MSConnection Dec-Feb 2012
Quarterly newsletter of the Utah-Southern Idaho Chapter of the National MS Society. Issue highlights Chapter news, research updates, health & wellness information, local programs & services as well as featured events supporting the mission -- a world free of MS.
UTAH - SOUTHERN IDAHO CHAPTER M O V I N G T O W A R D A W O R L D F R E E O F M S | D E C- F E B � 2 0 12 PRESIDENT'S MESSAGE MANy ACHIEVEMENTS TO APPLAUD THIS yEAR As another year comes to a close, it's a good time to pause and reflect on the progress made. Our community, volunteers, donors and staff have all worked passionately in 2011 to further our mission of creating a world free of MS. This year we celebrate the following great achievements: � 936individualvolunteerswhogave10,148hoursofserviceorganizing events, providing office administration support, leading mission programs, serving on committees and helping people with MS. � 10,060passionateeventparticipantswhowalked,ranandcycled. Togethertheyraisedmorethan$2.8milliontohelpfundresearch and services to support people impacted by MS. Weestimatethat1in300peopleinourarealiveswithMS,and6,600of them have registered with the Chapter to receive information and support services. We celebrate the progress made in 2011 to more effectively deliver programs and services to our two states. We've expanded social work services throughout our chapter and grown our direct assistance to include Self Improvement Grants to individuals, scholarships to students living with or affected by MS, and financial assistance when MS creates gaps in a family's budget. The Chapter worked to build relationships with healthcare professionals and community agencies to insure we "PRESIDENT'S MESSAGE" CONTINUED ON PAGE 3 2011: Lots to cheer about! THANKYOU The Chapter celebrates: � 936volunteers � 10,060eventparticipants � $2.8millionraised � Qualityprograms&services for people with MS � Homeoftwo "Partner in MS Care" centers � Morefundingforresearch INSIDE THIS ISSUE POlE WAlkINg PAgE 4 RESEARCH UPDATE PAgE 8 PAgE 6 NECk OF THE WOODS VOlUNTEER SPOTlIgHT PAgE 11 SUPPORTING THE MISSION HIP HIP HOORAy! CONGRATULATIONS TOP TEAMS & CAPTAINS Bike MS 2011 TeamBadAssCoffee $85,955 TeamHarmons TeamFLH TEAMUHP TeamBrain WasatchAdvisors SaddleSoar FabianLaw $81,360 $54,771 $30,350 $30,225 $29,600 $27,207 $21,085 CyprusCreditUnion $56,171 AnnHoffman GregJones JessicaTaylor KimberlyGerard StevenMartin AmyDavis JedWilliams ClayDean-Perry BrianBarnett JayBell Walk MS 2011 TeamS&M TeamBeaver CYPRUS VMSAgainstMS GalleryMAR TeamRAMS TheLittleChamps CBHWalkstars Bob'sArmy TheLucky13's $20,211 $16,677 $12,740 $9,000 $6,385 $6,085 $5,573 $5,337 $4,441 GregEades DavidPhillips CamilleTripp KathyCamomile MarenMullin AmieSchaeffer MichelleJacobi RobertWelker JessicaBowers L-3Communications $23,249 Mud Run MS Utah (renamed Muckruckus MS!) TeameBay Mudbusters MuddersinZion RollinInIt! TheMuddSlingers $2,836 $2,380 $2,255 $2,003 $2,000 JessicaFernandez KristiCumming EricWhite ChelseyHood RobertHarmon $6,210LittleDaveStephenson TEAMCAPTAINKICKOFF Calling all team captains! It's time to start planning forthe2012events.Doyouleadateamorareyou interestedinstartingone?Pleasejoinusatourfirst TeamCaptainKickOffmeetingsof2012.Look for more information online or contact Courtney. Frost@nmss.org. January25,2012|TBD,Boise February4,2012 UniversityGuestHouse,SaltLakeCity MS AWARENESSWEEK MSAwarenessWeek(March11-18,2012)is quickly approaching. We all can grow awareness. Whatwillyoudo?Doyouhaveconnectionsin your community to help get the word out and paint the town orange? Take advantage of MS Awareness Week and use it as a great opportunity to tell people about MS, to attract new team members, to host a community fundraising event or to get involved by volunteering or advocating for MS issues. Start making plans and help make a bold statement! 