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SPRING 2014

THE CONNECTION YOUR LINK TO THE AIDS COUNCIL OF NORTHEASTERN NEW YORK

2014 marks the AIDS Council’s 30th anniversary. This means the AIDS epidemic arrived on the scene before many people who are now most atrisk were born. The epidemic and the AIDS Council have gone through many changes during this time. Through it all HIV has remained a persistent adversary.

syringe exchange) for both HIV-negative and HIV-positive persons so that fewer people engage in risky behavior.

Our readers may be hearing the catchphrase, “End of AIDS.” Advocates have coined this term to highlight that we now have the tools at our disposal to reduce new infections to the point where HIV no longer meets the definition of an epidemic. However, in order to achieve these goals we need to commit to a campaign to use these tools as effectively as possible. Though new infections in NYS dropped from 10 percent of the U.S. total in 2007 to seven percent in 2010, NYS still has the largest number of people living with HIV/AIDS of any state; and the rate of new HIV infections among men who have sex with men (MSM) continues to rise.

• Have leadership at all levels to commit to this effort–politicians, government, community leaders, individuals, health care system and community based organizations–all need to be on-board with this campaign.

To change the course of the epidemic we need to: • Identify all who are HIV+ and link them to care and treatment as early in their disease as possible. • Double the number of HIV+ people who are actively engaged in care and consistently taking anti-retroviral (ARV) medications. Successful suppression of HIV makes people much less able to transmit the virus to another. • Make PrEP (pre-exposure prophylaxis) widely available to potentially at-risk New Yorkers; it is a highly effective preventive measure if certain HIV medications are taken daily for a period of time before and after likely exposure. • Continue to provide HIV prevention (behavior change interventions, condoms,

please join the AIDS Council in recognizing our 30th anniversary by recommitting with us to get to the End of AIDS

• Ensure that essential care management and support services are available for all New Yorkers, whether HIV-negative or HIV-positive, so that they remain healthy and do not contract or transmit HIV.

As you can see, a tremendous amount of work needs to be done to “end” the disease as we know it. But AIDS will not be “over” if we succeed at these reductions and efforts. There will still be over 150,000 New Yorkers living with HIV who will require continued care, treatment and support to stay the course. In fact, their care and support needs will likely get more complicated. In a New York Times article, People Think it’s Over (aidscouncil. org/InTheNews/ACInTheNews.aspx), the challenges and difficulties of aging with HIV were highlighted; HIV infected people are aging 10-20 years earlier than their non-infected counterparts. Also, wide disparities along the continuum of care–including rates of diagnosis, linkage to care, retention in care, and viral load suppression–persist among underserved groups. So please join the AIDS Council in recognizing our 30th anniversary by recommitting with us to get to the “End of AIDS.” Support our work as we navigate the changing landscape. Get the message out that HIV infection is still a life–threatening disease. Help spread the word that there are many good options for treatment and prevention. With your help, we can get there.

UPDATE FROM

MICHELE

MICHELE MCCLAVE EXECUTIVE DIRECTOR

INTEGRITY ADVOCACY EMPOWERMENT EMPOWERMENT COMPASSION.INTEGRITY CONFIDENTIAL ITY. INTEGRIT. ADVOCACY PROFESSIONALISM IMPACT. COMPASSION EMPOWERMENT COMPASSION INTEGRITY CONFIDENTIALITY INTEGRITY ADVOCACY INTEGRITY ADVOCACY EMPOWERMENT EMPOWERMENT. COMPASSION INTEGRITY CONFIDENTIALITY INTEGRITY ADVOCACY PROFESSIONALISM IMPACT COMPASSION EMPOWERMENT COMPASSION INTEGRITY PROFESSIONALISM IMPACT COMPASSION

