Newsletter - Fall 2013
3 8 M i n n es o ta Transition Tips: Childhood to Adulthood We Created a Movement Seizures Don’t Stop Me 9 www.efm n . or g 12 Thanks For Strolling With Us A q ua r te rly pu bl icat i on o f the E p i le ps y F o un dat i o n of mi nnes ota FA LL 2013 Learn About Epilepsy Midwest Seizure Smart Fall Conference on November 2 – see page 6 “We started a movement, right here in our community, that people with epilepsy need education and awareness, not pity.” Thank you to the thousands of you who answered the recent call to stand up to local media suggestions that Gopher Football Coach Jerry Kill was unworthy of his job due to his seizures. We started a movement together and we’re working to continue the momentum into 2014, when EFMN celebrates 60 years of serving people with seizures. This issue contains a number of educational opportunities…from school nurse trainings, to Seizure Smart Community Workshops, to our fall conference and more! There are plenty of ways to get involved and connect with others this fall. Your feedback is always welcome: firstname.lastname@example.org or 651.287.2314. Vicki Kopplin Executive Director The Epilepsy Foundation of Minnesota is a nonprofit organization and one of forty-eight affiliates of the National Epilepsy Foundation. Serving Minnesota and Eastern North Dakota, the Foundation works to educate, connect and empower people affected by seizures. 1600 University Avenue West | Suite 300 | St. Paul, MN 55104 www.efmn.org | 800.779.0777 Designated Members Tess Sierzant – PAB Chair Mark Lenhardt –Central MN Representative Josh Malnourie – Northwestern MN & Eastern ND Representative Mission The Epilepsy Foundation of Minnesota leads the fight to stop seizures, find a cure and overcome the challenges of living with epilepsy. Professional Advisory Board Chair | Chair | Tess Sierzant, MS, RN, ACNS-BC, CNRN | Saint Joseph’s Hospital Anne Barnwell, MS, CRC | Epilepsy Advocacy & Employment Group Jeannine Conway, PharmD, BCPS | University of Minnesota Armantina Espinosa, MD | Minneapolis Clinic of Neurology Timothy Feyma, MD | Gillette Children's Specialty Healthcare Miguel Fiol, MD | University of Minnesota Douglas Heck, PhD | Duluth Psychological Clinic, Inc Thomas Henry, MD | University of Minnesota Ilo Leppik, MD | University of Minnesota & MINCEP Epilepsy Care Donna McKenny, PHN, LSN, MEd | Centennial Schools Katherine Nickels | Mayo Clinic Patricia Penovich, MD | Minnesota Epilepsy Group Kathleen Rieke, MD | CentraCare Health System Frank Ritter, MD | Minnesota Epilepsy Group Joanne Rogin, MD | Midwest Center for Seizure Disorders Teresa Tran, MD | Park Nicollet Officers President Past President Vice President Treasurer Brett Boyum Ann S. Kelly Jones Tim Gallagher Elizabeth Beastrom Appointed Members Jason Engkjer – Legal Counsel Tabitha Fields Marcus Fischer Brandon Megal Michael Gonzales Deb Meyer Mike Murray Wendy Osterberg Jim Silburn Tom Spiczka Jessica Stoltenberg Trudi Trysla Christopher Turoski Randy Unzicker Bill Walsh 2 | Epilepsy Minnesota www.efmn.org Clinicians Corner Transition Tips: Childhood to Adulthood By Professional Advisory Board Member Jeannine Conway, PharmD, BCPS and Katherine Nickels, MD The transition of children into adolescence and adulthood can be exciting for children and their parents. However, this can also be a time for anxiety, especially for children with chronic health conditions. Preparing children and their families is important to make this transition a success. When does my child need to transition to the adult clinic? While the age for transferring to the adult clinic varies, most children do so between the ages of 18-21 years. However, the transition process should be gradual and start around the age of 12 years. This allows the child to take on steadily increasing responsibility for their medical condition, while still being supervised by their parents. www.efmn.org Who should be involved in the transition process? This transition process should be a joint effort involving the child, parents, primary care physician, and specialists. Parents and children should start planning for life after high school. They should consider the degree of independence they expect from their child: whether their child will live at home, independently, or in supported housing and whether their child will be able to work or have more education after high