Making things happen for Deaf and hard of hearing people
News & Views Spring/Summer 2014
Action for Deafness
20th Anniversary Follow us on Twitter at: www.twitter.com/afd_uk
Find us on Facebook at: www.facebook.com/actionfordeafness Charity No. 1122579 Company No. 6205458
A word of welcome from the CEO
Contents Word of welcome from the CEO ...........................................................2 Q&A with the Chief Audiologist ......3 National Award for CEO.......................4 20th Anniversary celebrations ...........6 Fundraising ideas .........................................7 Cuckfield Christmas Tree Festival....9 Staff news.........................................................9 Action for Deafness in Uganda..........9 Deaf Services .............................................10 Club details & churches with communication support ......................11 Membership application form..........12 Hearing aid maintenance clinic dates .....................12
Photo on the front cover shows audiologist Anna Hollingdale making a donation to the 20th anniversary fund
Action for Deafness has been providing exemplary service for Deaf and hard of hearing people for 20 years. Whilst landmark anniversaries tempt us to look backwards, the whole team here are looking forwards to the next 20 years of service provision with considerable enthusiasm and optimism. There will be a wide variety of events taking place to mark this significant year in the organisation’s history. We hope to raise an additional £20,000 during the course of the year to help us to continue the service provision to our ever increasing client base. The events will include a quiz night, a golf day at the prestigious Mid Sussex Golf Club, a sponsored 10K run and 20K walk and an Autumn Conference.You can read more about our plans on pages 5-7 and I hope you will be able to join in the celebrations at least one of the events. Our fundraising efforts were given a huge boost at the end of last year from the proceeds of the Cuckfield Christmas Tree Festival and you can see some photographs of that spectacular event on page 9. Action for Deafness is proud to provide the most up to date technology to our clients and our Chief Audiologist has given more details of an exciting development in hearing aid technology on page 3. When the organisation was founded is 1994, all hearing aids were analogue and the only assistive listening device available was the rather primitive Crystal Listener. We live in exciting times and the advances in technology over the last 20 years have been manifold. We have an extensive range of the latest
CEO interviewed on Jeremy Vine Show AFD’s CEO, Jane Shaw, was asked to join the debate about Cochlear Implants on the Jeremy Vine show on Radio 2 earlier this year. As someone who was deafened suddenly and profoundly as a young adult, Jane spoke of the exceptionally positive impact the Cochlear Implant has had on her life. 2
equipment in our Resource Centres and on our web site. SMS, email, Facebook, Twitter and Skype have, of course, transformed the way in which Deaf and hard of hearing people communicate and have done much to alleviate isolation and increase independence. You can follow AFD on both Facebook and Twitter to keep abreast of developments and activities. With a staff of 20 there is always some news and we have shared some of that with our readers on page 9. Some of our Worthing clients will remember Sarah Carey (nee Owen) who worked as our Worthing Services Manager for several years. Sarah left us to train to be an audiologist and we are delighted that she will be returning to work with us, as an audiologist, in July. AFD sees more and more clients in its outreach clinics every month and we are always keen to recruit enthusiastic volunteers. We are in greatest need of assistance in the Crawley area. If you have a few hours to spare each week and would like to join our dedicated team please contact us for further details. Whilst AFD focuses on the needs of its client base in West Sussex, we are keen to keep abreast of national developments in order to ensure we are delivering the best possible service at all times. I was invited to join the recent national debate about Cochlear Implants which was prompted when a video of a user’s switch on went viral on YouTube. AFD was also represented at the launch of the Sign Health report into Health Care for profoundly Deaf people and at two recent parliamentary receptions. I had a very proud moment earlier this year when I was presented with The Heather Jackson Award.You can see a full report and photograph on page 4. I do hope you will enjoy this anniversary edition of News and Views and I look forward to seeing you at one of our celebratory events.
Q & A with Chief Audiologist Liam Thompson: New NHS Hearing Aids Q: What features do the latest NHS digital hearing aids have?
with more profound hearing loss to wear the smaller neater discreet tubes, previously not available for more powerful hearing aids. Additional programming software gives the audiologist more options with your prescription allowing the audiologist to finely tune the aid more accurately to the patient’s needs.