years

FOR AS LONG AS HIV IS HERE


EXECUTIVE

T E A M

NANCY FISHER

MICHELE MCCLAVE

DIRECTOR OF HUMAN RESOURCES

EXECUTIVE DIRECTOR

DIRECTOR OF PREVENTION SERVICES

MICHELE MCLEOD TRAVIS O’DONNELL

JULIE M. HARRIS DEPUTY EXECUTIVE DIRECTOR

DIRECTOR OF GRANTS & QUALITY IMPROVEMENT

DIANA AGUGLIA

SHERRY PISCITELLA

PLATTSBURGH REGIONAL DIRECTOR

DIRECTOR OF CLIENT SERVICES

WILLIAM F. FARAGON

DONNA VANCAVAGE

DIRECTOR OF FINANCE & OPERATIONS

DIRECTOR OF DEVELOPMENT & MARKETING

Back Row left to right: Sherry Piscitella, William F. Faragon, Travis O’Donnell, Donna Vancavage Front Row left to right: Nancy Fisher, Julie M. Harris, Michele McClave, Diana Aguglia, Michele McLeod

LOOKING

AHEAD

BOARD

THURSDAY, APRIL 24, 2014 The 11th Annual Dining Out For Life® Dine Out. Fight AIDS.

MARK T. RYAN, CPA | PRESIDENT

MARY STRUNK | TREASURER

JOAN R. HAYNER | VICE-PRESIDENT

KATHERINE HERLIHY, ESQ.| SECRETARY

SUNDAY, AUGUST 31, 2014 The 2014 Columbia~Greene Garden Party

STEVE AMMERMAN

VICTOR MENDOLIA

CAROLYN ANDERSON

ROBERT MONTGOMERY

PETER BEVACQUA

LABBIE RABIU

DOMINIC P. CAROTA

GARY REDHEAD

MARY JANE BENDON COUCH, ESQ.

ERIC SIMONDS

STEPHEN CROUCHLEY

KELLEY WINSLOW

GLORIA HERMAN

DEBRA ZIMRING, MD, PHD

FRIDAY, NOVEMBER 21, 2014 The 20th Anniversary of Beaujolais Nouveau

OF

DIRECTORS

JEFFREY KAUFMAN


HEALTH In June of 2013, Bill was referred to the AIDS Council’s Health Home program. He first was contacted by our Outreach Specialist. It became clear very quickly during the initial outreach home visit that Bill could benefit from the Health Home program. Bill shared he had literacy issues and had a stack of unopened mail from Medicaid, Medicare, and the Department of Social Services. Bill’s first priority at this initial appointment was to have some assistance from the Outreach Specialist to go through and explain the letters from his benefit providers. At the time of the outreach visit Bill had been diagnosed with hypertension, esophageal ulcers, anemia, high cholesterol, a BMI over 25 and was prediabetic. He also had an open wound on his leg that was not healing. He had been scheduled to attend the wound center weekly to address this but was having difficulties with transportation. Bill admitted that adherence to medical appointments and medications was difficult for him and something he needed assistance with. After the initial outreach meeting, Bill was assigned to a Care Manager, Gayle, who would provide the comprehensive care management he needed. Gayle started to connect Bill to medical providers and resources. She assisted Bill in scheduling his initial Primary Care appointment and met him at the doctor’s office. Gayle also connected Bill with the Medicaid transportation system, MAS, so he no longer had to rely solely on his family for transportation. This ensured Bill had reliable and consistent transportation, which can be difficult when living in a rural area. Bill said, “transportation was one of my hardest problems.” At Bill’s first primary care visit he was referred for follow up with an esophageal surgeon, podiatry, a vision provider, gastroenterology, endocrinology, a dental

HOMES

We were not aware we could have a case worker like this. You guys are doing a great job, it has been a big help.

