THE NEWS MAGAZINE OF THE ALS ASSOCIATION FLORIDA CHAPTER
ALS A C C E S S
A Season of Love, Hope and Football Former NFL player, Derrick Jensen, talks about his career, recent ALS
Inside:
diagnosis and finding love again.
$1million Secured for Florida Clinics Making a Difference for Patients: Our Community Partner, VITAS ALS Scholarship Recipients
2014 Walk dates on back!
FA L L 2 0 1 3
Staff Kim Hanna President and CEO khanna@alsafl.org - ext. 105 CARE SERVICES Christine Bright, MSW Care Services Director cbright@alsafl.org - ext. 130 Annie Blackburn Care Services Admin. Asst. ablackburn@alsafl.org - ext. 113 Heran Sisay, MA Regional Care Manager, Greater Tampa Bay hsisay@alsafl.org - ext. 103 Aimee Freedman, BSW Regional Care Manager, North Central Florida afreedman@alsafl.org - ext. 117 Judie Benwick, MSH, MPH, CHES Regional Care Manager, North Florida jbenwick@alsafl.org - ext. 112 Rhonda Rittenhouse, MA, LMFT Regional Care Manager, Central East Florida rrittenhouse@alsafl.org - ext. 109 Patricia Stanco, MHS Regional Care Manager, South West Florida pstanco@alsafl.org - ext. 110 Jessica Bianchi, MBA Regional Care Manager, South East Florida jbianchi@alsafl.org - ext. 122 FUND DEVELOPMENT Maggie Nolen Regional Development Manager Greater Tampa Bay mnolen@alsafl.org - ext. 118 Diana Perrault Regional Development Manager Central Florida dperrault@alsafl.org - ext. 111
Emily Pembroke Special Events Assistant epembroke@alsafl.org - ext. 127
PRESIDENT’S MESSAGE In my three years as President of the Florida Chapter, there is nothing I’m more proud of than the victory we achieved for patients with the funding of the Bitner-Plante ALS Initiative.
AWARENESS Alissa Gutierrez Marketing & Communications Director agutierrez@alsafl.org - ext. 120 Patti Palmer Awareness Manager ppalmer@alsafl.org - ext. 131 ADMINISTRATION Lisa Bublinec Office Administrator lbublinec@alsafl.org - ext. 108 Robin See Bookkeeper rsee@alsafl.org - ext. 104 Gabby Harrison Donor Relations Manager gharrison@alsafl.org - ext. 101 Board of Trustees Hiram Green Chairman Tim Cummings Vice Chairman Warren Nelson Treasurer James B. Murphy, Jr. Secretary Wendy Bitner John Cannistra Kevin Conn Erin L. Malone, Esq. Bob Miller Dewayne Standifer Dr. Sandra L. Torres Kim Hanna President and CEO David Smith Honorary Board Chair
Tiffany Geiger Regional Development Manager Broward/Miami-Dade, Palm Beaches tgeiger@alsafl.org - ext. 126
The ALS Association Florida Chapter 3242 Parkside Center Circle | Tampa, FL 33619-0907 Toll Free: 888-257-1717 | 813-637-9000 | www.ALSAFL.org
Kim Hanna
The countless number of hours Board Member, Wendy Bitner, and I spent working to finalize this critical grant for Florida’s ALS clinics proved well worth the effort. On May 21, 2013, Governor Rick Scott signed the budget line item of $1,000,000 for our ALS clinics and research centers. It was a day of hope for people living with Lou Gehrig’s Disease in Florida. Most ALS clinics operate on a shoestring budget, wondering how they will continue to serve patients without an inflow of financial support. With the Bitner-Plante funding, our statewide ALS clinics will be able to serve more patients and ensure that their doors can remain open – a situation that was not guaranteed before the initiative was secured! In addition to this funding, The ALS Association Florida Chapter will continue to support Florida’s ALS clinics through our staff participation at every clinic day, additional financial support, advocacy and awareness and certification as Certified Centers of ExcellenceSM. Currently, attending a multidisciplinary clinic has been shown to extend the life of an ALS patient. Therefore, it is critical that we assist these centers every and any way we can. To find out more about our statewide ALS clinics, visit www.ALSFloridaClinics.com, or call me to schedule a tour of a clinic in your area. In Tampa, we have a monthly free Hope and Help Tour of our USF ALS Clinic. The tours are open to the public and it would be my great privilege to show you how the multidisciplinary approach benefits people with Lou Gehrig’s Disease. This funding helped to keep the doors of our Florida Clinics open- but your support is still needed to help fund other patients needs . . .everything from something as simple as shower chair . . . to support groups . . . to respite grants. Please make a gift today and make a difference in the life of someone living with ALS. Sincerely,