A: The Oticon Synergy hearing aids have advanced directional microphones to improve the hearing experience and help the user determine where the sound has come from. This feature is most advantageous when the user is in noisy environments such as in a crowd or in a restaurant. The hearing aid automatically selects the best microphone settings for the environment. The Synergy aids have improved feedback cancellation which helps to eliminate whistling. One of the hearing aid’s programs can improve listening to music by increasing the quality and depth of sound, giving a more natural sensation. Synergy aids enable some people
Q: Can I be fitted with a Synergy Aid? A: AFD now fits Synergy aids from all its audiology centres. Ask your GP to refer you to Action for Deafness so that you can take advantage of the latest hearing aid technology. If you are one of our existing patients then you will be fitted with a Synergy aid when you have your next reassessment.
Q: I have heard that the new hearing aids are Bluetooth enabled. What does this mean? A: This means that the hearing aid is able to connect to a device know as a “Streamer” which operates the hearing aid remotely. The Streamer can also connect to other devices such as landline telephones, mobile phones, television, remote microphones and music centres. Ask your audiologist for more details and for a demonstration. Streamers are not available on the NHS but can be purchased from our Resource Centres.
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National Award for CEO AFD’s CEO, Jane Shaw, was presented with The Heather Jackson Award at Southampton Solent University Conference Centre on 26 April. The Heather Jackson Award is made annually to a deafened person who has made a significant contribution to the improvement of the welfare and opportunity of deafened people. Three national charities are involved in the annual award; National Association of Deafened People, Hearing Link and Signature. AFD’s fundraising and training officer, Cathy Cobbold, was the recipient of this award in 2011, so AFD now proudly displays a trophy at both Haywards Heath and Worthing bases. Photograph shows Jane with Chief Executive of Hearing LINK, Lorraine Gailey and Chair of NADP, Ross Trotter
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please email firstname.lastname@example.org or call 01444 415 582
Charity Golf Day Thursday 18th September TEE OFF 11AM
PACKAGE INCLUDES COFFEE AND BACON ROLLS ON ARRIVAL 18 HOLES OF GOLF AND 2 COURSE DINNER Teams of 4 at £50 per head. Additional dinner guests £20 per head Sponsorship packages also available. Please contact Action for Deafness for details. Company No: 6205458 Charity No: 1122579
Joint Autumn Conference
Hearing in Noise Saturday October 11th 2014 at Action
for Deafness HEAD OFFICE
Do you find it difficult to hear in background noise? With presentations from experts and practical workshops this conference is designed to increase understanding of why hearing in noise is difficult for hearing aid users and what can be done to improve it. Company No: 6205458 Charity No: 1122579
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TO BOOK please email
email@example.com or call 01444 415 582 22/04/2014 11:20
20th Action for Deafness is celebrating 20 years of delivering exemplary service. The organisation was founded by a group of Deaf and hard of hearing people. Core funding was secured from West Sussex County Council in April 1994. Twenty years later, the organisation has expanded and now provides a comprehensive range of services for Deaf and hard of hearing people including NHS audiology, lip reading classes, deaf awareness training, sign language classes and an advocacy service. Two large Resource Centres in Haywards Heath and Worthing have a full range of assistive listening devices available for demonstration and sale. Services are also available from outreach clinics around West Sussex. Last year, Action for Deafness saw over 13,000 people for audiology appointments and serviced over 17,000 hearing aids at its drop in clinics. Action for Deafness is a qualified provider of NHS adult rehabilitation audiology services and was the first provider to gain UKAS accreditation for its audiology service. It now has six audiology centres across the County. State of the art equipment is used for testing hearing and fitting hearing aids and on going support is always available at any of our centres. A team of dedicated volunteers run the outreach clinics and can provide home visits to those who are house bound. More than ten million people in the UK have a hearing loss and this number is expected to grow in the coming years so there is much work to be done. The organisation has already expanded further this year, adding more audiology rooms in Haywards Heath and Worthing. Patient satisfaction is high with 99% of patients saying they would recommend the service to a friend. To celebrate 20 years of service provision the organisation hopes to raise an additional £20,000 from fundraising events throughout the year. More information can be found in our Resource Centres or on line at www.actionfordeafness.org.uk
‘Cocoa and Cookies’ Take Top Prize Seven teams of enthusiastic supporters battled for the top prize at AFD’s quiz night. Quiz master, Liam Thompson, congratulated the winning team and presented captain Brian Cook with the prize. 6
Anniversary Fundraising ideas As part of its 20th anniversary celebrations Action for Deafness hopes to raise ÂŁ20,000 to support its services to Deaf and hard of hearing people. There are many ways in which you can help Action for Deafness to achieve its target.