provider, and hematology. Gayle immediately scheduled a home visit after the doctor appointment and assisted him with scheduling all of these appointments. Since his first doctor’s appointment in August, Bill has attended an initial appointment, with Gayle’s assistance, with all of these providers. He is now starting to attend some of these follow-up appointments independently but Gayle is providing helpful reminders and assisting him with the scheduling and coordination of transportation. Bill is also up to date on all his lab work and is pending a colonoscopy. Gayle continues to assist Bill with understanding the medical papers he receives, “Gayle helps explain some things to me and answer questions because I have trouble reading”. Bill was recently told that he now has a diabetes diagnosis. Bill was provided diabetes education materials and referred to a diabetes health fair. Bill said, “Gayle helped me learn to watch what I eat and helped me get my tester” (blood glucose level meter). Due to Bill’s literacy issues Gayle was able to go through the educational materials with Bill to ensure his understanding. Bill was also referred to a nutritionist and Gayle attended his first appointment with him. Bill has been encouraged to start a walking program at his home and plans to do so once the weather is clear. During a home visit Bill identified that he had three disabled people living in his home and he was the only person noted on his food stamp case. Gayle was able to assist Bill to update the food stamp application to ensure more support for the household. Handling the multiple medical issues was a daunting task for Bill but with the assistance of the Health Home program Bill is on the right track and is already improving. Bill said “We were not aware we could have a case worker like this. You guys are doing a great job it has been a big help.”

Laurie Lanphear

UPDATE FROM

CLIENT SERVICES Laurie Lanphear Assistant Director of Client Services


11TH ANNUAL DINING OUT FOR LIFE® The 11th Annual Dining Out For Life® event will take place on Thursday, April 24th. Participating restaurants will donate a percentage of their proceeds to the AIDS Council of Northeastern New York to help people living with HIV/AIDS and prevent transmission of HIV in our region. Diners will be able to choose from a list of 60 restaurants throughout Northeastern New York.

UPDATE FROM

DEVELOPMENT

Donna Vancavage Director of Development & Marketing

AIDS Council Staff and Board preparing holiday dinner

More than 100 individuals enjoyed a delicious meal, prepared and served by AIDS Council staff and members of the Board of Directors.

Thank you to this year’s sponsors: Town Total Health, KeyBank N.A., Northeast Pest Control, Sandy Hill Foundation, Carbone Subaru, New Country Subaru, Audio-Video Corporation, Capital Care Medical Group, CBRE-Albany, Philadelphia Insurance Company, Vincy’s Printing, Sentron Associates, and the media support of All Over Albany, Boscov’s, CBS6, Coca-Cola, Fly 92.3 FM, 104.9 The Cat, and Mannix Marketing. Participation from local restaurants, sponsors, volunteers, and diners all add up to the perfect combination for another successful Dining Out For Life® event! Visit our Facebook page at: Facebook.com/pages/Dining-OutFor-Life-AIDS-Council-of-NortheasternNew-York HOLIDAY SPONSOR PROGRAM The AIDS Council would like to thank the dozens of individuals, organizations, and companies that brought holiday cheer to clients during this past holiday season through the Holiday Sponsor Program, which provides basic needs for individuals living with HIV/AIDS and their families. The generosity of our supporters made the holidays brighter for 54 clients and their families for a total of 106 individuals. Special thanks also goes to The Regional Synod of Albany for coordinating and collecting toiletries for our clients. Through their coordinated efforts, the Synod collected hundreds of toiletry items for clients and their families. CLIENT HOLIDAY DINNER On Wednesday, December

12th,

SIGNATURE

AIDS Council clients and their family members gathered at the Saint Andrew’s Episcopal Church in Albany for the Annual Client Holiday Dinner. More than 100 individuals enjoyed a delicious meal, prepared and served by AIDS Council staff and members of the Board of Directors. Funding for the Client Holiday Dinner was provided through a grant from Our Brothers’ Keepers Foundation as well as Hannaford Supermarkets. HELP FIGHT AIDS THROUGH BOOKS AND MUSIC Longtime volunteer, Steve Kozlowski, was one of 11 people from around the state to be honored on December 4, 2013 in recognition of World AIDS Day. Steve received the Commissioner’s Distinguished Service Award at the Empire State Plaza Convention Center. Steve received the award for his work helping people with HIV and AIDS. Steve and his dedicated group of more than 100 volunteers raise money to support our clients basic needs. Through book sales, online retail sales of books, music, movies, and countless hours Steve coordinates book sales to raise money to help meet the needs of people living with HIV/AIDS. Over the past 21 years Steve and his team have raised more than $750,000. For more information e-mail Steve at: steve@helpfightaids.com or visit helpfightaids.com COLUMBIA-GREENE GARDEN PARTY Plans are underway for the 2014 Columbia-Greene Garden Party. This year’s event will take place on August 31st at the Ludlow Homestead in Columbia County. To find out how you can get involved or for event sponsorship opportunities, please contact our Development Department at 518.434.4686 Ext. 2428 or dvancavage@aidscouncil.org. aidscouncil.org/HowYouCanHelp/ SpecialEvents/CGGP.aspx