Combined Federal Campaign number CFC # 69097
Florida’s ALS Clinics To Serve More Patients $1 Million State Grant Secured By Florida Chapter To Improve Patient Care
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fter months of hard work, The ALS Association Florida Chapter, led by Chapter Board Member, Wendy Bitner and President and CEO Kim Hanna, secured $1 million in state funding for ALS multidisciplinary clinics located at Mayo Clinic Jacksonville; University of South Florida, Tampa; University of Miami, Miami; and University of Florida/Shands, Jacksonville through the BitnerPlante ALS Initiative. In recent years, there has been a paradigm shift in the method of healthcare delivery to ALS patients. ALS multidisciplinary clinics cater exclusively to people with Lou Gehrig’s Disease. At an ALS multidisciplinary clinic, patients receive comprehensive care from a team of specialists at one location and on one day, known as clinic day. The team typically includes a neurologist, pulmonologist, rehabilitation medicine physician, social worker, occupational therapist, speech therapist, respiratory therapist, specialized nurse case manager, physical therapist, dietitian, psychologist, palliative care expert and Chapter liaison. Multidisciplinary clinics coordinate care and interface with the primary care physician, local neurologist, and community-based services.
Even though ALS is currently incurable, studies show that ALS patients who attend an ALS multidisciplinary clinic:
i.e. telemedicine for patients who face financial, transportation, and/or physical barriers in attending clinic.
• Experience improved quality of life;
To find a certified ALS Clinic in your area: go to: www.ALSFloridaClinics.com.
• Receive more evidence-based treatments;
To tour an ALS clinic in your area, call 1-888-257-1717.
• Receive more aids and devices to manage the activities of daily living; • Have a longer survival rate. In fact, beneficial effects are derived from even a single visit to a multidisciplinary clinic, suggesting better coordination of care. Patients attending multidisciplinary clinics had fewer hospital admissions and shorter inpatient stays than those receiving community-based care. Previously, Florida ALS clinics were only serving 49% of the patients in our state. This was due in part to lack of clinic capacity and financial resources to serve all patients. Currently, there is a growing list of ALS patients, numbered in the hundreds, waiting to be scheduled for a clinic visit in Florida. This funding will have an immediate effect on people living in Florida by increasing the number of monthly clinic days offered and/ or improving service delivery methods,
“Even though I was familiar with the ALS clinic model because of my husband Dave, it was attending a Hope and Help Tour that really showed me how critical attending clinic is for an ALS patient. I knew then, that we need to make sure that all patients receive the help they need, and I am going to work to make sure that is possible.” Wendy Bitner, Board Member, The ALS Association Florida Chapter
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i http://www.mayoclinic.com/health/telehealth/MY01693/METHOD=print ii Telemedicine and Bioengineering Laboratory, IRCCS Centro Neurolesi “Bonino-Pulejo”, S.S. 113, Via Palermo, C.da Casazza, 98124, Messina, Italy, iii Neurology. 2013 Feb 12;80(7):670-6. doi: 10.1212/WNL.0b013e3182823361. iv http://stroke.ahajournals.org/content/34/12/2951.long v J Neurol Neurosurg Psychiatry. 2006 Aug;77(8):948-50. Epub 2006 Apr 13. vi http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2077622/ vii http://www.neurology.org/content/73/15/1227.full viii http://www.neurology.org/content/73/15/1227.full ix http://www.neurology.org/content/73/15/1227.full x http://www.neurology.org/content/73/15/1227.full xi http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2077622/ xii http://www.neurology.org/content/73/15/1227.full xiii http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1738639/pdf/v074p01258.pdf xiv J Neurol Neurosurg Psychiatry. 2006 Aug;77(8):948-50. Epub 2006 Apr 13 xv http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2077622/ xvi http://www.neurology.org/content/73/15/1227.full
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A Life of Extraordinary Blessings
