Summer 2010 - MSConnection
The National MS Society, Arizona Chapter's quarterly newsletter for summer 2010.
ARIZONA CHAPTER MOVING TOWARD A WORLD FRE E OF MS | 2010 • SUMMER • VOL 3 Corks & Chords Brings Arizona Together to Create a World Free of Multiple Sclerosis Join us AT two fantastic locations featuring wine tasting and gourmet tasting stations while benefiting the Arizona Chapter. On Friday, September 10, the city of Tucson hosts the 2nd Annual Corks & Chords. This year’s event takes place at the beautiful Chinese Cultural Center. Stations of chef-prepared dishes, paired with delicious wines, accompany live acoustic music and a silent auction. Guests will have the opportunity to browse the center’s many historical artifacts as well as receive an update on MS research by Dr. Barbara Geisser. On Saturday, September 25, the 4th Annual Corks and Chords takes place at the Mayo Clinic’s beautiful reception area nestled among the foothills of scenic Scottsdale. Enjoy delicious chef-prepared dishes and fabulous wine while local musicians serenade guests as they browse an auction and raffle. Guests will also enjoy an inspirational program that will include an update on Our fabulous chef contributors from Cake Café! MS research by a Mayo Clinic neurologist. Taste and treat your senses to an evening of song, spirits and savory treats. For sponsorship and ticket information visit aza.nationalMSsociety.org. MOREINFO Corks & Chords: Tucson Friday, September 10 6:00-9:00 pm 1288 West River Road Tucson, AZ 85704 Tickets: $50 Corks & Chords: Phoenix Saturday, September 25 6:00-9:00pm 13400 East Shea Boulevard Scottsdale, AZ 85259 Tickets: $75 INSIDE THIS ISSUE Care Management & Planning Wise Page 4 Professional Education Page 8 MS Activists Make Their Mark Page 10 Oral Drug Progress Page 13 ARIZONA CHAPTER (800) 344-4867 Publication of the National Multiple Sclerosis Society Arizona Chapter Chapter Offices: 5025 E Washington Street, Suite 102 Phoenix, AZ 85034 PO Box 91397 Tucson, AZ 85752 Vice President, Programs & Services Philip Carll Development Director Brandee Wessel MSConnection Editor Jessica Read WE ARE HERE FOR YOU The National Multiple Sclerosis Society, Arizona Chapter is a 501(c)(3) nonprofit health organization dedicated to enhancing the lives of Arizonans living with MS and their families. We offer a wide range of services and programs including: The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use of contents of any product or service mentioned. • Information and Referral Information provided by the Society is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. • Advocacy We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS. © 2010 National Multiple Sclerosis Society, Arizona Chapter • Career and Financial Assistance • Disease Education, Social Networking and Exercise Programs • Self Help Groups • Professional Education For information on these programs and services, the Chapter, multiple sclerosis and volunteer opportunities, please visit our website at aza.nationalmssociety.org. We encourage you to become involved with the Chapter and MS community. If you have any questions, please contact us at: National Multiple Sclerosis Society Arizona Chapter 5025 E. Washington St., Suite 102 Phoenix, AZ 85034 Telephone: (480) 968-2488 E-mail: firstname.lastname@example.org 2 | JOIN THE MOVEMENT: nationalMSsociety.org WELCOME WELCOME FROM THE BOARD CHAIR The past eighteen months has been a time of significant economic challenges that has greatly impacted the nation and the state of Arizona. Philanthropic giving, as you might expect, decreased substantially. The National MS Society saw revenues decrease by over 10%. Arizona, whose primary industries were severely impacted, was hit even harder. Higher than national average unemployment and decreased consumer confidence led the Arizona chapter to one of its most difficult financial years ever resulting in nearly 15% revenue decreases. Despite the economic challenges, the Arizona chapter accomplished a great deal this past year and was able to continue its positive impact on the lives of those affected by multiple sclerosis. Over 800 cyclists, 5,000 walkers and DOMORE For more information about the events and programs that the Arizona Chapter offers, visit aza.nationalMSsociety.org some 500 volunteers joined the movement to create a world free of MS by raising over $1.6 million dollars in support of local programs and services as well as ground breaking research to help find the cure for MS. In an effort to meet the needs of those directly affected by MS, we concentrated our efforts on our financial assistance program grants that strive to keep persons with MS as independent as possible. This program impacts the day to day lives of people who need it most, providing transportation, counseling, vehicle modifications and care management services to individuals with MS. We also continued to provide top quality education and exercise programs throughout the state. In 2009, over 20 programs were held, many of which were led by nationally recognized speakers. The chapter also continues to offer the popular social networking events such as Boys Night Out, No Boys Allowed and 20’s & 30’s. The groups have grown rapidly over the past few years and are now being replicated around the country due to their popularity and demand. Without a doubt, we have recently experienced one of the most challenging times that we have ever faced as an organization. I am proud to say that, despite all of these challenges, we have banded together and kept our focus on the mission – to create a world free of MS. We are very excited about 20102011. We are gearing up for our Corks and Chords wine tasting events and Walk MS events in the fall and for the 25th anniversary Bike MS event next March. I thank you for your past support of the Society and hope that you will continue to help the chapter provide much needed support to those affected by MS. Sincerely, Shel Sheldon Berman Board Chair TOLL FREE NUMBER 1 800 344 4867 | 3 PROGRAMS & SERVICES CARE MANAGEMENT & PLANNING WISE In an attempt to address many of the challenges that people living with multiple sclerosis encounter, the Arizona Chapter offers Care Management and Planning Wise. Care Management is a means of connecting people living with MS who have a need with community resources to meet that need. To do this, the Care Manager assists with navigating community services and offers referrals. Also, the Care Manager may provide education and information. Examples of some of the areas of assistance include home health care, legal resources, transportation, financial help and medical equipment. Although the National Multiple Sclerosis Society, Arizona Chapter and Care Manager cannot guarantee the availability of any outside resources or community services, the Care Manager will make every effort to find the appropriate programs and services to meet a need. Planning Wise is a financial and career planning program that assists people living with MS to evaluate and plan their career path and financial future. Volunteer professional career and financial counselors provide guidance in the areas of Financial Planning, Career Counseling/Coaching, Budgeting/ Debt Management, and Health and Disability Benefit Analysis/Planning. This program is open to persons living with MS who are newly diagnosed, have recently lost employment, are at risk of losing employment and are considering a career change due to their MS symptoms. LEARNMORE To learn more about either Care Management or Planning Wise contact: Angela McKinley, Direct Services Coordinator email@example.com (480) 968-2488, Extension 223 4 | JOIN THE MOVEMENT: nationalMSsociety.org WALK WITH PURPOSE MYMSCHALLENGE.COM 3 DAYS. 50 MILES. SEPTEMBER 24-26, 2010 CARLSBAD TO SAN DIEGO PRESENTING SPONSOR FUNDING THE MISSION Women against ms (wams) raises over $55,000! Nearly 75% of all multiple sclerosis (MS) patients are women. When faced with this shocking diagnosis, many women and their families face physical, informational, emotional, and financial crises. In order to better educate and galvanize our community against MS, the chapter hosted the 5th Annual Women Against MS Luncheon. On April 27, guests enjoyed a fine lunch while watching an inspirational program emceed by Tara Hitchcock of “Good Morning Arizona”, and featuring keynote speaker Larissa Nusser. Dr. Lori Travis also provided guests with an update on MS research. Thanks to the overwhelming support in our community we have raised over $55,000! We are looking forward to 2011! Cyclists raise nearly $500,000 at the round up ride Volunteers Wanted! WE NEED YOU Many of us want to make a difference in our community, but are not sure how to get started. You may have limited time and resources, but that doesn’t mean you still can’t make a difference! Whether you want to volunteer in an ongoing basis, for one event or even one hour…the Arizona Chapter needs you! We cannot support the 8,000 people affected by MS in Arizona without support from our wonderful volunteers in the community. On March 27-28, the 24th Annual Bike MS: Round Up Ride hosted more than 800 cyclists as they rode over 150 miles in two days to make a difference in the lives of people living with multiple sclerosis. 