Host a Coffee morning Action for Deafness supporters have hosted coffee mornings in the past to raise money for Action for Deafness and raise awareness of hearing loss. Why not invite some friends to your home and ask them to make a donation for coffee and cake?
Collect used stamps Cut all the stamps from the mail you receive and send them to FAO: Action for Deafness, c/o Fords Farm HORSEY, Norfolk NR29 4EP All proceeds go to AFD
Donate Clothes Action for Deafness has teamed up with Clothes for Charity. Simply register on line at www.clothesforcharity.org.uk and they will send you a bag to donate your unwanted clothes. They will even send a courier to collect the clothes form your home.
Sponsor one of AFDâ€™s own events Action for Deafness runners competed in the Burgess Hill 10k on May 5th 2014 raising money for Action for Deafness. You can still make a donation at www.justgiving.com/actionfordeafness or at one of our Resource Centres or outreach clinics.
20ps for 20 Years Collect 20 pence pieces. Just make up one of the Action for Deafness 20p boxes and fill it with 20ps. Return it to one of our Resource Centres or outreach clinics when full. If you are a UK tax payer, remember to sign the gift aid declaration. 7
Provider Provider of of Sign Sign Language Language Interpreters Interpreters and and other other Language Language Service Service Professionals Professionals across across Sussex Sussex and and the the South South East. East. We We also also offer offer a a range range of of training training courses, courses, including including Deaf Deaf Awareness Awareness and and Sign Sign Language, Language, led led by by experienced experienced Deaf Deaf professionals. professionals. Your Your individual individual communication communication needs needs are are our our priority. priority. Please contact us for details of our level 1 and level 2 BSL courses, accredited by Signature, and starting in September 2014
Please contact us: Please contact us: www.bsl-link4comm.co.uk firstname.lastname@example.org 07794 405794 01444 247159 www.bsl-link4comm.co.uk email@example.com 07794 405794 01444 247159 22 Sussex Haywards BSL Link for Communication Ltd, PO Box 364,Road, Burgess Hill, RH15Heath, 5BJ West Sussex RH16 4EA 22 Sussex Haywards BSL Link for Communication Ltd, PO Box 364,Road, Burgess Hill, RH15Heath, 5BJ West Sussex RH16 4EA
Cuckfield Christmas Tree Festival 2013 Action for Deafness was chosen as the Partner Charity for the 2013 Cuckfield Christmas Tree Festival. This spectacular event took place during the weekend of the 6-8 December 2013 culminating in a Carol Service at which the Action for Deafness Signing Choir performed. The event was a huge success with the highest turnout in the event’s 10 year history. Volunteers and staff were on hand over the weekend to man the Action for Deafness stall in The Old School, holding a raffle, a name the bear contest and selling home made produce donated by supporters. The church kindly presented CEO Jane Shaw with a cheque for £5,800 at the morning service on 29 December.
Staff news New Recruit Anna Hollingdale Audiologist
Anna graduated from Brunel University in 2011 with a first class BSc degree in Biomedical Sciences. She then went on to do an MSc in Audiology at Southampton University where she was awarded the ‘Elsevier prize for Audiology’. Anna has since gained experience practising adult hearing aid rehabilitation and vestibular audiology in NHS hospitals in London. Anna was recruited by AFD in January 2014 and works from both our Haywards Heath and Worthing bases.
Action for Deafness in Uganda Last year Action for Deafness was approached by Dr Rob Morris who had an unusual request. Dr Morris had been supporting a hospital in Uganda where one of the nurses had a hearing loss. As there is little provision for support in Uganda, Dr Morris asked if AFD could help. After a quick think AFD found the solution to be a donated personal listener. With no maintenance needed and being battery operated the unit is exceptionally easy to use . Dr Morris took this assistive listening device to Uganda on his next trip and sent us this picture of Nurse Zeressi and her sister Ketoi with her new personal listener.