Former NFL Player, Derrick Jensen, Talks About His Career and Recent Diagnosis BY ALISSA GUTIERREZ
A
s a kid growing up in Osawatomie, Kansas, Derrick Jensen’s biggest dream was to play football for the local high school team. One of his proudest athletic achievements was playing for the undefeated Class 3A state champion Osawatomie Trojans in 1973. The team went 13-0 that year and recorded seven shut-outs. “I loved football ever since I started playing in the sixth grade in Osawatomie,” said the Pensacola resident. After graduating from high school, Jensen went to the University of Texas at Arlington, where he was a two-time Southland Conference MVP
ers in 1978. He served as the captain of the Raiders special teams for five seasons and contributed a blocked punt, which he recovered for the first touchdown, in the Raiders’ 38-9 win over the Washington Redskins in Super Bowl XVIII. He was also part of the Raiders’ Super Bowl XV championship team. He played with the Raiders for eight years. In 1991, Jensen joined the Seattle Seahawks as a scout. He covered every area east of the Rocky Mountains, and spent the next 21 years determining the strengths and weaknesses of every player, interviewing players and coaches and filling out scouting reports. In scouting, Jensen learned to rely on his gut and ironically, his instincts were also right 21 years later, when he began to notice weakness in his hands in 2012. At the time, he thought it was arthritis, or something related to his years of football. As the next six months passed, he began to suspect that something was wrong.
Derrick and Lisa Jensen and finished his college career with 3,346 rushing yards and was the first player in conference history to top 3,000 yards. Post-college, Jensen was drafted by the Oakland Raid4
“When you grow up in sports, you know about Lou Gehrig,” he said. “And as an athlete, you know your body. When I started experiencing the weakness in my hands, my gut told me this was something serious. I suspected there was bad news coming.” When he flew to Seattle in July as part of his job responsibilities with the Seahawks, Jensen visited a couple of doctors there.
Derrick with the Oakland Raiders Jensen’s instinct proved to be correct once again when he was diagnosed with ALS and was forced to resign his position from the Seahawks five months later in December, 2012. “Right now, the medication that I am on is slowing down the process,” he said. “It’s not a cure, but just slowing it down,” he said. “There’s really no definitive cure. We’ll just keep talking to the doctors and hope for the best.” The diagnosis of ALS wasn’t the first personal challenge of Jensen’s life. In 1999, his late wife passed away in an automobile accident leaving him to raise a 14 year old son, Davis. However, it would be only a few weeks later that he would meet his future wife, Lisa, who was counselor at his son’s high school. “Lisa helped my son and I through a really tough time,” Jensen said, “She gave me
hope and love at a time when I was not at my best. I’ve certainly been blessed that she came into my life. We both always believed our coming together had a greater purpose.” Derrick and Lisa were married last March. In addition to his son, Davis, their family includes Lisa’s children Mikaela, son-in-law Peter, Marra and Lauren Hartley Green. When Jensen received the news that he had Lou Gehrig’s Disease, Lisa immediately began researching ALS and found The ALS Association Florida Chapter. The Jensens’ were connected with Regional Care Manager, Judie Benwick, who provided information and helped them navigate through the often difficult process of managing a disease like ALS. “It’s never easy to receive a diagnosis like this,” Benwick said. “I try to identify the current challenges, then empower each person with as much information and resources as I can and hopefully make a difference in the quality of life that every patient deserves.” Jensen marveled at his life post-ALS diagnosis.
“For twenty-something years, I was on the road for 200plus days a year, and football consumed my life” he said. “I could say I got a bad deal, but in a larger perspective, and in light of all the suffering in the world, I’ve been blessed. I played in two Superbowls, had the privilege to work with some of the most extraordinary people in the game, I have a great son, I’m married to the love of my life and I’m incredibly grateful for the life I’ve been given.”