EVENTS


BEAUJOLAIS NOUVEAU 2013 EVENT RAISES MORE THAN $93,000! The AIDS Council of Northeastern New York is pleased to announce that the 19th Annual Beaujolais Nouveau Wine Celebration raised more than $93,000: the highest fundraising total in the event’s history. More than 700 guests attended the event, enjoying an evening of fine food from 20 local restaurants, caterers, and bakeries, samplings of the 2013 Beaujolais Nouveau Vintage and other French wines, live entertainment, and a fabulous silent auction.

A special thank you to T.R. Laz Photography for the amazing photographs. To view all the photos from the event, visit our Facebook page: Facebook.com/ACNENYBeaujolaisNouveau SAVE THE DATE The 20th Anniversary of Beaujolais Nouveau Wine Celebration will take place on Friday, November 21st. Stay tuned for more details.

BEAUJOLAIS NOUVEAU


We’re excited to announce our new LGBT Health Initiative, BeCLEAR! BeCLEAR is a three-part approach to increasing access to culturally responsive health and human services for members of the LGBT community. Built around the CLEAR evidence-based intervention, BeCLEAR uses one-on-one skill building and goal-setting sessions, social media, and referrals to culturally competent providers to identify and overcome the barriers faced by the LGBT community in meeting their healthcare and related service needs.

UPDATE FROM

PROGRAMS

Alyssa Hackett, LGBT Health Promotion Specialist

The CLEAR intervention stands for: Choosing Life! Empowerment! Action! Results!

The CLEAR intervention stands for: Choosing Life! Empowerment! Action! Results!. It is a powerful tool which assists individuals with a variety of challenges ranging from: • How to talk to their doctor • Managing stress • Disclosure of their sexual orientation or gender identity • Addressing issues of substance abuse and/or sexual risk

The BeCLEAR team is excited to have launched its Twitter and Facebook social media sites, and has begun seeing its first clients! We encourage you to visit our Facebook and twitter pages to get further information about how we may be able to help you or to simply join in the conversation.

Like us on Facebook, facebook.com/lgbtbeclear Follow us on Twitter at twitter.com/LGBT_BeCLEAR or contact Alyssa 518.434.4686 Ext. 2341

Accompanying our use of the CLEAR intervention will be a social media campaign designed around engaging LGBT individuals and allies to share accurate, relevant, healthrelated information. The goal of the social media campaign is to provide the LGBT community throughout our region with a credible source of health-related information. The final piece of BeCLEAR will be to increase access to comprehensive lists of culturally competent health and human service providers that we can refer to with confidence that LGBT consumers will be treated with the dignity and respect that they deserve.

INTRODUCING BECLEAR


WHAT’S NEW IN TESTING? Project HOPE has begun to implement the Social Network Testing Program - a strategy that is part of the Center for Disease Control and Prevention’s Advancing HIV Prevention Initiative. Social Network Testing increases identification of HIV infection through community-based testing. The strategy utilizes HIV positive individuals and HIV negative individuals to serve as “recruiters” to engage those in their social, sexual, and drug-use networks who are at a high-risk for HIV and connect them to a CBO (community based organization) for testing and services. Identifying persons with undiagnosed HIV infection and linking them to medical care and prevention services is a national priority. Through Project HOPE’s Social Network Testing Program, we coach recruiters on how to discuss HIV testing with MSM (men who have sex with men) in their social group that they believe are at risk for HIV. In the “coaching session,” recruiters plan how to bring up the subject of testing, options for testing, and how to address confidentiality and/or disclosure concerns. Recruiters and their associates who get tested receive small tokens of appreciation for their participation. The time the recruiter needs to contribute is short term and includes an introduction and short coaching and follow–up sessions. During the period of time a recruiter spends with Project HOPE, we assist in other areas of need. We have already referred individuals to employment assistance, counseling, and case management services. Project HOPE would like to connect with more high risk individuals to become recruiters. If you are interested in helping your community through this program, please contact Karina at 518.434.4686 Ext 2326.