800 -344-4867 PUBLICATIONOFTHE NATIONALMULTIPLE SCLEROSISSOCIETY UTAH-SOUTHERN IDAHOCHAPTER Studies show that early and ongoing treatmentwithanFDA-approvedtherapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health careprofessionalorcontacttheNational MS Society at nationalMSsociety.org or 800-344-4867tolearnaboutwaystohelp manage multiple sclerosis and about current research that may one day reveal a cure. TheNationalMultipleSclerosisSociety does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuableinformation.TheNational Multiple Sclerosis Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations orprescriptions.TheNationalMultiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. TheNationalMultipleSclerosisSocietyis dedicated to creating a world free of MS. �2011NationalMultipleSclerosisSociety, Utah-Southern Idaho Chapter NationalMSSociety Utah-Southern Idaho Chapter 6364S.HighlandDrive,Suite101 SaltLakeCity,UT84121 BoiseOffice 6901W.EmeraldStreet, Suite207Boise,ID83704 Followus: facebook.com/MSutahIdaho twitter.com/CureMSutahIdaho PRESIDENT'S MESSAGE CONTINUED FROM COVER have resources and referrals for everyone who calls looking for information and support for their unique circumstances. We're also proud to be the home of two "Partner in MS Care" centers�theUniversityofUtah'sDepartmentofNeurologyMS ClinicandRockyMountainMSClinic.Bothwererecognizedin 2011bytheNationalMSSocietyasleadersincomprehensive care. This rigorous and prestigious designation has only been awardedto40clinicsin19states.OurChapterishometotwoof these!WecongratulateDrs.JohnRoseandJohnFoleyforbeing frontrunners in clinical care, as well as the many other clinicians in our area who collaborate and work together to serve our population so well. The Society remains committed to finding a cure for MS. Today weareinvesting$42.6milliononthemostpromisingMS research projects around the world. Right here in our chapter the University of Utah received some of those funds to support Dr.GaelYonnetasanMSClinicalFellow,andtofundtheData CoordinatingandAnalysisCenterfortheSociety'sNetworkof Pediatric MS Centers. Inaddition,the$250millionNOWcampaign(NoOpportunity Wasted)waslaunchedthisyearasaboldinitiativetofund research to stop disease progression, to restore lost function, and to end MS forever. There is more progress to be made and together we can create a world free of MS! Please join us in 2012 � volunteer, participate in an event, seek out a program or tell a friend about the great work beingdonebytheNationalMSSociety. Thank you! Annette Royle-Mitchell Chapter President TOll FREE NUMBER 800 344 4867 | 3 LIVING WITH MS WALK THIS WAy: USING WALKING POLES Potential tools in the walking arsenal that people with MS might want to consider are walking poles. These are an adjustable-length ski pole � like shafts made of very light metal (such as titanium,carbonfiberor aluminum)withhandles (calledgrips).Manyhave adjustable wrist straps and tips designed for walking onflat,steeporrugged terrain. Because they are used in pairs, poles--which lie between a cane and a walker on the continuum of assistive devices--offer increased balance, steadiness and support, according toSueKushner,PT,MS,associateprofessorofphysical therapy, Slippery Rock University, Penn., who has spent much of her career working with people who have MS. "You can move a little faster, because bilateral support gives more stability and speed," she said. Studies suggest that poles reduce the force on joints and help distribute the body's weight better, meaning lessworkforthelegs,knees,feet,hipandback.Less stress on the lower body translates into less fatigue, a frequent symptom of MS. "If you use poles instead of a cane, you may conserve energy,"Kushnersaid. ACE-certifiedpersonaltrainerJayahFayePaleytookup pole walking when she met a nice fellow using poles, who was, she said, "poetry in motion on the trail." She was so takenwithbothhim(theymarriedin2003)andthepoles that she made a career of teaching people to use them optimally. PaleyhascreatedtwotrainingDVDs,includingonefor people with mobility challenges. "With minimal training � 4 | cureMSutah.org - cureMSidaho.org usuallylessthananhour�youcanwalkmorefluidlyand with a natural pattern because you recruit and strengthen the muscles that support and elongate the spine," she said. Otherbenefits,Paleyadded,areconfidenceandfocus. "You are walking for exercise, not just strolling � the poles areconsistentreminderstomovebetter."Learnmoreat