Jensen was on the field with his family for a special presentation in which he was given his No. 31 Oakland Raiders game jersey by team
On August 29th, the Seattle Seahawks flew Derrick and his family, friend, Joe Franco, childhood friend and Osawatomie resident Ike Brady, to Seattle to honor him during a ceremony at a preseason game against the Oakland Raiders. At the ceremony, Jensen’s son, Davis, raised the 12th man flag on the south end of the stadium. “It’s a nice honor,” he said. “If you’ve ever been to a game there and listened to those fans, those fans are unique. In all honesty, it’s amazing the way the people in Seattle get behind their team. So, just to raise the flag and hear them, that is a fun part of the game. That is something that is very special.” It wasn’t just the raising of the 12th man flag that made Jensen feel special on that night. Prior to the flag ceremony,
Derrick accepting Seahawks jersey
Derrick and his son, Davis owner, Mark Davis, and General Manager, Reggie McKenzie. “I can’t complain or be negative, despite the diagnosis I’ve been given,” Jensen said. “I’m a pretty fortunate guy.” And as Derrick was the 12th man at the Seahawks game that night, The ALS Association Florida Chapter will continue to be a support system for people living with Lou Gehrig’s Disease in our state.
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ALS ADVOCACY u p d a t e More than just a “day in May” BY PATTI STANCO
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t was five minutes before 2:00 pm on Wednesday, September 11, and Lynn Antheil, who is a surviving spouse, and I waited patiently at the District office of Representative Vern Buchanan in downtown Sarasota. I glanced at the muted television mounted on the wall, showing the news of the anniversary of 9-11, and found myself thinking it was a fitting day to exercise our right to meet with a member of Congress. The District Director escorted us back to the conference room. We asked her if she had a personal connection to ALS. She did not. We asked if she knew if the Congressman had a connection. She was not sure. Lynn told her story. With poignant grace, she talked of the cruel timing of the diagnosis coming just days after she officially retired. She talked of her husband continuing to work for as long as he could as a highway construction manager. She spoke of the sleepless nights, the series of physical losses, the gnarled emotions including anger, seething frustration, isolation, and stress, somehow lessened by the support and love of their family and for one another. She spoke of the grief. She shared how she is choosing to stay involved to help others coming along behind her because no one can know what it is like to live with ALS unless you have traveled the path. We felt her husband’s
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spirit in the room, although we did not acknowledge it to one another until much later. Looking back, it was comforting. Then we talked policy. The Director asked, “So what can I do for you today?” I explained we had three priorities we wished to discuss. 1) Request $10 million for continuing the ALS Registry – it is not known what causes ALS and the Registry will help discover what patients have in common and direct research. 2) Request $10 million in funding for the Department of Defense ALS Research Program – military veterans are twice as likely to get ALS as the general population. 3) Co-Sponsor the ”MODDERN CURES ACT” – which is a bill that will expand the number of compounds a pharmaceutical company might research by addressing some patent issues and will help many patients with other diseases in addition to ALS that do not have adequate treatment options. We left our handouts which articulated the priorities in detail and offered to serve as a resource for the office. We invited the Congressman and the office to the Sarasota Walk in April 2014. As we were closing, the Director asked who was opposed to the MODDERN CURES ACT. I said I was not
sure but I did not think anyone was - but I would check on it and get back to her. The next day I was back at my desk and Lynn was on her iPhone; we both sent a short thank you by email. I asked Lynn what she thought. She said she thought it was a productive meeting and clearly the office was interested in hearing from constituents and understanding what matters to them. A few days later, an email popped up on my screen from Lynn. The Director we had met with wanted to share with us that Representative Buchanan would be sponsoring the MODDERN CURES ACT! When Kim Hanna, the Chapter President and CEO, called to thank the Director and the Congressman personally, she asked if anyone else had advocated on behalf of MODDERN CURES. They had not. Thirty minutes of our time made a difference. Imagine what would happen if we could have the same impact with every Congressional office in Florida? The experience reminded me of a fitting saying I first heard in my home state of Michigan. “A snowflake by itself is so small and fragile – but just look what happens when they stick together!” Want to give advocacy a try? Contact Patti Stanco at pstanco@alsafl.org or 813-637-9000 ext. 110.
ADVOCACY VETERANS BENEFITS:
Accomplishments
Advanced historic regulations at the Department of Veterans Affairs that designate ALS as a service-sconnected disease. Veterans with ALS and their survivors now have access to full health and disability benefits, regardless of where or when they served in the military and regardless of how soon after discharge they were diagnosed.