school. The physicians need to work together to ensure that the adult care team has all the important information regarding your childâ€™s health. Continued on page 4 Epilepsy Minnesota | 3 Transition Tips: Childhood to Adulthood (Continued from page 3) Often, a social worker can help identify needs you may have and programs available, such as insurance coverage and legal documents that may need to be signed once the child is 18 years. How can I prepare my child? As children become adolescents, they often want more independence. This includes managing their medical needs. In order to do this, adolescents need to have a better understanding of their medical conditions, which may include more than epilepsy. One of the most important responsibilities is managing medication. This includes remembering to take medication regularly. There are many ways to remember your medications. Pills boxes, while not glamorous, serve two important purposes: 1. You can see if you forgot to take your medicines (and if you did forget you can make them up as directed by your prescriber) and 2. You can see if you took your medicines (so you don’t accidently take too much because you forgot you already took them). There are many other alternatives including apps for smart phones that help people track medications, calendars, alarms or custom packaging by the pharmacy. The only right method is what works for you. Once children show they can do this, they should also begin interacting with the pharmacy and staff to get prescriptions filled. Here are some key points to help with this process: • The pharmacy staff is available to help you and answer any questions you have. • Most prescriptions are refillable for a maximum of 12 months from the day they are written. If refillable for 6 months. • The dates are on the bottle so you can always tell how many refills are available and when the prescription expires. • Do not run out of pills before calling the pharmacy to request a refill. • It is best to call when you have 5 days of medicine left. If you call with too many pills left, insurance may not allow the prescription to be filled. If you call when you are out of pills, you may miss doses if the prescriber needs to authorize more refills or if the pharmacy doesn’t have your pills in stock. • Keep your bottle. It has all the information needed to get a refill. • Having the phone number for the pharmacy and the prescription number allows you to use the automated refill phone systems that most pharmacies have. • You may also find signing up for auto-refills makes it more convenient to get your refills. Adolescents also need to feel comfortable calling their physicians’ offices and speaking to their physicians. They should start calling to schedule appointments on their own and should be the one to talk with the physician during visits as much as possible. Adolescents must able to identify any symptoms or concerns for which they should be contacting their physician and know which physician to contact. This can be a particularly challenging step for children and their parents, but will become easier with practice. How can my child’s physician help? Good communication between providers is essential. Your child’s neurologist may be able to identify potential adult providers to provide your child’s ongoing care and make the appropriate referrals. He/she can also provide a summary letter introducing your child to the new provider. Finally, you record. the medication is a controlled substance it is only should also be provided with a copy of your child’s medical 4 | Epilepsy Minnesota www.efmn.org EFMN in Action Proudly serving people across MN and ND Rep. Kline Award Includes EFMN Representative John Kline was awarded for his work championing healthcare issues, and invited EFMN to take part in the ceremony for its work on behalf of people with seizures. Young Adults at Mill City Several young adults gathered at Mill City Museum and enjoyed making connections with others. Rally at TCF Bank- Stadium Over 500 people joined us on September 21 to show our support for Coach Kill and the 60,000 people in our community with epilepsy. www.efmn.org Epilepsy Minnesota | 5 Education Opportunities Kittson Roseau Lake of the Woods MIDWEST SEIZURE SMART FALL CONFERENCE Eastern North Dakota Marshall Pennington SEIZURE SMART COMMUNITY WORKSHOPS Koochiching Kittson Beltrami Roseau Kittson