVER (800-465-4837) Ÿ www.liverfoundation.org


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evaluating  innovative  models  of  payment  and  service  delivery  for  Medicare,   Medicaid  and  CHIP.    Successful  models  can  be  expanded  nationally.   To  date,  the  Center  has  established  projects  in  the  following  areas:    Accountable   Care  Organizations,  bundled  payments,  a  comprehensive  primary  care  initiative,  the   partnership  for  patients,  and  Medicaid  incentives  for  the  prevention  of  chronic   diseases.    A  complete  list  of  their  work  can  be  found  at   http://www.innovations.cms.gov/initiatives/index.html.    

American Liver Foundation Ÿ 39 Broadway, Suite 2700, New York, NY 10006-3003 Ÿ Tel: 212-668-1000 Ÿ Fax: 212-483-8179 HelpLine: 800-GO-LIVER (800-465-4837) Ÿ www.liverfoundation.org


Healthcare Reform Act Research