Many Thanks to
The Iron Order Motorcycle Club Tampa for their generous support of The ALS Association Florida Chapter
24-MONTH MEDICARE WAIVER:
Eliminated the 24-month waiting period that people disabled with ALS had to endure before they could start receiving Medicare benefits. ALS is now one of only two diseases for which the waiting period does not apply, and the waiver for ALS is the only change Congress has made to the waiting period since it was first established.
PRESUMPTIVE DISABILITY:
Orchestrated Social Security rule change under which people with ALS automatically meet the medical eligibility requirements for SSDI and SSI payments. This ruling allows people with ALS to access their benefits months or even years sooner than before.
www.ironordermctampa.com
Some of our 2013 Florida advocates - L to R: Karen Shelton, Warren Nelson, Gary Dassatti, Ginna P. Gonzalez, and Scott Welty
2014 National ALS Advocacy Day and Public Policy Conference May 7-9, 2014 – Washington, DC The National ALS Advocacy Day and Public Policy Conference brings together advocates from across the country and from throughout the ALS community for this empowering three day event. Nearly 1,000 advocates will make the trip to Capitol Hill for 500 meetings with Members of Congress and their staff, urging them to join the fight against ALS by advancing policies to bring a treatment for the disease as soon as possible. Won’t you join us in 2014? Go to www.ALSAFL.org. 7
Partners in
HOPE
Statewide Collaboration Provides Critical Patient Care and Services BY ALISSA GUTIERREZ
M
ore than 13 years ago, in 2000, several ALS Association support groups in Florida and the then-named Tampa Bay ALS Association Chapter, joined to become one statewide chapter. Under one umbrella, the newlyformed Florida Chapter would have a larger impact on patient care and research and minimize administrative costs. Since that time, the number of people with ALS requesting help in Florida has grown from a few hundred to more than 1,000 patients served annually. Capacity-building is a method of improving nonprofit effectiveness through collaborations with community organizations with similar visions. This type of collaboration has been an important component in making it possible for The ALS Association Florida Chapter to provide care and services to people living with Lou Gehrig’s Disease in our state. VITAS Innovative Hospice Care, the nation’s leading provider of end-of-life care since 1978, helps people living with medical diagnoses for which there is no current cure to maintain quality of life. VITAS provides quality care for adult and pediatric patients with life-limiting illnesses. Its multidisciplinary teams of caregivers work with patients and families to provide comfort and preserve dignity in the face of terminal illness. But VITAS is much more than that. For eight years, the company has been a valued partner, collaborating with and representing The ALS Association Florida Chapter to bring home visits, needs assessments, care, 8
advocacy, health education and support group facilitation to our patients. At times, when the number of people with ALS registering with our Chapter has increased before resources have been available to add Care Services staff – VITAS has stepped in to fill the gap. “Our partnership with VITAS is an example of VITAS’ true community spirit and the power of collaboration. They bring their resources, including both people and funding, into the partnership for the benefit of the ALS community,” said Kim Hanna, President and CEO of The ALS Association Florida Chapter. “We really could not serve the number of patients that we do without their help and support.” VITAS Senior Vice President of Operations Mary Zalaznik added: “We are proud to support The ALS Association Florida Chapter in its important mission of assisting patients with Lou Gehrig’s Disease as well as their family members and other loved ones. This partnership is a testament to VITAS’ long-standing commit-
ment to apply our knowledge and resources to meet the needs of the communities we serve.” As part of this partnership, VITAS social workers, counselors and nurses have been trained by the Florida Chapter to act as ALS Association Regional Care Managers to assist with our patient services. Currently, VITAS provides the Chapter a co-facilitator for five Resource Support Groups from Jacksonville down the east coast to Miami and west to the Orlando area. Also, the VITAS social worker, counselor and nurse become ALS experts, advocates and educators on the broader VITAS care teams. “Having the continued support of VITAS has helped our Chapter to further our ability to empower the ALS Community and families to live fuller lives,” said Jessica Bianchi, Regional Care Manager for The ALS Association Florida Chapter, who works closely with VITAS staff. “With this collaboration VITAS demonstrates the utmost compassion, care and support to patients and caregivers throughout Florida!”