Saturday, November 2 Red Lake Polk 9am – 4pm Radisson Blu Mall of Norman America omen n ah M Eastern North Dakota Cook Roseau Clearwater 3 Marshall Marshall Lake Lake of the of the Woods Woods Lake St. Louis Koochiching Itasca Koochiching Hubbard Thief River Falls Pennington Red Lake 1 Beltrami Clearwater Beltrami Cook Lake Itasca St. Louis Eastern North Dakota Polk Clearwater Norman Wadena Five CEUs are awarded to professionals! Includes breakfast, Wilkin lunch, educational materials and parking. Topics include: Otter Tail • What to know about “Obamacare” • To service animal, or not to service animal? • An attorney talks workplace rights • Healthy ideas beyond medication • Information panel on the rare Epilepsies 2 T ra v er se Becker Hubbard ah M Clay m no en Hubbard CONFERENCE FREE to people with epilepsy; Becker $40 registration for others Clay Red Lake Polk Norman no ah M Cook Lake 3 Cass en m Cass 2 Grand Rapids Itasca St. Louis Silver Bay Clay Wilkin Becker Wadena Wahpeton Breckenridge Otter Tail Crow Wing Wadena Aitkin Cass Aitkin Crow Wing 4 Brainerd/Baxter Mille Aitkin Lacs Carlton Carlton Northern Minnesota Central Minnesota Northern Minnesota Pine Tra v ers Wilkin Otter Tail Grant Douglas e Todd Grant Stearns Kandiyohi Washington T ra v ers Grant Stone Swift Douglas e Todd na be c Sh Mille Isanti erb Lacs urn e Morrison Anoka Chisago Todd Morris Morrison Pope 2 Big Douglas Chippewa Ka na be c Morrison Crow Mille Wing Lacs Ka na be c Carlton Pine Pine Benton Southern Minnesota Central Minnesota Metro Minnesota Area Southern Metro Area Big Chisago Stevens Pope Kandiyohi Washington Lyon Redwood Nicollet Lincoln Register at www.efmn.org or call 800.779.0777, ext. 2310. H ou st on Lac Qui Parle esto Chippewa Yellow Medicine Lincoln esto Murray Pip We provide free in-person training (where available) for staff and students. You can also get a FREE classroom kit to share with your child’s classroom. Visit www.efmn.org and select “Seizure Smart Schools” under the PROGRAMS section to find helpful forms to use with your school. We train school nurses too! A school nurse and health staff webinar is scheduled for Wednesday, Oct 2 from 4:30-6:30pm. These webinars are available throughout the year – contact email@example.com for more information. Red Wing Saturday, October 26, 9:30-11 AM Southeast Technical: 308 Pioneer Road Grand Rapids Tuesday, November 5, 6-8 PM Grand Itasca Hospital: 1601 Golf Course Road The Otto Bremer Foundation awarded a $10,000 grant with a $10,000 matching grant opportunity for Seizure Smart Communities in Brainerd/Baxter. For information contact Hannah Baines at 651.287.2319 or firstname.lastname@example.org. 6 | Epilepsy Minnesota www.efmn.org H ou st Rock Nobles Jackson Martin on School is back in session - is your school seizure smart? Thief River Falls Faribault Freeborn Mower Fillmore Monday, October 14, 6-8 PM Northland Community & Technical College: 1 Highway 1 East H ou st SEIZURE SMART SCHOOLS ne r Goodhue Co eu Blue Waseca 4 tto Nicollet Lyon Redwood W Su 8, nw Tuesday, 6-8 PM Dodge Olmsted Winona MurrayOctober to oo a Rice Steele d L e nwan Earth Wabasha Brown Pip esto ne Brainerd/Baxter Carver Renville McLeod Yellow Medicine Rock Nobles Jackson Fairmont Faribault Freeborn Mower Fillmore Scott Dakota Carver Sibley Renville r Goodhue Scott Dakota eu Nicollet Lyon Redwood Su Rice Le Sibley Wabasha Brown Pip Lac Qui Parle Chippewa Wright Meeker Co ne Meeker Wright Brown Earth Hennepin McLeod Le Su e Rice 3 Washington Swift Kandiyohi Lincoln Stone McLeod Isanti Stevens Pope Sh Carver Stearns erb Isanti Big Yellow Medicine Renville urn Sherbu Scott Dakota e Sibley rne Stone Anokaur Anoka Red Wing Swift Parle Stearns Lac Qui Benton Hennepin Chisago Ka Benton Meeker Wright Eastern North Dakota & 1 Hutchinson 1 Hutchinson Thief River Falls Falls 2 Fergus Grand Rapids Fergus Falls 2 Eastern North Dakota & Northwestern Minnesota Northwestern Minnesota Wabasha Murray 1 tto W nw oo atonw an d 1Blue Hennepin Waseca Dodge Olmsted Winona Steele 3 Bemidji 3 Bemidji Red Wing 4 Owatonna Brainerd/Baxter 4 Owatonna Co Faribault Freeborn Mower Fillmore Waseca tto RockWNobles Jackson Blue Martin nw Dodge Olmsted Winona oo atonw Earth Steele an d Central Lakes College: 501 W. College Drive in Brainerd 4 on Epilepsy in the News MEDICAL MARIJUANA AND EPILEPSY Recently CNN's chief medical correspondent, Dr. Sanjay