PolesForMobility.com. POLE PRIMER "Talk to your physical therapist before you try them," physicaltherapistSueKushnercautioned.Thenchoose polesbasedonyourheight,weight,handsize,issues (balance,forexample)andyourfitnessormobilitygoals. "Make sure they're the proper height--about waist level, a little higher than a cane--and a comfortable weight. If you're using them all day, you do care about their weight, especially if you have any weakness in your wrist muscles,"Kushneradded. One drawback is that you can't carry much with poles inbothhands.However,abackpackisonepossible solution. Goodpolescostabout$90to$140andshouldlast a lifetime. SELFIMPROVEMENTGRANTS EachyearSelfImprovementGrantsaregiven to help fund personal wellness initiatives and make it easier for people with MS in the Chapter to adopt healthy pursuits. The grant is a reimbursement of up to $100 toward activities such as a gym membership, yoga classes, physical therapy co-pays or nutrition counseling, among other healthy activities. Applytoday!Learnmoreonourwebsiteorcall 800-344-4867(option1). LIVING WITH MS SELF-HELP GROUPS: LEARN, GROW, AND CONNECT FromIdaho'sTreasureandMagicValleysdownto Utah'sDixieregion,andeverywhereinbetween, self-help groups are an important part of the NationalMSSociety'smissionto"addressthe challenges of everyone affected by MS." Groups are typically comprised of people living with MS and can include care partners or other family members as well as newcomers. The self-help group leaders are trained by the Society to guide productive discussions and inform members about helpful programs and services the Society offers. Meetings typically happen once a month and provide an opportunity for participants to share with each other what it means to live with MS, including setbacks and successes. In addition, some leaders invite healthcare professionals or other community leaders to speak about issues related to MS and local services. Many attendees also form a bond of camaraderie and gather together for other events like Walk MS. There are a multitude of benefits from participating, including, but certainly not limited to, learning new information, connecting with others who face similar challenges, feeling less isolated, feeling more empowered to live well, improving coping skills, and finding reassurance and support from others who have similar experiences. Currently, there are support groups in Boise, Nampa,TwinFalls,IdahoFalls,Ogden,Centerville, SaltLakeCity,WestJordan,Provo,Price,Cedar City, and St. George. If you are interested in joining a self-help group or would like to start one, please contact the Chapterat800-344-4867.Takeadvantageofthe opportunity to learn, grow, and connect with others in a self-help group near you! SOCIETy SCHOLARSHIPS ApplicationsfortheNationalMSSociety's scholarship program are now available online and due January 13, 2012.Qualifiedstudents planning to pursue a college or technical school degree and who either have MS themselves or a parent with MS can receive scholarships ranging from$1,000-$3,000.PeoplelivingwithMSwho have not yet been to a secondary school also may apply. This past spring, the Chapter awarded $21,000 in scholarships to 12 deserving students from Idaho and Utah. Together with chapters across the country,morethan$1millionwasawarded.Learn about past Chapter recipients at cureMSutah.org or cureMSidaho.org. Start the 2012 application process now. Visit nationalMSsociety.org/scholarship. ANNUALMEETING Celebrate a year of accomplishments and hear from relationship expert Matt Townsend who led several MS programs this past year with the Chapter. Attend in-person or watch online. Advance registration requiredviaourwebsiteorbycalling800-344-4867 (option1). January19,2012 6�9p.m. SheratonHotel,SaltLakeCity TBD,Boise OnlineviaWebEx The evening also will include election of the Board of Trustees. Board nomination forms, available year roundonline,mustbesubmittedbyDecember30, 2011. If you cannot attend but would like to vote by proxy, please complete and return a proxy form from ourwebsitebyJanuary6,2012. TOll FREE NUMBER 800 344 4867 | 5 NEWS yOUR NECK OF THE WOODS There are a lot of good things happening throughout