Newborn Screening Caraga

Page 1

N E W B O R N S C R E E N IN G

I.

M A J O R A C T IV IT Y H IG H L IG T S

T itle : N e w b o rn S c re e n in g P ro g ra m

Im p le m e n ta tio n R e v ie w a m o n g A ll

N e w b o rn S c re e n in g C o o rd in a to rs

II.

G o a l / O b j e c ti v e / R a ti o n a l e

N e w b o r n S c r e e n in g c o v e r a g e o f C a r a g a in c r e a s e d

to

24%

on

th e

f o llo w i n g

in c r e a s in g , it is s t il l f a r b e lo w

on 2009

year

and

is o n ly 1 4 %

had

re a c h e d

a m o n g l iv e b ir t h s . I t h a s 36%

la s t

th e 8 5 %

s t a t u s t o r e m a in lo w . th e p ro g ra m c o o r d in a t o r s

Though

t h e t a r g e t c o v e r a g e o f 8 5 % . N e w b o r n S c r e e n in g f a c il it ie s

w e r e a ls o in c r e a s i n g b u t 2 4 o u t o f 1 2 9 w e r e in a c t iv e , 2 8 w e r e n e w f a c ilit ie s h a d r e a c h e d

2011.

c o v e ra g e . T h e s e m a d e

T h is P I R

is d e s ig n e d

a n d o n ly f e w

a c t iv e

t h e r e g io n ’s n e w b o r n s c r e e n i n g

a im in g t o r e a s s e s s , r e v ie w

a n d s tre n g th e n

im p le m e n t a t io n o f t h e f a c ilit i e s . T h is is a ls o a g o o d v e n u e f o r p a r t ic ip a n t s / to

exchange

e x p e r ie n c e s ,

s h a re

best

p r a c t ic e s ,

r a is e d

a w a re n e s s

of

c u r r e n t is s u e s a n d c o m e u p w it h w a y s t o in c r e a s e c o v e r a g e a n d a n s w e r g a p s .

I I I.

P a rtic ip a n ts

P ro g ra m

I m p le m e n t a t io n

c o o r d in a t o r s

of

C a ra g a .

H o s p it a ls , C h ie f N u r s e s

R e v ie w

w as

T h e re

w e re

and

m id w iv e s

a tte n d e d M u n ic ip a l as

by

125

H e a lt h

w e ll. D r . J o

n e w b o rn O f f ic e r s ,

A rtu ro

D e

s c r e e n in g P H N s,

Jesus

f a c i lit y

C h ie f

of

o f P h i lH e a lt h

G a r a g a w a s a ls o p r e s e n t a s g u e s t s p e a k e r t o g iv e c la r if ic a t io n s o n t h e P h ilh e a lt h c la im is s u e s .

IV .

T h e a c t iv it y w a s h e ld in L u c ia n a C o n v e n t i o n C e n t e r , B u t u a n C it y o n O c t o b e r 2 9 a n d 3 0 , 2 0 1 2 . T h e N e w b o r n S c r e e n i n g F a c i lit y C o o r d in a t o r s p o s in g w it h t h e R e g io n a l N e w b o r n S c r e e n in g N e w b o rn C a re

C o o r d in a t o r S c r e e n in g

P ackage/

w o rk s h o p

( le f t ) .

p a r t ic ip a n t s

( r ig h t ) . ( B e lo w )

P h i lh e a lt h

fo r 2 0 1 2 .

D r. D e

c la im s ( lo w e r

( lo w e r r ig h t ) . T h is

s c re e n e d to 4 8 %

The

a c t iv it y

had

le ft)

lis t e n in g

Jesus and

r e s u lt e d

of th e to

to

th e

u p d a te s

P h i lH e a lt h p a r t ic ip a n t s in c r e a s e

in

on

C a ra g a d u r in g n u m b e rs

E xpand ed

on

N e w b o rn

th e

p la n n i n g

o f n e w b o rn


T itle : G lu c o s e 6 P h o s p h a te D e h y d ro g e n a s e D e fic ie n c y : P a re n t’s H e a lth

I.