Gupta, hosted a special report on medical marijuana. One of the families profiled was the Figis of Colorado. Their daughter, Charlotte, lives with Dravet Syndrome – a rare and severe form of epilepsy with seizures that cannot be controlled by medication. Matt and Paige Figi, after many failed treatments, turned to medical marijuana as a potential treatment for their 5-year-old daughter. “OBAMACARE” NEWS The Affordable Care Act (ACA) was signed into law in 2010 to make preventive care—including family planning and related services—more accessible and affordable for many Americans. While some provisions of this law have already taken affect, more provisions will be implemented in this next year. Starting October 1st 2013, enrollment for the Health Insurance Exchange will begin. In MN, the Exchange is accessed via an online tool called the Health Insurance Marketplace (which helps people find, compare and purchase health insurance). In 2014, most people must be enrolled in a health insurance plan either through their employer or through the Marketplace. Additional changes to be aware of include: • Individuals with a pre-existing condition cannot be denied coverage • Eligibility for Medical Assistance will expand • Affordability will be increased through premium The Epilepsy Foundation is open and committed to exploring and advocating for all potential treatment options for epilepsy -- assuming they are proven safe and effective. This includes medical marijuana (cannabis). However, research into medical marijuana and seizure control is not complete. Visit the LOCAL NEWS section of www/efmn.org to read the Foundation’s full article about cannabis and epilepsy. tax credits and cost sharing reductions Contact our Information & Referral service for resources regarding the MN Health Insurance. www.efmn.org Epilepsy Minnesota | 7 We Created a Movement The Foundation was disappointed by media reports, after Coach Kill’s September 14th seizures, that he and people with epilepsy are not capable of high-profile careers. The misinformed statements of select media called us ALL to action! We created www.efmn.org/nopity to mobilize all of us to advocate for people affected by epilepsy. Thousands of letters poured into media, hundreds of you contacted the Foundation to ask how you could help raise awareness and educate. Our social media spaces were buzzing! EFMN organized a public rally before the September 21st Gopher game to show our support for Coach Kill and the 60,000 Minnesotans with epilepsy. Over 500 people turned out and donned “Jerrysota” t-shirts. The Foundation heard from people in Colorado, West Virginia and Canada… wanting to know how they could join the movement. Our work continues…people with epilepsy need public awareness and education, not pity. We are working to continue our momentum into 2014, when EFMN celebrates 60 years of serving people with seizures. Stay tuned for more ways to get involved, check out a video from the rally on our YouTube channel. 8 | Epilepsy Minnesota www.efmn.org Q&A with Alex Fischer, EFMN’s Current Winning Kid Seizures Don't Stop Me ABOUT MY SEIZURES: I started having absence seizures when I was five years-old. Friends and family would notice me making a quick funny face or rapidly blinking my eyes. Teachers never really noticed. The seizures began to increase, so my parents brought me to a neurologist. At eight-years-old, I was officially diagnosed with absence seizures. My seizures would last 5-10 seconds. I was “on pause” – my eyelids would rapidly blink and roll back. Before any intervention, one study showed I was having 100 episodes during a two-hour period. I am never aware before, during or after a seizure. I return to my usual self and my place in conversation as if nothing happened. My seizures are subtle. Yet I miss key information during those seconds. It took a while, but my seizures seem to be managed well. I take nine pills a day. I also have dysgraphia, which can make written school work a little harder. I have a 504 for epilepsy and dysgraphia, which helps with accommodations as needed. ABOUT MY FAMILY: I am the oldest of three boys. I live with my parents and brothers. My aunt and grandfather have tonic clonic seizures. IN MY FREETIME, I LIKE: hanging with my friends, listening to music, playing video games, cards and watching movies. HOW DO I OVERCOME SEIZURES: Even though I don’t