AFD’s Haywards Heath receptionist/volunteer service co-ordinator Nikki Day, married Mr Michael Cox at Cisswood House Hotel on Saturday 26th April. 9
Burgess Hill Darby and Joan (Deaf Club) By popular demand, the club’s 2013 Christmas lunch was held at The Oak Barn in Burgess Hill. The club was provided with a private room and a good time was had by all. The members all agreed that the food was delicious and there was a lot of laughter. At the end of the lunch Jeanne Murphy thanked AFD on behalf of all the members for providing this special event in the club’s calendar. Jeanne also gave special thanks to Gerry Turton for all the work she does with the club throughout the year. If you would like details about the Darby & Joan club, which meets monthly in Burgess Hill, please contact AFD.
Sick of It
Deaf Services Action for Deafness Deaf services manager, Gerry Turton, has seen an increase in demand for the service AFD offers profoundly Deaf people over the last few months. AFD works with Social Services and other service providers to meet Deaf people’s needs, to reduce isolation and to improve quality of life. AFD offers a full range of support and is always happy to discuss individual needs. Consultations can be conducted in BSL or English. Speech to Text support is also available on request.
Two members of Action for Deafness staff attended the launch of the “Sick of It” report by SignHealth and BSMHD in March. This report highlighted the extreme inequality of access to health care for profoundly Deaf people. The conference was followed by a Parliamentary reception and a debate in the House of Lords. AFD works hard to address inequality and can provide comprehensive Deaf Awareness Training to health care professionals. Please contact us for more details.
Available in our Resource Centres The ‘Roger Pen’ is the latest product by Phonak. The wireless, directional microphone can be used with a loop system (T switch) or an adapter shoe can be fitted to certain hearing aids to stream sound from the microphone. The Roger Pen can improve hearing in noise and can also be used for television listening. One client who tried this device said: ‘I have had impressive results with the Roger Pen and have used it successfully at home, on walks and in restaurants. I have also been able to listen to the news on TV for the first time in many years’. The Roger Pen is available in our Resource Centres and can be found online at www.actionfordeafness.org.uk 10
Churches with Communication Support in West Sussex BURGESS HILL St John the Evangelist Lower Church Road RH15 9AA 4th Sunday of every month at 3pm. Led by Fr. Jonathan Baldwin, signed by Barbara Blundell CRAWLEY St Alban Church Gossops Drive, Gossops Green, Crawley 2nd Sundays of each month at 9.30am Contact: The Diocese of Chichester, 01273 421041 (voice), firstname.lastname@example.org EAST GRINSTEAD Trinity Methodist Church Lingfield Road, East Grinstead Every Sunday at 10.45am Contact: email@example.com
HORSHAM St John the Evangelist RC Church 3 Springfield Road, Horsham 1st Saturdays of each month at 3pm Contact: Maria Booker, firstname.lastname@example.org LITTLEHAMPTON Arun Community Church Littlehampton Community School, Hill Road, Littlehampton Every Sunday at 10.30am Contact: Arun Community Church, 01903 787078 (fax), email@example.com
WORTHING St John the Divine Church Corner of Elm Grove / Ripley Road, Goring, Worthing 4th Sunday of each month at 3pm Contact: The Diocese of Chichester, 01273 421041 (voice), firstname.lastname@example.org Jubilee Community Church Worthing High School, South Farm Road, Worthing Every Sunday at 10am Contact: Jubilee Community Church, 01903 821921 (voice), email@example.com
Clubs in West Sussex BOGNOR REGIS Communication Group (BSL & Lip-Reading – practice & support) Where: Laburnum Centre, Lyon Street, Bognor Regis, PO21 1UX. When: Every Friday, from 7pm onwards. Contact: Tricia Johnson – 07794 655368 (voice/sms) George – 07737 889954 BURGESS HILL AFD Burgess Hill Darby & Joan (Deaf) Club Where: Burgess Hill Conservative Club When: 1st Friday of each month. 11am to 4pm Contact: Action for Deafness, Tel / SMS: 01444 415582, Fax: 01444 415587, Text: 01444 415593 CRAWLEY Crawley Deaf Darby & Joan Club Where: The Twitten, Ginhams Road, Crawley. When: 1st & 3rd Wednesdays, from 10am to 4pm. Contact: Mary Dean – 01293 523488 (fax) Crawley Deaf Social Club Where: Three Bridges Community Centre, Gales Place, Three Bridges, Crawley. When: 3rd Saturday, from 6pm to 10.30pm Contact: John Redwood: firstname.lastname@example.org Pub Gathering Where: Goffs Park Hotel, Goffs Park Road, Crawley. When: 1st Fridays, from 8pm onwards. Contact: email@example.com (email) Springboard – Mothers & Toddlers Where: Northgate Children Family Centre, Barnfield Road, Northgate RH10 8DP When: 2nd & 4th Fridays, from 9.30am to 11.30am. Contact: Liz Beatty – Sensory Support Team – 0845 0751007 firstname.lastname@example.org
WORTHING Worthing Deaf Darby & Joan Club Contact: Peter Cornish – 01903 752058 (fax) Worthing Deaf Social Club Contact: Julie Cornish – 01903 752058 (fax) Worthing Hard of Hearing Club Where: Methold House, North Street, Worthing. When: Every Monday (except August), from 7.30pm to 9pm Contact: Barbara Cook 01903 230319 (voice/text) Talking Hands Community Deaf Club Where: Glebelands Community Centre, Greystone Road, Ferring, West Sussex When: Mondays 7pm – 9pm Contact: Helen Duke: email@example.com
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Membership Scheme Action for Deafness welcomes applications for membership from those who share our vision.