The Prevention Department has also recently added a new tool to increase access for those most at risk to test for HIV, chlamydia, gonorrhea, syphilis and Hepatitis C. It is now possible for individuals to test by appointment, giving them the ability to schedule their own testing times. We started this new service because it is not uncommon for individuals engaged by our staff or Peer Associates during outreach to be hesitant to be seen getting a test by their peers, or for individuals who might be reluctant to take time out of their socializing to test on the spot, or there is no one available to perform the test. There are also times when individuals will approach test counselors at the end of the night, when we have “closed up shop.” With use of our new ‘testing by appointment’ service, individuals can schedule testing times that work for them. Appointments can be made directly with one of our staff, by calling, emailing, or even through Facebook. Members of our testing team carry appointment cards with relevant contact information, and individuals can discretely take them and test at their convenience. Testing appointments have the added benefit of being available on any weekday, regardless of whether there is walk-in testing that day. For more information, please contact Prevention Projects Manager, Shane Roberts, in our Albany office at 518.434.4686 Ext. 2323 or by email at sroberts@aidscouncil.org. We also welcome you to like our agency Facebook page: Facebook.com/ AIDSCouncilNENY.

Identifying persons with undiagnosed HIV infection and linking them to medical care and prevention services is a national priority.

Karina Ramirez, Social Network Tester

UPDATE FROM

PREVENTION

Nancy Fisher Director of Prevention Services


AIDS COUNCIL

HELP FIGHT AIDS THROUGH BOOKS & MUSIC

PROJECT HOPE

SYPHILIS WEBSITE

AIDSCOUNCIL.ORG

WEBSITES

RUBBABOYZ.NET

TEEN WEBSITE

REALTALK1317.COM

INTEGRITY ADVOCACY EMPOWERMENT EMPOWERMENT COMPASSION.INTEGRITY CONFIDENTIAL ITY. INTEGRIT. ADVOCACY PROFESSIONALISM IMPACT. COMPASSION EMPOWERMENT COMPASSION INTEGRITY CONFIDENTIALITY INTEGRITY ADVOCACY INTEGRITY ADVOCACY EMPOWERMENT EMPOWERMENT. COMPASSION INTEGRITY CONFIDENTIALITY INTEGRITY ADVOCACY PROFESSIONALISM IMPACT COMPASSION EMPOWERMENT COMPASSION INTEGRITY PROFESSIONALISM IMPACT COMPASSION

HELPFIGHTAIDS.COM

GETTESTEDFORSYPHILIS.ORG

WHITE TRANSPORTATION

WHITETRANSPORTATION.COM

NON-Profit org us Postage

PAID

years

albany, NY Permit no. 619

927 BROADWAY ALBANY, NY 12207 RETURN SERVICE REQUESTED

ALBANY

927 BROADWAY | ALBANY, NY 12207 518.434.4686

HUDSON FALLS 10 LACROSSE STREET HUDSON FALLS, NY 12839 518.743.0703

HUDSON

FAIRVIEW PLAZA | 160 FAIRVIEW AVENUE HUDSON, NY 12534 518.828.3624

PLATTSBURGH 202 CORNELIA STREET PLATTSBURGH, NY 12901 518.563.2437

SCHENECTADY 434 FRANKLIN STREET SCHENECTADY, NY 12305 518.346.9272

AIDS COUNCIL

OFFICES

make a date thursday april 24th If we made an error, you have a change of address, would like to be added or removed from our mailing list, to sign up for our email list, or have ideas for future articles, please contact our marketing department at 518.434.4686 Ext. 2424 or email bptak-mimura@aidscouncil.org.

The Connection is a publication of the AIDS Council of Northeastern New York. ©2014.

dine out. fight aIDS.


2014 Spring Connection