like having epilepsy, I accept it and make the best of it. I still want to play football, lacrosse, ski, wrestle and longboard. I www.efmn.org do wear a helmet and try to be as safe as I can. But really, I want to live my life and have fun. ACTIVITIES I ENJOY: football, wrestling, lacrosse, skiing, longboarding, archery, waterskiing, hunting and fishing. FAVORITE VACATION MEMORY: I have been able to go on some amazing family trips. But my favorite trip was away from family, with my friends. Five of us were able to go to Canada where we spent a long weekend at a friend’s cabin with his parents. It was a great guys getaway. The log cabin had no electricity, no plumbing. We were on a crystal clear lake and the sky lit up at night. We went waterskiing, wakeboarding, dove off a cliff, had some airsoft wars and enjoyed the hot tub. I managed my own meds. WHY I WANTED TO BE WINNING KID: As the Winning Kid this year, I am glad I can represent and fight for other kids living with epilepsy. I believe anyone with a seizure disorder should be able to live life and have fun. No one should be treated differently or isolated. We all deserve the same rights. I think the more people learn about seizure disorders and talk to people with epilepsy, society will have a much better understanding and barriers will hopefully disappear. I am not thrilled to have a seizure disorder. But it’s nice to know I am not alone. I am glad there is an organization that supports us. I liked the opportunity to go to Camp Oz and Epilepsy Minnesota | 9 Every donor makes a difference. Every dollar counts. Last year, donors brought our programs and services to over 101,000 people across MN and ND. You supported children, adults and seniors. You supported people with epilepsy and people connected to people with epilepsy. This year, make your year-end tax-deductible gift to EFMN and with your generosity we can help people with seizures realize their full potential. The time to give is now, and the need to educate the community. Support EFMN by: • Mail in the pledge form below (check) • Give online at: www.efmn.org/giving • Support EFMN through a planned gift (in your will/IRA/estate plans) • Designate EFMN in your workplace giving campaign Don’t forget to look into employer matching gift programs and double the impact of your gift! For more information contact Hannah Baines at 651.287.2319 or email@example.com. ✂ Enclosed is my tax deductible gift of: ❏ $2,500 ❏ $1,000 ❏ $500 ❏ $250 ❏ $100 ❏ Other Amount $_________________ Name(s)___________________________________________________________________________________________________ Address___________________________________________________________________________________________________ City_____________________________________________________________ State_____________________ Zip_____________ Designate my gift to: ❏ Educate ❏ Connect ❏ Empower ❏ I would like to remain anonymous My gift is payable by: ❏ Cash or Check (payable to: EFMN) ❏ Visa ❏ MasterCard ❏ American Express ❏ Discover Card #____________________________________________________________________________ Exp. Date:___________Security Code #__________________ Name on Card:__________________________________________________________ Signature:____________________________________________________ Email Address:________________________________________________________________________________________________________________________ (email address required for gifts made by credit card) Mail this pledge form to: Epilepsy Foundation of Minnesota, 1600 University Ave. Ste. 300, St. Paul, MN 55104 Making a difference by honoring or remembering someone special. This gift is: ❏ In honor of______________________________________❏ In memory of____________________________________________ Make an Impact – Leave a Legacy – Learn More About Planned Giving Opportunities ❏ I have included EFMN in my estate plans, please contact me at __________________________________________________ ❏ I would like more information, please contact me at_____________________________________________________________ 10 | Epilepsy Minnesota www.efmn.org Steve Stoterau – paying it forward and making a difference. In 2013, Steve Stoterau decided to give a generous gift in honor of his father, Donald Stoterau, to support Camp Oz by providing full scholarships to campers. Steve became involved with the Epilepsy