300 volunteers supported the cyclists as they rode through Florence, Collidge and Casa Grande. Together they have raised nearly $500,000! The chapter has all kinds of volunteer tasks available -- anything from marketing, participant recruitment, sponsors, mailers, phone calls and more! Get involved today! Join us for our 25th Anniversary ride on March 26 & March 27, 2011! You can register right now for only $25. Visit www.bikemsarizona.org for more details! For more information or to apply to volunteers, email firstname.lastname@example.org or call (800) 344-4867 TOLL FREE NUMBER 1 800 344 4867 | 5 PROFESSIONAL EDUCATION Conference for Healthcare Professionals Explores Comprehensive Care Model for the Treatment of Multiple Sclerosis The chapter hosted its third annual continuing medical education conference “MS 2010: Maximizing Care Strategies” on Saturday, March 13 in Phoenix, Arizona. The chapter partnered with co-sponsor, St. Joseph’s Hospital and Medical Center, to offer a one-day course featuring presentations by internationally recognized MS experts on the latest multiple sclerosis related research and treatment protocols. Ninety medical professionals from around the state attended, as well as five researchers from Canada, and twelve neurology specialists from outside the state. Learning objectives included adding to the professionals’ knowledge of MS, deepening their understanding of the multidisciplinary treatment model and efficacy of comprehensive care, and enhancing their practice skills. “In treating MS while at the Barrow Neurological Institute, I found that the most effective health care delivery system is a comprehensive care model incorporating networks of multidisciplinary providers,” said Dr. Denise Campagnolo, 6 | former Director of the MS Clinic and the Course Co-Director. “We’re excited to have presented a curriculum and recruited an internationally recognized faculty that spoke to the success of that model.” Highlights of the conference included these topics: Lauren Krupp, MD, at the Arizona Biltmore • The Status of Stem Cell Treatments in MS: Where are We? Mark Freedman, MD Ottawa University Ottawa, Ontario, Canada • MS-Related Disability Claims and Challenges: The Clinician’s Role Kimberly Calder, MPS National MS Society New York, NY • Dispelling the Myths: Controversial MS Treatments and Alternative Therapies Allen Bowling, MD Neurology Care Englewood, CO • Assessment and Management of Cognitive and Neuropsychiatric Disorders in MS Ralph Benedict, PhD Buffalo General Hospital Buffalo, NY • Asymptomatic Demyelinating Disease: The Radiologically Isolated Syndrome Darin Okuda, MD MS Research Center at the University of California, San Francisco, CA JOIN THE MOVEMENT: nationalMSsociety.org • Wellness & Multiple Sclerosis Patricia Kennedy, RN Can Do Multiple Sclerosis Edward, CO • The Psychology of Fatigue & MS Lauren Krupp, MD State University of New York Stony Brook, NY TELECONFERENCE Summer Teleconference series dates & topics announced The Arizona Chapter is offering its 3rd Annual Summer Teleconference Series in collaboration with the Colorado and Utah Chapters. This summer’s series offers a call every other Thursday beginning August 12. Each call will feature nationally-recognized MS experts in their fields speaking for 90 minutes with a question and answer session. Join us for all or one of the following topics: • August 12 Complimentary and Alternative Medicine Allen Bowling, MD Colorado Neurological Institute, Engelwood, CO Two Walks. One Destination. A World Free of MS • August 26 Depression and MS Peggy Crawford, PhD Cincinnati Children’s Hospital Medical Center, Cincinnati, OH Walk MS: Prescott Join us Saturday, October 2, 2010, for our 3rd Annual Prescott walk MS: Walk on the Wild Side! More than 300 participants will walk through Willow Lake and the Heritage Park Zoo to make a difference by raising money to create a world free of MS. • September 9 Employment and MS Steve Nissen, MS, CRC National Capital Chapter of the National MS Society Washington, DC • September 23 Intimacy and MS Patricia Kennedy, RN Can Do Multiple Sclerosis, Edwards, CO • October 7 Bowel & Bladder Dysfunction and MS Margie O’Leary, MSN, RN University of Pittsburgh School of Nursing, Pittsburg, PA Mary Kay Fink, MSN, RN St. John’s Mercy Medical Center, St. Louis, MO To register, call (800) 344-4867, and press ‘1.’ Walk MS: Phoenix Join us Saturday, November 6, 2010, for our 23rd Annual Phoenix walk MS: Walk on the Wild Side! More than 4,000 participants will walk through the Phoenix Zoo and Desert Botanical Garden to make a difference by raising money to create a world free of MS. Walk • Donate • Volunteer walkMSarizona.org TOLL FREE NUMBER 1 800 344 4867 | 7 PROFESSIONAL EDUCATION Training for Yoga Teachers and Therapists The Chapter offers a two-day professional education session to illustrate how to safely assist and support clients with MS. Yoga teachers, physical therapists, rehabilitation professionals and licensed healthcare professionals are invited to join us on Saturday and Sunday, October 9 and 10. Hosted at the Nina Mason Pulliam Conference Center in the Disability Empowerment Center, attendees will receive continuing education credits from the Yoga Alliance and Arizona Physical Therapy Association (13.5 contact hours). The format of the workshop includes a pre/post-test along with a mix of didactic instruction, case studies and lab experience. The second day will include student volunteers to demo/practice teachings. Emphasis will be on safety and appropriate employment of Yoga technologies (postures, breathing, meditation, imagery and corrections) and the curriculum will include business development instruction in HIPAA compliant communications with healthcare team, professional language 8 | and marketing. The criteria for certificate will be 90% on posttest. The tuition fee is $180. Matthew J. Taylor, PT, PhD, RYT 500 instructs the course. He is a past president of the International Association of Yoga Therapists, a clinician and researcher, as well as the author of Yoga Therapeutics in Rehabilitation. For more information about Dr. Taylor, visit www.drmatthewtaylor.com. JOIN THE MOVEMENT: nationalMSsociety.org MOREInfo To register for the program, or for more information contact Phil Carll at email@example.com or (480) 968-2488, x-222. 20th Anniversary ADA Gala Saturday, July 24, 2010 Come celebrate 20 years of Disability Civil Rights. The Americans with Disabilities Act has transformed our culture and opened doors for millions of Americans with disabilities. Wear your finest and join us for this fun, festive celebration! Hotel rooms will be available for purchase; please inquire when you RSVP for the Gala event. 6 -10 PM Tempe Mission Palms Resort 60 East Fifth Street Tempe, AZ 85281 Purchase your tickets by July 12! Online: azdac.org/Gala By Mail: Complete Form Below By Phone: 602-503-6593 (V) 602-364-0990 (TTY $35 each ticket | 8 (Table) for $280 Sponsorship & Scholarship Opportunities Available Cocktail Hour (Cash Bar): 6-7 PM Dinner and ADA Awards: 7:00 PM Entertainment & Dancing: 8:30 PM For information on this or other ADA Celebration events go to www.azdac.org. RESERVE YOUR SEATS TODAY! FILL OUT THE FORM BELOW AND MAIL TO: GALA, 5025 E. Washington St., Suite 200, Phoenix, AZ 85034. RSVP with credit card or check payable to ABIL Individual # ($35 each) Table - seating for 8 guests # ($280 each) Total $ I need to request a scholarship in order to attend I would like to donate a scholarship for someone else to attend $ I would like to request an accommodation Charge my: ∑ Visa ∑ Mastercard ∑ American Express ∑ Discover Account # Expiration Date (XX/XX) 3-digit security code on back of card Name Company Address City State Zip Code Email Phone ( ) Signature TOLL FREE NUMBER 1 800 344 4867 | 9 ADVOCACY MS Activists successfully lobby for state ada legislation For the second year, activists for multiple sclerosis gathered together for a two-day legislative conference. On April 19, participants attended the “Issue Prep Workshop” with guest speaker Joe Rubio, Lead Organizer of Valley Interfaith Project. He presented data on the state’s budget structure and the economic challenges that led to