the Chapter.Doyouhaveanewsitem? SendittoJuliann.Fritz@nmss.org. IDAHO FALLS An Awesome Auction DavidPhillips,theteamcaptain of Team Beaver, held an auction raising$16,000forhisWalkMS team.NotonlydidTeamBeaver raise the most money, they also had the most participants and eye catching orange t-shirts at the IdahoFallswalk! magazine's2011Healthcare Heroesforhisworkasaphysical therapist. BOISE Dance for Awareness The annual Irish dance festival, BoiseFeisbytheRiver,included a special dance competition �DanceStrong�inhonorof 11-year-old Sydney Renspurger who is a dancer living with MS. The dance category helped to educate the community and show them MS affects people of all ages. MERIDIAN Society Social AfestivefallFamilyNightwas heldatLinderFarmsinOctober. More than 100 people living with or impacted by MS turned outtohavefuninthemaze, pick pumpkins and get to know one another, as well as meet theChapter'snewPrograms& ServicesDirectorJudyBishop. Workman with former Utah Jazz Coach Jerry Sloan at the Dinner of Champions Thank you SELs A small celebration was held for theChapter's17SpecialEvent Leaderswholendtheirtimeto help manage the hundreds of volunteers who make all the large events run smoothly. Special thankstoSELJoeJohnsonwho also helps out in the office and reaches out to people newly diagnosed with MS. Want to learn moreaboutvolunteering?Email GetInvolved@nmss.org. SALT LAKE CITy Locals in Ny Times Abby West, namesake of the Bike MS Utah team Abby's Avengers, andhersonDr.TimothyWest, who was inspired by his mother to become an MS doctor, shared theirstoryintheNewYorkTimes magazine'sspecialinsertonMS. Themagazinehasanestimated readershipofmorethan4million. Good Work MichaelJ.Workman,thisyear's "Above and Beyond" award recipientattheChapter's33rd AnnualDinnerofChampions,was also highlighted in Utah Business Renspurger prepares for Boise Feis CEDAR CITy Congrats Ruth! CedarCityMayorJoeBurgess declared September 20, 2011, RuthBarrowDay.Formorethan 18years,Barrowhascampaigned for a cure for MS as a Walk MS team captain, top fundraiser and awareness builder. The team surprised her with the welldeserved declaration. 6 | TOOELE Racing Awareness RacecardriverDavidPeterson, inspired by a friend who has MS, addedtheMSCommunityEvents logo to his racecar to help raise awareness. This past fall he raced inUtah�Delta,Price,Ephriam, andinLasVegas.Petersonhopes to compete at tracks in Idaho inthenewyear.Followhimon Twitter@dpeterson_6. cureMSutah.org - cureMSidaho.org LIVING WITH MS JOIN THE MS COMMUNITy Whether you have recently been diagnosed with MS or have been living with it for many years, there is a community of people who share your experiences. Are you a part of it? The Utah-Southern Idaho Chapter is here to help you connect whether in person at a Society social, over the phone with a support volunteer, or by providing the information you need to help manage your MS. And, that's just a start to the many avenues available to get connected. Educational Programs � Visit our Chapter calendar online to see a list of upcoming programs either locally in town or via webinars and teleconferences. The Society partnerswithamixoforganizationstohelpmakethe latest educational and wellness opportunities available. Community Resources � The Chapter has an extensive list of community resources, including neurologists, mental health professionals, and state and local government agencies that provide services to Utah and southern Idaho residents with MS. Self-help Groups � There are regular meetings throughouttheChapter.Learnmoreonpage5. Trained Professionals�HaveaninquiryaboutFDAapproved treatments, a particular MS symptom or not sure what questions to ask yourself when considering disclosing your MS to your employer? A Society staff member can help. Want to get involved more? There are many ways from volunteering, becoming an MS advocate, and spreading MSawarenesstohostingaDIYcommunityfundraiseror starting a team for Walk MS or Bike MS. LearnmoreandjointheMSmovementtoday.Weare stronger together. � Paid Advertisement � Not a National MS Society Program � TOll FREE NUMBER 800 344 4867 | 7 RESEARCH PEDIATRIC MS STUDIES RECEIVE NIH GRANT