Foundation of Minnesota in 1979 through Adult Connect support groups. He made lasting friendships within the group, and with Foundation staff. Steve grew up on a farm near Hamburg, MN, never thinking about his epilepsy and what he “couldn’t do.” He participated in wrestling, baseball and basketball and was chosen as “Citizen of the Year” in his 1972 high school graduation class. His participation in team sports made Steve feel supported. Everyone knew he had epilepsy but it didn’t impact his friendships or his abilities on or off the field. Steve attended summer camps through his church while growing up, but he was certain nobody knew about his epilepsy. In making his decision to give to Camp Oz Steve said, “I know I have gone through so many years of this [epilepsy], and I know young people need to feel supported. Camp Oz does that.” Looking back on his life, Steve believes his epilepsy made him a stronger person. This summer, Steve toured Camp Oz with Vicki Kopplin, executive director of EFMN, and was able to see the real impact of his gift. He also spent time with camp medical and leadership staff, to learn more about the care provided to campers. Steve said, “The kids at camp are so happy. They will remember their days at Camp Oz for the rest of their lives.” In addition to Steve’s generous camp support, he is passionate about epilepsy awareness and education. He has engaged local lawmakers and media in epilepsy education workshops in Glencoe, MN, where he resides. In 2011, Steve served as a key volunteer in Hutchinson during the Seizure Smart Communities program. Engaging with EFMN as a donor and seeing the impact of his giving, Steve said, “this brought me closer to the Foundation. I am a part of the Foundation, and the Foundation is a part of me.” Michael Frost, MD www.efmn.org Nikki Baker Steve Stoterau Epilepsy Minnesota | 11 Thank You For Strolling With Us Thank you to the 275 teams that Strolled with us in 2013! The stories/loved ones represented by each team are empowering and extraordinary. Five locations across MN and ND were packed with people helping support our vision to help people with epilepsy realize their full potential. Team and event photos from each location are available at www/efmn.org/stroll. THANK YOU TITLE SPONSORS: Lundbeck, Inc. Upsher-Smith THANK YOU GRAND CLUB TEAMS AND THEIR CAPTAINS, WHO RAISED OVER $1,000: Abby's Avengers Adam's LKS Super Heroes Alison L All for Alyssa Allie's Army Been Walking for Ben-jamin Braden's Pitcrew Braegelmann Brigade Brenden's Believers Brief Pause Bright Sparks Brynn's Backers BSE Epilepsy Stompers Coaches Wives Go-Pher Epilepsy Awareness Coco's Crew Colton's All-Stars Cultivating a Cure Ehresmann End to Epilepsy Electric Energy Elena's Strollers EpiTrekkers Erin's Entourage Gabe & Josh's Football Team Gillette Super Strollers Goal Getters Green Cheese Hannah's Bananas HARLOW'S HOPE Hayden's Heroes Jenna Bear's Paw Pounders Jordan Buisman Memorial Team Jordan's Jammers Journey for Jess Kayla's Krew Liam's Lucky Charms Lovely Lily Martice's Maurauders Minnesota Epilepsy Group More Cowbell Movers and Shakers Neon Ninjas NeuronsUnite Nolan's Crew Norah's Pink Tigers One In A Million Peterson Posse Peyton's Platoon Roaring Thunder Sara's Strollers Sauntering with Schindler Spirit Savers Sergeant Cecilia's All Star Team Spike & Wave Steph Atwell Team Brandalyn Team CaitieMae Team Cardinals Team HH Team L Team Linc Team Maddie Team Mathew and Hunter Team Tanner Team Travis Team TRENT The Movers and Shakers Tootsie's Trekkers Walk with Grace Winge Warriors Wyatt's Warriors Z Power 12 | Epilepsy Minnesota www.efmn.org November Awareness Month November is national epilepsy awareness month. This newsletter contains PAGES of events and ways to get involved during awareness month. Here are some additional ideas: - - Attend the Midwest Seizure Smart Fall Conference or our Seizure Smart Community Workshops to learn more about epilepsy (see page 6 for details). Catch the October Go-Pher Epilepsy Awareness football game on October 26! It’s our second year partnering with Rebecca Kill to help raise awareness among the fans at TCF Bank Stadium, and thousands more watching on TV. - Participate in our Creative Arts Program! October 31 is the deadline to submit a written work to the Epilogues collection. And see the talents of artists, writers and performers with epilepsy at the Creative