had to stay with the surgeon we had, that he does have experience and would be fine to do the surgery. I refused. I told them, no; that is not acceptable.”
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Donny immediately went online to search for specialists and found Dr. Michael Scott, a moyamoya specialist based at Boston Children’s Hospital with decades of experience treating the disease. But because Scott is out of state and out of network, the Arnolds’ insurance company wouldn’t go for it. “I told them, you need to find me another surgeon here in Florida who has moyamoya experience,” Donny said. “This is not a gallbladder that we’re operating on; it’s my son’s brain.”
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Donny pleaded with the company’s representatives, making numerous calls, until finally coming to an agreement that he would cover 60 percent. And that’s when the Okeechobee com-
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