New Ghaziabad, Friday, November 20, 2009
PATIENCE IS THE KEY TO TREATMENT OF DOWN'S SYNDROME D
ecreased muscle tone at birth, asymmetrical or oddshaped skull, round head with flat area at the back of the head, small skull, slanting eyes, small mouth with protruding tongue, depressed nose, broad short hands, single crease on the palm, retarded growth and development, delayed mental and social skills. All the above symptoms pertain to down's syndrome. Down's syndrome is the most common cause of mental retardation and malformation in a newborn. It occurs because of the presence of an extra 21st chromosome. Chromosomes are the materials that store people's genetic information. "Each newborn inherits 23 chromosomes from the mother and 23 chromosomes from the father. Sometimes an accident occurs and one of the parents gives an extra chromosome. When the extra chromosome happens to be chromosome number 21, down's syndrome occurs. Down's syndrome is also called Trisomy 21 since the
For many mothers like Divya, the ways to cope with the disease are many. Dr. Deepali suggests some ways: Proper training is the ultimate solution for kid's improvement. Parents must give ample time to child in explaining day-to-day activities. Example how to brush and change clothes. It takes time for the kid to digest the manners. So, it's the parents who have to stay calm and strong. person has three copies of chromosome 21 instead of t w o c o p i e s , " s a y s D r. Deepti, senior Paediatric.
HEALTH WHAT TO DO THEN? "The disease cannot be treated but if certain other diseases related to down's syndrome, for example: heart diseases, endocrinal problems, diabetes, hearing defects, Alzheimer’s disease, early ageing are tackled, then the life span of the child is increased," adds Dr. Deepti. Children with down's syndrome are not able to perform day-to-day activities and lack basic knowl-
edge and capability of a child of his/her age. Only five per cent of them know how to read. These kids remain sweet, calm and patient all the time and are not short–tempered. D r. D e e p a l i B a t r a , Consultant Clinical Psychologist suggests some ways for parents and kids to cope with the disease. "Many parents don't even know that their child is suffering from down's syndrome and are really confused on what should be done. A child with down's syndrome must be given extra time, devotion and motivation for his development," says Dr. Deepali.
Also, any therapy is not the solution for the disease. Parents have to motivate and encourage the child to grow and move further in life. Since the child lacks the capability to understand, socially he must communicate and parents must make sure that they themselves and also the kid must not cut themselves with neighbours and friends. Early diagnose of the child must be done and a counsellor's/psychologist's advice must be taken. Kids must be sent to special schools that provide special training classes for such children. Also, NGOs provide vocational training to such kids who come out with hidden talents in fields like finance management, painting, music etc. So kids having down's syndrome, must get diagnosed for certain possible problems that they can have (heart disease and other problems) and tackle those to increase their life expectancy.
No city buses on many routes T
his is the farcical story of the so-called developing city of Ghaziabad where city buses are still unavailable for many people residing in this district. In fact, the inner transportation system is in a shambles in spite of several complaints and reminders. People often prefer private vehicles to city buses or their own vehicles, which is rather a costlier affair for most of them. The crisis is felt in several colonies of the city where no commuting system has been provided by the city administration. The worst sufferers are those who reside in outer or remote colonies. What it shows is definitely apathy
towards this grim situation. No commuting system has been developed so far, though it is necessary to have such a system before establishing a colony or a housing society. It is shocking that no bus owner is interested in plying his vehicles on different routes of the city despite having permits for such routes. On the other hand, city buses are operated only on a few selected routes. There are no city buses in the posh colonies of transHindon. Even after decades, no city bus is moving on the routes of Vasundhra, Indirapuram, Kaushambi and Vaishali. There is a similar situation in Govindpuram, UP roadways are hardly seen on city roads.
DANGERS TO THE CHILD SUFFERING FROM THE DISEASE Sexual exploitation Mental abuse Bullying by friends and neighbours Sibling fights and unacceptance Difficulties in finding a job Difficulties in understanding what is happening "When Golu was born, everything seemed fine. But the next day, the paediatrician came to see me, saying he had some concerns. Four days later, having undergone a series of tests, Golu was confirmed as having down's syndrome. My husband was very accepting from the start, as, I suppose, was I to begin with. For the first six weeks, I was too busy learning to breastfeed and getting into a routine to think about anything else. Then, suddenly, I broke down. For three weeks, all I did was cry. It had just hit me, and I was devastated. I'd had friends who had given birth at the same time, and I had started to spot tiny differences between their babies and Golu. The other children were starting to hold their heads up, but mine wasn't," shares Divya, now a proud mother of Golu, who has excellent sketching skills. The work he does is appreciated and is displayed in exhibitions. —PRIYANKA NARULA Nandgram, Karpuripuram including Jayantipuram, where no city bus is available for majority of people. However, a few years ago permit to city buses was given by state transport department to ply on the routes of Indirapuram to Noida but it could not last long due to transporters' reluctance. In the opinion of transporters, it is not a profitable route. Now city buses are being operational on only few selected routes. These are convenient routes for transporters. So far, city buses are running only on four or five routes of the city out of 18 notified routes by the authority. Hundreds of permits have been sanctioned by the RTO to the city buses owners to help commuters make a comfortable journey, but it is not yet clear how many buses are running.
plus For many mothers like Divya, the ways to cope with the disease are many. Dr. Deepali suggests some ways: 9 New Ghaziabad, Friday, Novem...