Arts Program Showcase on Sunday, November 10 at Patrick’s Cabaret in Minneapolis. - Ask your friends and family to follow us on social media spaces to increase the reach of our awareness and education efforts. There is no cost to be a Shining Star and ages 18 and under are welcome. Join Shining Stars at www.efmn.org and complete the registration form, or call 800.779.0777, ext. 2310. We’ll help you shine! Shining Stars receive: We think all youth with epilepsy are special – in fact we think they are Shining Stars! The Shining Star program, our largest youth program, recognizes youth with epilepsy, making them feel less isolated by connecting them with other youth with epilepsy. • • • • A star medallion Program certificate Special invitations to EFMN events throughout the year BEST OF ALL – opportunities to connect and meet other Shining Stars and their families. www.efmn.org Epilepsy Minnesota | 13 Events Calendar Twin Cities Area shining star annual event Sunday, October 6 11 AM – 1:30 PM Como Park Zoo and Conservatory 1225 Estabrook Drive in St. Paul Shining Stars from across MN and Eastern ND, please join our annual celebration! Enjoy lunch and mingling with others, then a scavenger hunt and exploration of the Como Zoo and Conservatory. Free for Shining Stars and 1 parent; $10 for each additional attendee. Meet in Bullard Rainforest Auditorium. RSVP encouraged, space is limited. EAST METRO ADULT CONNECT Meets the 1st Thursday of each month October 3, November 7, December 5 6:30-8 PM EFMN Office 1600 University Ave. W., Suite 300 in St. Paul (16, 21, 50 & 84 bus lines) Connect with other adults affected by seizures in St. Paul, or join us from the comfort of your own home via GOTO Meeting. December is a holiday potluck celebration. RSVP required for GOTO meeting. WEST METRO ADULT CONNECT Meets the 2nd Thursday of each month October 10, November 14, December 12 6:30-8 PM Southdale Library 7001 York Avenue South in Edina Join us and connect with other adults affected by seizures. In October Erica Egge will share her memoir “Living in a Brainstorm.” December will be a holiday potluck. RSVP encouraged. Diane White - Twin Cities Program Manager firstname.lastname@example.org 651.287.2312 Nikki Baker - Twin Cities Senior Program Manager email@example.com 651.287.2308 MIDWEST SEIZURE SMART FALL CONFERENCE Saturday, November 2 9 AM – 4 PM The Radisson Blu Mall of America 2100 Killebrew Drive in Bloomington Topics include: What to know about “Obamacare”, is a service animal right for you, workplace rights and healthy ideas beyond medication. Registration is $40 and FREE to people with epilepsy. Five CEUs are awarded to professionals! Includes breakfast, lunch, educational materials and parking. Register at www.efmn.org or call 800.779.0777, ext. 2310. CREATIVE ARTS PROGRAM SHOWCASE Sunday, November 10 2-5 PM (Program starts at 3) Patrick’s Cabaret 3010 Minnehaha Avenue S. in Minneapolis Our annual Creative Arts Program Showcase celebrates artists, writers and performers affected by seizures. Hear their inspiring stories and enjoy their talents Light refreshments are provided at this free event. RSVP encouraged. TWIN CITIES PARENT CONNECT Tuesday, November 12 6:30-8 PM EFMN Office 1600 University Ave. W., Suite 300 in St. Paul (16, 21, 50 & 84 bus lines) Ryan Hoffman, special needs representative from UCare, will join us to discuss special needs basic care plans, designed for people with a diagnosed disability. We’ll discuss options, benefits, wellness benefit, enrollment requirements and ways to enroll. RSVP encouraged. YOUNG ADULT MEET-UP Thursday, November 21 7:45-9:45 PM ComedySportz 3001 Hennepin Ave in Minneapolis Join other young adults for a night of fun and laughter during an improvised show! FREE to people with epilepsy; $6 per additional guest. RSVP required by November 18. EPILOGUES WRITING COLLECTION Final Call for Entries September 1 – October 31 Submit your written works to firstname.lastname@example.org. Details at efmn.org. Duluth ADULT CONNECT Meets the 2nd Thursday of each month October 10, November 14, December 12 5:30-7 PM Essentia Health - SMDC 400 East 3rd Street in Duluth Join us in the Minnesota Room across from the 1st floor cafeteria with facilitator Kyah Altiere, for conversation, support and connection. FUN ON THE FARM Saturday, October 12 1-4 PM Simek’s Farm 8997 Arkola Road in Kelsey All ages invited! Enjoy