The Society's network of Pediatric MS Centers has been awarded a five-year grant from the NationalInstitutesofHealthtostudygeneticand environmental risk factors for MS in children with the disease. The study will enroll children and teens with MS and matched controls without MS for a single visit to one of 10 centers around the country �inCalifornia,NewYork,Massachusetts,Alabama, Minnesota,Texas,PennsylvaniaandWashington.Four new centers are part of this project in addition to the six created with support from the Society's Promise: 2010 campaign. Hereinourchapter,theUniversityofUtahwas selected by the Society to manage the MS Pediatric DataCoordinatingandAnalysisCenterthatwillstudy and review data collected from all the Pediatric MS Centers located throughout the country. To learn more about the study including referral information,email@example.com 415-514-2476.Formoreinformationaboutpediatric MS, visit nationalMSsociety.org/pediatricMS. CCSVI STUDIES ONE-yEAR UPDATE The first-year progress reports from seven Societyfunded studies of CCSVI, or chronic cerebrospinal venousinsufficiency,werereleasedJuly14,2011.The research teams report being on track in collecting objective and comprehensive data. The studies were launchedwithamorethan$2.4millioncommitment fromtheMSSocietyofCanadaandtheNationalMS Society. The research teams have recruited a broad spectrum of people with and without MS. Already more than486peoplehavebeenscannedusingvarious imaging technologies. Only by refining imaging methods can investigators more reliably validate if a person actually has CCSVI and better understand its relationship to the MS disease process. The full results, to be released after completion, will help guide future steps, including the development of clinical trials to test whether treating CCSVI is safe and effective for people with MS. In the meantime, several of the teams will present preliminary results at medical meetings later this year. To read more about the studies and to get the news of results, visit nationalMSsociety.org/ccsvi. PREGNANCy AND MS Researchcontinuestoconfirmit'sOKtomix pregnancy and MS. A study published online in Annals of Neurology June27,2011,compared432birthstowomen withMSand2,975birthstowomenwithoutMS, confirming previous findings that, overall, the women with MS had normal pregnancies. The mean birth weight and gestational age of babies did not differ and women with MS were not at greater risk of adverse deliveries, including Caesarean sections. It was the first study in which researchers were able to control for other factors that could affect outcomes, such as disability levels, obstetrical history and body mass index. 8 | cureMSutah.org - cureMSidaho.org CLINICAL TRIALS UPDATE The Society's annual list of clinical trials in MS is now available online at nationalMSsociety.org/clinicaltrials. Itfeatures130studiesthatareinprogressorrecently completed. These cover neuro-protective agents; symptom medications; rehabilitation interventions such as cycling for improving MS-related depression, mobility and cognitive function; and more. Morethan52,000volunteershaveparticipatedor are currently participating in these studies. Their participation--and yours--makes it possible to look forward to new therapies for MS. SUPPORTING THE MISSION SHINE: BE AN MS AWARENESS STAR! Throughout Idaho and Utah people are building awareness about MS. The Chapter wants to hear all about it and shout your praises for making a difference and helping to educate the community about the MS Movement. Please share your activity, as each quarter an MS Awareness Star will be highlighted for outstanding awareness building efforts. Activities can be a mix of things from wearing MS event t-shirts as a group, hosting an information table, meeting with legislativeofficials,havingafundraiser,sharingyour story with a local club or using a creative outlet to tell the community what MS means to you. It all helps to get people involved, to learn more and to understand the impact of MS. Make sure to send a brief description that includes whowasinvolved(itcanbeonepersonoragroup) and a photo, if possible. The event must have happened within three