Arizona’s current financial woes. Other speakers included Ed Myers, Deputy Executive Director of the Arizona Center for Disability Law, who presented an update on Senate Bill 1232, the Arizonans with Disabilities Act, which is legislation to make state law for the Americans with Disabilities Amendment Act conform to federal law which was signed in 2008. After a discussion on the priority issues, members of the Chapter Government Relations Committee sat as panelists during a presentation of best practices for meeting and communicating with elected officials. The evening wrapped with delegation meetings to prepare for an exciting day two. We are Activists: MS Activists gather in front of the State’s Capitol Museum building for the 2nd Annual MS Action Day at the AZ Capitol discuss the impact of recent budget deliberations on people with multiple sclerosis and to request support for the passage of Senate Bill 1232. 17 MS activists met with 15 state legislators, sharing their personal stories and challenging legislator viewpoints. Government Relations Committee, Sieg will be working to host a nonpartisan candidate’s district forum before the November state election. As a result of the lobbying efforts of MS activists and many other disability advocates, SB1232, the Arizonans with Disabilities Act, was passed by the Arizona MS activist & delegation leader, Legislature and later signed into law Sieg Wenzel of Mesa, summarized his interactions with state legislators by Governor Brewer on May 10. Under the act, the definition of a by saying, “It is apparent that as disability is expanded and includes advocates for multiple sclerosis, we need to have a more consistent impairments that are episodic or in remission, such as multiple sclerosis. presence down here at the Capitol and a growing group so that elected If you are interested in being in officials know we mean business. involved in the Chapter’s advocacy In an election year, it is crucial efforts, contact Siobhan McCurdy, On April 20, MS activists took their that constituents know how their Advocacy Coordinator knowledge of the issues and passion district legislators are or are not at firstname.lastname@example.org or for MS advocacy to the state representing their interests.” Along (480) 968-2488. Capitol to meet with legislators to with other members of the Chapter 10 | JOIN THE MOVEMENT: nationalMSsociety.org ADVOCACY DOMORE 3rd Annual MS Awareness Day with the Diamondbacks Join us at Chase Field to watch the Diamondbacks game against the Colorado Rockies at 6:40 p.m. Friday, August 20, 2010! The team will donate $5 back to the chapter for every ticket purchased. Be sure to stick around for a post game fireworks show put on by Gila River Casinos. To order your discounted tickets, visit dbacks.com/ms and click on the “Buy Tickets Now” Button. Don’t forget to use the special offer code (ms) to get your discount! If you have any questions or special ticket needs or have a group larger than 15, please contact Carol Czerniski at (480) 968-2488 ext 207 Learn how to advocate from the ground up Do you want to be an MS activist, but don’t know where to start? MS advocacy starts with you… literally. MS-CAN has developed an advocacy training presentation and toolkit that will introduce you to the world of advocacy beginning with how advocacy looks in your day-to-day life. After you understand how user-friendly advocacy is, we will talk about MS advocacy and how you are an essential part of the legislative process. This presentation will take you into: • Preparing for Advocacy (organizing, effective communication, making sure your message is heard) • Advocacy Chain of Command • Relationship and Coalition Building • Our Advocacy Tactics • Advocacy Priorities & Successes Cheryl Roberto-Lvovsky, MSW, the Manager of Government Relations and Individual Advocacy at the Southern California Chapter will take you through this advocacy journey ending with a call to action in your own community. If you are interested in participating in an upcoming training session, contact Siobhan McCurdy, Advocacy Coordinator at email@example.com or 480-968-2488 x210. Join the movement! TOLL FREE NUMBER 1 800 344 4867 | 11 LIVING WITH MS Veterans benefits for people with ms Are you a veteran with MS? Many veterans do not know that they may be eligible for medical benefits at your local Veterans Administration