upcoming events, training, education
Delay the Disease Exercise Classes
what’s coming up? 2012 Iowa Chapter Events June 13, 2012 – Barbara Moore Golf Tournament, Beaver Creek Golf Course, 11200 Northwest Towner Drive, Grimes, IA. June 29, 2012 - The 19th Annual O’Donnell & Friends Golf Open at the Toad Valley Golf Course. The O’Donnell Family has chosen the Iowa Chapter of the American Parkinson Disease Association as their charity of choice this year! August 11, 2012 - 6th Annual Eastern Iowa Fall Parkinson Golf Classic at the Amana Colonies Golf Course. If you are interested in playing or sponsoring the event, contact us at parkinsonclassic@yahoo.com October 21, 2012 – PD Walkers team will participate in the Des Moines Marathon.
“Delay the Disease” is a fitness program designed to empower people with Parkinson’s Disease by optimizing their physical function and helping to delay the progression of symptoms. It is also the foundation for exercise classes geared specifically to counteract the movement challenges experienced by people with Parkinson’s. Delay the Disease is taught in Iowa at the following locations: Atlantic – Heritage House, Free, Contact Jon Jordan at JJordan@wesleylife.org or (712) 243-1850 for dates and times. Clive - YMCA Healthy Living Center, Payment, call (515) 226-9622 for dates and times Des Moines - Wesley Acres, Free, Classes do not start until mid-2012, call (515) 271-6500 for more information. Sioux City - Norm Waitt Sr. YMCA in South Sioux City, NE. First session of classes start first week of May, to sign up contact Jacque Perez (402) 404-8439 or jperez@nwsymca.org If you would like more information on this program or other types of physical activity, please call Iowa Parkinson Disease Information and Referral, (877) 872-6386.
Area Conferences Conference on Alzheimer’s and other Dementias – April 30, 2012, 8:30 a.m.-4:30p.m. Meadow Events & Conference Center in Altoona, Iowa. This conference is for individuals with dementia, as well as family and professional caregivers (CEUs available). Participate in a day of education, information and support provided by local and nationally recognized experts. To register, contact the Alzheimer’s Association at (515) 440-2722 or email Polly.Johnston@alz.org.
Monthly Informational Meetings at Iowa Methodist Medical Center Starting on April 12, we will restart the popular monthly information meetings. With the exception of June, these meetings will be hosted on the second Thursday of the month until November. April 12, 2012 – Gary Johnson, Iowa Program for Assistive Technology, will present on various helpful tools for in and around the home. May 10, 2012 – Sue Anderson, Speech Pathologist and Director of Operations of Talk to Me Technologies, LLC, will present in celebration of Better Hearing and Speech Month. June – No Meeting July – TBA 16
Is Your Parkinson’s Med
ication Wearing Off?
If so, learn if you qualify to participate in this research study for patients with end-of-dose we aring off. This trial is to evaluate the saf ety and efficacy of the invest igational product Tozadenant as adjun ctive therapy in levodopa-trea ted patients with end of dose we aring off Tozadenant has a novel me chanism of action which, if proven safe and efficacious and approved by the FDA, could represent the first new treatment modality for Parkinson’s disease in more than 20 years. Participants must: • Be between the ages of 30 and 80. • Have a good response to levodopa and be taking at least 4 doses of a levodopa containing medication pe r day. • Be taking levodopa conti nuously for at least the pre vious 12 months and experiencin g some daily (24-hour clo ck) OFF time. Study-related office vis its, laboratory work and medication are at no cost. For information, call Jennif er Williams, RN, Study Coordinator in the office of Dr. Lynn Struck, Iowa He alth Neurology Subspecialty at (515) 241-4200 or visit us online at www.clinicaltria lspotlight.com