months of the deadlines listed below. The selected activity will be highlighted in the MSConnection and our website. SendtheinformationtoJuliann.Fritz@nmss.org(orvia mailtotheaddressonbackoftheMSConnection)by thefollowingdates:January2,April2,July9, September4. * The activity must have taken place within the three months prior to the date noted. There is a star in all of us helping to shed a light on MS awareness.Let'sshine! WALK MS: CRAzy ABOUT STOMPING MS This past fall the Chapter had five Walks in five weeks with more than 1,200 people walking strong! DavidElganandhisteamtheMagicValleyCrazy BunchcametoWalkMSTwinFallswithamissionto raise awareness, funds, and to have fun. One of the largest teams there, they boldly made a statement dressed head to toe in orange and black, including fuzzycrochetedstripedlegwarmers.Theteam gatheredinhonorofElgan,whowasdiagnosedwith MSin2010.Theyraisedmorethan$1,400andwon the team t-shirt contest. This group of close and as theysay"crazy"friendsmadeamemorableimpact their first time walking. HollyTracy,diagnosedin2009attheageof22, decided she was going to conquer all of the 2011 Walk MS events in Utah. One problem, two were onthesamedayatoppositeendsofthestate.Her team, the Monster Stompers, didn't miss a step. All attendedSaltLakeCity'sinAprilandtheydivided and overcame as a team in September with Tracy andcrewinOgdenandheryoungersister,Kaitlyn, leading teammates in St. George. "Participating in the walk means to me that I can conquer MS and show the world that I am not going to let a little thing like MS slow me down," said Tracy. "I love participating in the walk to see all the supporters that come or the others like myself conquering the disease." What's your Walk MS story? Send it to Courtney. Frost@nmss.org. CONGRATSWALKMS2011 The Chapter's seven Walk MS events, including BoiseandSaltLakeCityinApril,raisedmore than$450,000.Thankyouformakingstrides for a world free of MS! TOll FREE NUMBER 800 344 4867 | 9 ADVOCACy UP-TO-DATE FAQS ON THE AFFORDABLE CARE ACT To help people with MS understand the Patient Protection and Affordable Care Act, or ACA, signed into law March 2010, the Society regularly updates FrequentlyAskedQuestionsonitswebsiteat nationalMSsociety.org/ACAFAQ. Onthispage,peoplecanfindanswerstoquestionslike: What if I am about to lose my COBRA coverage? Can children with pre-existing conditions get coverage? Doesthelawlimitlifetimeorannualcapsonindividual coverage?Whatare"HealthInsuranceExchanges"? Can private insurance companies cancel my policy? What about long-term care? When will the "donut hole" inMedicarePartDphaseout? TheFAQsalsoexploretheregulationspertainingtothe ACA provisions, as well as legal challenges the ACA faces. In addition, there are many links to fact sheets and useful websites that provide more in-depth information on specificissues. As various provisions of the ACA kick in over the next few years, the Society will continue providing up-to-date information and links. NEW ADA RULES More than 20 years after the enactment of the AmericanswithDisabilitiesAct(ADA),noteworthy changes went into effect March 2011. These demonstrateacontinuedcommitmenttorealizingthe fullpotentialoftheADAandtoproperlyenforcingcivil rights of people living with disabilities. Thedefinitionof"disability"hadbeenselectively narrowedovertheyears.Now,theEqualEmployment Opportunity Commission's new regulation is clear. Disabilityisdefinedasaphysicalormentalimpairment that substantially limits one or more major life activities, regardless if the disability is in remission. Multiple sclerosis will almost always meet the "disability" criteria because MS limits a major life activity(namely,neurologicalfunction). The revised regulations also adopt the 2010 Standards forAccessibleDesign,settingminimumrequirements for new construction or alterations of facilities of some 80,000stateandlocalgovernmentsandofmorethan seven million public places, including stores, restaurants, hotels, malls, libraries, museums, sports arenas, theaters,medicaloffices,pollingplacesandemergency preparedness centers. Learnmoreat ada.gov. AlsovisittheADANational Networkatadata.org orcall800-949-4232fortraining onhowtoimplementtheADAinourarea. MEMORIALS � Memorials and Tributes are a great way to honor a loved one. Carleen Astle LeslieField Brynn Barton Jeff&DebbieBarton FamilyandFriends Robert Lester Brown CarollynDaye Bonnie Rockwood DianeShupe Luacine Bunnell Ralph&AnnAngerbauer Richard&RuthBelliston David&JudyDunford Janet Olsen Diederich Paul Schneiter BarbaraF.Woody Mark Empey Fisher Ann Bjorklund Donna Harwood Ann Peterson Richard Kimball LauriFranks Mr.