Medical Center. We all have heard stories about the VA Healthcare System. While no system is perfect, we can assure you that you will get the best possible care. We at the Paralyzed Veterans of America are chartered by United States Congress to oversee the Spinal Cord Injury/ Dysfunction System area of veteran care. While we do not make the rules, we work to ensure the VA guidelines are followed and any interpretations of those rules are in the veterans favor. Here are questions you should ask yourself: • Are you a veteran with an Honorable Discharge? • Did you know the VA will not interfere with existing insurances including state programs? • If you need medical equipment, are you getting it for free? • Did you know that equipment to get you in and out of your vehicle is provided if deemed necessary by your VA doctor? • When did your symptoms appear? • Some veterans are eligible for lifetime pensions; are you? • Did you know that depending on your VA rating that those that need home modifications are entitled to home accessibility grants starting at $1200 up to $60,000? There are no fees to find out about your benefits, nor does PVA ever charge any fees from the veteran or the government for these services you are entitled to. Last year the Arizona National Service Office procured over $27 million in veterans benefits; both medical and financial. We estimate that there are over 800 eligible veterans with MS in Arizona and we can only find about 150 getting services from the VA. The most important question you should be asking is, are you eligible for quality healthcare and better life options? The Arizona Chapter of the Paralyzed Veterans of America encourage you let us help you find out. For more information, contact Peter Quinn, Executive Director, at firstname.lastname@example.org or (800) 621-9217. 12 | JOIN THE MOVEMENT: nationalMSsociety.org RESEARCH Oral drugs make progress Oral drugs for MS are getting even closer to the doctor’s office, with one, Ampyra, now available by prescription. Here’s the scoop: • The FDA approved Ampyra (dalfampridine, Acorda Therapeutics) in January for its ability to improve walking in people with MS. People with MS and their healthcare providers can call 888-881-1918 for information on Ampyra, including patient assistance programs and insurance coverage. (The drug is costly: wholesale price is estimated to be $1,056 for a 30-day supply.) Watch Dr. Patricia Coyle talk about what Amprya does, how it works and possible side effects at nationalMSsociety.org/ampyra. • Gilenia (formerly called FTY720 or fingolimod) in an exciting development has been granted a priority review by the FDA. This means it could take as little as six months to determine if this will become the first oral disease-modifying drug for MS. Read the studies thus far at nationalMSsociety.org/gilenia Get the latest news on oral drugs sent directly to your inbox. Visit nationalMSsociety.org/ signup to create a user profile and start getting the MS eNEWS! • With positive results in the latest studies, Cladribine, another oral disease-modifying drug, is in the process of applying for marketing approval. Visit nationalMSsociety.org/news and type “cladribine” in the search field to learn more. Thank you to Thunderbird Charities The movement to create a world free of MS will take the efforts of millions of people and community partners, each making a contribution in their own way. The chapter would like to thank one of our vital community partners, the Thunderbird Charities, for their $5,000 grant award in support of our Emergency Financial Assistance program. The Phoenix Thunderbirds have been an integral part of the Valley of the Sun since 1937. Although better known as the host organization for the Waste Management Phoenix Open, they are equally proud of their contributions to area charities. In 1986 Thunderbirds Charities was established for the purpose of distributing money to charitable A! Care Sta"ng, LLC causes. Funds are raised through the Waste Management Phoenix Open and direct gifts to Thunderbirds Charities. “Take Back YOUR Life” The mission of Thunderbirds Charities is to assist children 24/7, valley-wide, medical & non-medical personalized supportive care services and families, help people in need and improve the quality of 602.277.1482 life in our communities. The Thunderbirds have made a difference in the