Hearing Aid Maintenance Clinics 2014 Dates Providing advice, support, re-tubing and batteries
• Membership £7.00 per annum Membership Application I would like to join Action for Deafness
_____________________________________________________ Address:______________________________________________ _____________________________________________________ _____________________________ Postcode: ________________ Telephone: ____________________________________________ Email: ________________________________________________ Please select your preferred payment option for your annual subscription CASH CHEQUE (made payable to Action for Deafness) I do NOT wish to become a member, however I would like to make a donation of £______________ If you pay tax on UK wages, savings or pensions, you can make your gift worth 25% more by signing the Gift Aid declaration. YES, I would like Action for Deafness to treat all my donations as Gift Aid. Signed: _______________________________________________ Date: ________________________________________________
Action for Deafness will hold your details for membership and marketing purposes in accordance with the 1998 Data Protection Act. If you do not wish to receive updates from us, please contact us on tel: 01444 415582, fax: 01444 415587 or email@example.com
Contact Us Haywards Heath (Head Office) 22 Sussex Road, Haywards Heath, West Sussex RH16 4EA
Tel: 01444 415582 Fax: 01444 415587 Minicom: 01444 415593 Email: firstname.lastname@example.org Worthing
Every Wednesday, 9.30am-12:30pm
MONTHLY CLINICS CRAWLEY CLINIC GOSSOPS GREEN MEDICAL, HURST CLOSE 1st Tuesday of each month at 9:30am 3rd June 2nd September 2nd December 1st July 7th October 5th August 4th November HANDCROSS OUSE VALLEY PRACTISE, LONDON ROAD 1st Friday of each month 2pm 6th June 5th September 5th December 4th July 3rd October 1st August 7th November HASSOCKS AGE UK, DALE AVENUE 1st Tuesday of each month at 10.30am 3rd June 2nd September 2nd December 1st July 7th October 5th August 4th November HENFIELD HENFIELD HALL, COOPERS WAY 1st Tuesday of each month at 2pm 3rd June 2nd September 2nd December 1st July 7th October 5th August 4th November PULBOROUGH PULBOROUGH PRIMARY CARE CENTRE, SPIRO CLOSE 1st Friday of each month at 10am 6th June 5th September 5th December 4th July 3rd October 1st August 7th November
53 Rowlands Road, Worthing, West Sussex BN11 3JN
Tel: 01903 217341 Fax: 01903 239117 Minicom: 01903 201243 Email: email@example.com Audiology Services also available at: Crawley, Gossops Green Medical East Grinstead, Glen Vue Centre Handcross, Ouse Valley Practice Steyning, Steyning Health Centre For information, please contact our head office at Haywards Heath. www.actionfordeafness.org.uk
STEYNING CLINIC Every Thursday, 9.00am-12.30pm EAST GRINSTEAD CLINIC
We also have occasional clinics at AGE UK Horsham, Burgess Hill and Littlehampton and in care homes around the County. Please contact us for more details. 7820
Design and print by Sussex Living Ltd www.sussexliving.com
Published on May 13, 2014
All the latest from UK charity Action for Deafness. Read about the new Roger Pen, new Hearing aid Technology, the 20th Anniversary Celebrati...