the corn maze, hayride, s’mores and barnyard fun! FREE for people with epilepsy; guests over age 2 are $3. RSVP required by October 10. RSVP : 800.779.0777, ext. 2310 or email@example.com Amanda Pike - Twin Cities Program Manager Education firstname.lastname@example.org 651.287.2313 Mary Giese - Duluth Outreach Coordinator email@example.com 218.624.1330 14 | Epilepsy Minnesota www.efmn.org Rochester WOMEN CONNECT Meets the 4th Wednesday every other month November 20 6:30-8 PM St. Luke’s Hospital 915 East 1st Street in Duluth Please join us for an evening of conversation and connecting at our holiday social! Bring an appetizer to share and meet in room 337. Take elevators to 3rd floor across from cafeteria entrance. RSVP by November 9. ADULT CONNECT Meets the 3rd Tuesday of each month October 15, November 19 6:30-8 PM Rochester Area Family Y 709 1st Avenue Southwest in Rochester October’s topic is Ketogenic diet, Laura Rohrbaugh is the featured speaker. November is a discussion about seizure recognition and response. RSVP encouraged. OPEN HOUSE Wednesday, November 20 9-10:30 AM Press Coffee and Tea 315 S. Broadway in Rochester Take home up-to-date information on the latest seizure information. Free beverages and refreshments provided while connecting with other families. RSVP encouraged. FESTIVAL OF TREES November 27-30 9-10:30 AM Mayo Civic Center 30 Civic Center Drive S.E. in Rochester Come and admire the first-ever EFMN tree at the Festival of Trees. View over 100 glittering trees and feel the holiday spirit! $5/person. DAY WITH SANTA Friday, November 29 11 AM - 2 PM Mayo Civic Center Drive 30 Civic Center Drive SE in Rochester Enjoy your visit with Santa, playing games, making crafts and having a snack. Pictures will be taken in front of the EFMN holiday tree! Meet at 10:45 a.m. in front of the Civic Theatre entrance. $5/person. RSVP Fargo PARENT CONNECT Meets the 1st Tuesday of each month October 1, November 5, December 3 7-9 PM Pediatric Therapy Partners 3060 Frontier Way South in Fargo October we’ll discuss “taking care of you.” In November, Heather Werdel from Cyberonics will speak about Vagal Nerve Stimulators. December is our annual holiday celebration for the whole family - bring a treat to share! RSVP encouraged. ADULT CONNECT Meets the 1st Monday of each month October 7, November 4, December 2 6-8 PM Sanford Health South University Campus Conference Room 1A-1 October topic will be art and epilepsy. In November, Heather Werdel from Cyberonics will speak about Vagal Nerve Stimulators. December is our annual holiday celebration for you and your support system - bring a treat to share! RSVP encouraged. St. Cloud ADULT CONNECT Meets the 1st Thursday of each month October 3, November 7, December 5 7-8:30 PM Great River Regional Library, first floor meeting room 1300 West St. Germain Street in St. Cloud Adult Connect is open to all adults living with epilepsy, including parents. Join us for a time of support, conversation and information on living well with epilepsy. RSVP encouraged. BOO AT THE ZOO Saturday, October 12 1-3 PM Hemker Park and Zoo 26715 County Road #39 in Freeport Dress in your Halloween costume and enjoy autumn at the zoo, while connecting with families affected by seizures! Snacks are provided. Free to people with epilepsy; $3 per additional guest. RSVP required. RSVP : 800.779.0777, ext. 2310 or firstname.lastname@example.org Lori Braegelmann - St. Cloud Outreach Coordinator email@example.com 320.203.9722 Vicki Snyder - Rochester Outreach Coordinator firstname.lastname@example.org 507.287.2103 Amy Haugen - Fargo Outreach Coordinator email@example.com 701.429.1165 www.efmn.org Epilepsy Minnesota | 15 Nonprofit Org. U.S. Postage Connect with us! Sign up for an email version of this newsletter and to receive the latest news and information from the Epilepsy Foundation of Minnesota. Visit www.efmn.org today to connect with us via email. 1600 University Avenue West, Suite 300 Saint Paul, MN 55104 www.efmn.org PAID Twin Cities MN Permit No. 32600 Cleaning Your Closet Supports People with Epilepsy The Foundation collects used clothing and home items, with 100% of the proceeds supporting our programs/services. Please consider us anytime youâ€™re cleaning closets, as nearly HALF of our budget comes from our used clothing operation. Schedule a convenient pick up at www.efmn.org or call 651.287.2300, ext. 3 today!