&Mrs.EzekielR. DumkeJr. Jerry Luff Chris Timothy Gloria Burgess Salladay Mark&JulianaLliteras 10 | cureMSutah.org - cureMSidaho.org VOLUNTEER GARy SHELTON The Balloon Man and More and making phone calls. He willingly did any task or project that he could. Walk MS was the first event Shelton "fell in love with." With three years of working at the Utah State Fair blowing up balloons under his belt, he became the Walk MS balloon man, blowing up hundreds of balloons at the event. Shelton also got involved with Bike MS and has been managing bike lock-up ever since. "It's just great seeing the same people every year," he said. That's just the tip of the iceberg of why he lends his support. Volunteer Gary Shelton doesn't let MS slow him down. Chances are you have met Gary Shelton. As a Society When not volunteering, Shelton enjoys riding his volunteer for more than two decades, Shelton has bike, working on cars, and spending time with his six helped out in the office, at special events, and in the grandchildren. He also went skydiving for the first time two years ago and can't wait to do it again. "I'm community. not going to let MS stop me," he said. Shelton is a great He was diagnosed with MS in January 1989 while example of someone who struggles with MS but finds working as a welder. A doctor referred him to the solace in volunteering and connecting with the MS Society,andinFebruarythatyearhebeganvolunteering community. "You just have to deal with it and move on weekly in the office stuffing envelopes, filing papers, with life." WANTEDVOLUNTEERS IDAHO:Doyoulovevolunteeringandwanttodo more? Are you able to help out at multiple special events and are talented at leading people? You couldbeaSpecialEventLeader! UTAH: The Women on the Move Champagne Luncheon&FashionShowisonFebruary25 and is in need of volunteers to help with set-up, registration, raffle tickets and more. BOISE & SALT LAKE CITy: Joinusandlearn moreattheVolunteerSocialsinSaltLakeCity (January10)andBoise(January26). Contact GetInvolved@nmss.org today! SUPPORT THE MISSION yEAR-END GIVING Did you know 87 cents of every dollar donated to the Chapter goes to support the mission? And those that give more than $1,000 annually become part of the prestigious Golden Circle donor group. By making a year-end gift, you can help the Society continue to provide programs and services all year long to thousands of people living with MS in addition to helping fund research that is so vitally important. Please consider making your tax-deductible year-end gift today.Donateonlineormailyourchecktotheaddresson the back cover of the MSConnection. Thank you! TOll FREE NUMBER 800 344 4867 | 11 6364 S. Highland Drive, Suite 101 Salt lake City, UT 84121 Change Service Requested JoinusonFacebook MSutahIdaho CALENDAR @ A GLANCE Newprogramsarealwaysbeingaddedandmanyrequireadvanceregistration.Pleasecheckonline(cureMSutah.org orcureMSidaho.org)orcall800-344-4867formoreinformationandtoRSVP. deceMBer 14 NationalMSSocietyNightat Zoolights,SLC January 10 VolunteerSocial,SLC 12 ExtraGentleYogaforPeople with MS, Boise 19 AnnualMeeting,SLC, Boise&online 25 TeamCaptainKickOff,Boise 26 Volunteer Social, Boise 26 Traveling: Tips for Those with Disability,SLC FeBruary 4 TeamCaptainKickOff,SLC 14 UndertheRotunda,SLC&Boise 23 Balance Techniques for a Better ActiveLifewithMS,SLC 25 WomenontheMoveLuncheon, SLC March 11-18 MS Awareness Week 29 FightingFatigue,SLC april 21 Walk MS Boise 26 ImprovingQualityofLife inMS,SLC 28 WalkMSSLC * Additional Walk MS events for the year TBA May TBD Research Symposium 17 MS&MobilityAdaptive Devices,SLC ongoing M,W,F WRAPMSExerciseGroup, University of Utah T MSExerciseGroup, Orem Sports Medicine T,TH MS Aquatics Class, West Boise YMCA