lives of Arizonans with MS by helping the Chapter provide assistance for the basic needs of daily living. Thank you Thunderbirds Charities. TOLL FREE NUMBER 1 800 344 4867 | 13 Join Us! July August Speaker: Carla Lopez, NP Wednesday, Aug 11 @ 6pm Golden Corral 715 E Wetmore Rd, Tucson RSVP: (800) 292-6204 ID: #EZ3220351 Speaker: Nida Laurin, MS Thursday, Aug 12 @ 6pm Mimiâ€™s Cafe - Scottsdale RSVP: (800) 292-6204 ID: #EZ3688574 Speaker: Troy Anderson, MD Wednesday, Aug 18 @ 6:30pm Macaroni Grill - Goodyear RSVP (877) 329-8327 Speaker: Jeffrey Git, DO Monday, Aug 23 @ 6:30pm El Parador - Tucson RSVP: (800) 292-6204 ID: #EZ3548303 October Speaker: William R. Shaffer, MD Neurologist with MS Friday, Oct 22 @ 12pm HomeTown Buffet 5101 N Oracle Rd, Tucson RSVP (800) 292-6204 ID: #EZ35469078 Speaker: William R. Shaffer, MD Neurologist with MS Friday, Oct 22 @ 6:30pm Top Shelf Restaurant 1976 W Southern Ave, Mesa RSVP: (800) 292-6204 ID: #EZ3548296 Speaker: William R. Shaffer, MD Neurologist with MS Saturday, Oct 23 @ 9am HomeTown Buffet - Scottsdale RSVP: (800) 292-6204 ID: #EZ3776693 September Speaker: Judith Larkin, MD Friday, Sept 10 @ 6pm Flagstaff RSVP (877) 329-8327 Speaker: Judith Larkin, MD Saturday, Sept 11 @ 8:30am Prescott RSVP (877) 329-8327 14 | JOIN THE MOVEMENT: nationalMSsociety.org November Speaker: Nida Laurin, MD Friday, Nov 5 @ 6:30pm Golden Corral - Prescott RSVP: (800) 292-6204 ID: #EZ3779276 RESEARCH Speaker: Jeffrey Gitt, DO Friday, July 30 @ 12pm Sedona Rouge Hotel, Sedona RSVP: (800) 292-6204 ID: #EZ3422942 September (continued) Speaker: Troy Anderson, MD Tuesday, Sept 14 @ 6:30pm Macaroni Grill - Goodyear RSVP: (877) 329-8327 Speaker: Daniel Bandari, MD Tuesday, Nov 16 @ 6pm El Parador - Tucson RSVP: (800) 292-6204 ID: #EZ3458491 Speaker: Daniel Bandari, MD Tuesday, Nov 16 @ 6pm Golden Corral - Gilbert RSVP: (800) 292-6204 ID: #EZ3458766 Speaker: Daniel Bandari, MD Wednesday, Nov 17 @ 6pm HomeTown Buffet - Scottsdale RSVP: (800) 292-6204 ID: #EZ3458900 Speaker: Daniel Bandari, MD Thursday, Nov 18 @ 12pm Arrowhead Country Club 19888 N 73rd Ave, Glendale RSVP (877) 329-8327 December Speaker: Nida Laurin, MD Wednesday, Dec 8 @ 6:30pm Disability Empowerment Center Phoenix RSVP: (800) 292-6204 ID: #EZ3777038 PG. 1 PROOF 4 TEL MAC_VOL SDP Committed to helping patients with MS exacerbations Questcor proudly supports the National MS Society, Arizona Chapter When IV steroids aren’t the right fit Acthar provides relapse relief for select patients Important Safety Information H.P. Acthar Gel (repository corticotropin injection) is indicated for the treatment of acute exacerbations in patients with multiple sclerosis, for the diagnosis of adrenocortical function, and for several other uses. Common adverse reactions associated with the use of H.P. Acthar Gel include: diarrhea, fluid retention, headache, hirsutism, increased sweating, injection site reaction, mood alteration, palpitations, skin reactions, tachycardia, and vertigo. Potentially more serious but less common adverse reactions may also occur. The above information is an abbreviated summary only. For a full list of adverse events, precautions, and warnings for H.P. Acthar Gel, please refer to www.acthar.com and the full prescribing information. H.P. Acthar ® Gel and Questcor ® are registered trademarks of Questcor Pharmaceuticals, Inc. ©2010 Questcor Pharmaceuticals, Inc. PM-417-00 05/10 Printed in USA. “Ask the Neurologist” Programs designed to answer your questions about MS Phoenix Tucson Speaker: Dr. Lori Travis Speaker: Dr. Jeanette Wendt Phoenix Neurological Associates When: August 25 and Sept. 29 6:00pm Northwest NeuroSpecialists When: August 18 and Sept. 15 6:00pm Where: Aunt Chilada’s, Squaw Peak 7330 N. Dreamy Draw Phoenix, AZ 85020 Dinner served Where: Windmill Suites 4250 N. Campbell Ave. Tucson, AZ 85718 Register Now to Shared Solutions 800 - 887 - 8100 TOLL FREE NUMBER 1 800 344 4867 | 15 NON-PROFIT ORG. U.S. POSTAGE PAID PHOENIX, AZ PERMIT NO. 01442 Arizona Chapter 5025 E Washington Street, Suite 102 Phoenix, AZ 85034 CALENDAR OF EVENTS JUNE 29 Yoga for MS (6-week session) - Prescott OCTOBER 2 Walk MS - Prescott JULY 13 Boys Night Out - Phoenix November 6 Walk MS - Phoenix AUGUST 12 Complementary & Alternative Medicine: A Teleconference 26 Depression & MS: A Teleconference September 10 Corks & Chords - Tucson 25 Corks & Chords - Phoenix