F o ru m

II.

w i t h t h e G e n i ti c i s t

G o a l / O b j e c ti v e / R a ti o n a l e

A m ong

th e

P h o s p h a te in c id e n c e p o s it iv e

f iv e

d is o r d e r s

in c lu d e d

D e h y d ro g e n a s e ra te

o f th e

enzym e

c a lle d

r e s u lt in g

fro m

of

1 :5 0 .

s a id

of

th e

N e w b o rn

D e f ic ie n c y

2011,

C a ra g a

B a b ie s

e x p o s u re

w it h

to

t h is

is

S c r e e n in g th e

a lr e a d y

d is o r d e r . T h is d is o r d e r is a

G 6P D . th e

A s

in

(G 6 P D )

has

c o n d it io n

d e f ic i e n c y

o x id a t iv e

m ost

m ay

s u b s ta n c e s

373

w h e re have

p a n e l,

G lu c o s e

6

p r e v a le n t

w it h

th e

n e w b o rn s

th a t

a re

th e

b o d y la c k s t h e

h e m o ly t ic

a n e m ia

fo u n d

in

d ru g s ,

fo o d s

a nd

t h e d is o r d e r le a d in g

to

p a r e n t ’s c o n f u s io n

c h e m ic a ls . M y t h s a n d f a c t s w e r e a ls o

a s s o c ia t e d

to

le a d in g t o t h e im p r o p e r c a r e g iv e n t o t h e c h ild a f f e c t e d . T h u s , t h is a c t iv it y is a g o o d v e n u e t o c o r r e c t w r o n g b e lie f s o n G 6 P D

a n d it w ill a ls o s e r v e a s a a g o o d v e n u e t o

c r e a t e a s u p p o r t g r o u p f o r p a r e n t s w it h G 6 P D c h ild r e n .

I I I.

P a rtic ip a n ts

T h e a c t iv it y w a s a t t e n d e d b y 5 0 p a r t ic ip a n t s w h o c h ild r e n ,

S u r ig a o

C it y

N e w b o rn

S c r e e n in g

in c lu d e m o t h e r s o f G 6 P D

C o o r d in a t o r s

and

C a ra g a

p o s it iv e R e g io n a l

H o s p it a l ’s N B S C o o r d i n a t o r . I n s p ir in g m e s s a g e a n d c h a lle n g e t o t h e p a r t ic ip a n t w a s d e liv e r e d b y D r . J a n ic e P a t iñ o o f C a r a g a R e g io n a l H o s p it a l , D r . C o n c h it a A b a r q u e z , a G e n e t ic is t a n d H e a d o f t h e N e w b o r n S c r e e n in g C e n t e r M in d a n a o , g iv e t h e le c t u r e o n t h e F a c t s o f F a v a n is m

a n d a n s w e r s q u e s t io n s o f t h e p a r t ic ip a n t s o n G 6 P D . A f t e r

t h e d is c u s s io n s a n d o p e n f o r u m , t h e g r o u p h a d d e c id e d t o e le c t o f f ic e r s f o r t h e f ir s t G 6P D

s u p p o r t g r o u p o f C a r a g a w h ic h is n a m e d S u r ig a o n o n G 6 P D

P a re n ts S u p p o rt

G ro u p .

IV .

T h e a c t iv it y w a s c o n d u c t e d o n G uest and (u p p e r

le f t ) .

p a r t ic ip a n t s

a re

D r . C o n c h it a

N o v e m b e r 1 9 , 2 0 1 2 a t G a t e w a y H o t e l, S u r ig a o C it y .

w e lc o m e d A b a rq u e z

on

by

D r . P a t in o

th e

F a c ts

of

of

C a ra g a

F a v a n is m

R e g io n a l H o s p it a l ( u p p e r r ig h t ) . T h e

p a r t ic ip a n t s a n d g u e s t s ( lo w e r le f t) a n d t h e o f f ic e r s o f t h e f ir s t G 6 P D S u p p o r t G r o u p .


N E W B O R N N S C R E E N IN G M A JO R A C T IV IT Y H IG H L IG H T S 2 0 1 2

P re p a re d b y :

N A N E T T E F A T - M O N T ILL A , R N N e w b o r n S c r e e n in g N u r s e C o o r d in a to r


Issuu converts static files into: digital portfolios, online yearbooks, online catalogs, digital photo albums and more. Sign up and create your flipbook.