A Summer of
速
Baseball
The Florida Chapter continued our partnership with The Tampa Bay Rays and Minor League Baseball teams around the state, to spread ALS awareness, including awareness of the National ALS Registry and the connection between ALS and military service.
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Walk
2013
to Defeat ALS
THANK YOU TO ALL OUR TEAMS, FAMILIES AND SPONSORS!
Brumos Companies
Crovatto & Edwards Family Dentistry
Key Buick-Hyundai
The Parts House
Edyth Bush Charitable Foundation Inc.
D & D Garage Doors
GrayRobinson, PA
James N. Rudolph, PA
Ocean Conversions & Mobility, Inc.
WheelChair Vans of Florida
Wilde Productions, Inc.
C & C Insurance, Inc.
2013 Top Fundraisers Sarasota: Clyde Hicks $8,629.00 Ft. Myers:
Hilde Heard $7,381.00
Greater Tampa Bay:
Michael Flannery
$10,000.00
Jacksonville: Alecia Jones $27,900.00 Orlando: Matt Auker $6,160.00 Palm Beach:
Harold Greenberg
$32,629.00
South Florida: Linda Aversa $12,997.00 Tallahassee:
Republican Party of FL
$17,254.00
2013 Top Teams Ft. Myers Virtual Hilde’s Herd - $7,631.00
Jacksonville TEAM BRAD - $41,215.00 Scott-McRae Group Tip’s Trotters - $29,657.40 Project 2-4-20 - $27,950.00 Greater Tampa Bay Miles for Michael - $16,015.00 Doc Welt’s Warriors - $15,640.00 Friends of Panama Canal Museum @ Gatorland - $7,060.00 South Florida Team Larry Fein - $15,102.00 FPL Team - $11,616.00 Deb’s Boarding House and Cafe- $7,371.00 Orlando Nina’s High Rollers - $17,677.00 Brevard Support Group - $12,733.50 Cupcakes & Ninjas - $9,039.80
Sarasota Hicks Oil Company - $11,249.00 Carole’s Angels - $8,740.00 Team Kathy Cannistra - $7,292.30 Tallahassee Republican Party of Florida Walk for Dave Bitner - $18,199.00 Walkin’ For Flossy - $9,243.33 Anne’s Angels - $3,780.00 Palm Beach Penguin Team - $32,729.00 Ade’s Allies - $23,515.00 SpenWen - $16,440.00
Thank You for Supporting Th
12
he 2013 Walk to Defeat ALS!
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Gifts to The ALS Association Florida Chapter We would like to thank our generous donors for their support. These contributions help us provide vital patient services, programs, and fund worldwide research.
MEMORIAL GIFTS
and Norma Cambio, Jo Ann Chapman, David and Judith Highlands, Gifts made in memory of a friend Rocky Point Women’s Golf Associaor loved one. Gifts made between tion, Eileen Zilvetti 1/1/13-8/31/13. Robert Colpitts - Christopher Brumm, Tom Ostertag, Eric Smith Phyllis Conklin - Pat Bedingfeld, Erasto Abreu - Kim Parker A.L. and Cathlyn Benoit, Yaffa Achizvi - Liora Peleg Jeanne and Vaughn Cornele, Gary Aiello- Edward Sisk James and Billie Hale, Marjorie Ainsworth - Byram Hills CenClarence and Arlene Jordan, tral School District Office Staff Maureen Jordan, Duane and Patricia Lorraine Anderson - Lynn Romano Keough, Georgia Larke, Irving and Richard Anderson - Lorraine Schwab Martha Layne, Herb and Ruth LieberBetty Jo Babic - Charlotte Frye, man, Richard and Phyllis Little, Harriette Rumbaugh Patricia Lochner, Frank Mann, Diane Bailey - Amelia Medeck Leah Barber Blow - Dorothy Bradshaw George and Jena Mann, George Mann, Gloria Messman, Charles Beezley - Phyllis Elser, Thomas and Dorothy Orthman, Jacqueline Little, Janet Mattix Barbara Piatak, Leland and Linda Joan Belczyk - Althea Lennox Ritter, Nancy Roberts, Bill and Karen Richard Besida - Carl and Eleanore Rumpf, Mr. and Mrs. James Savino, Ayres, Franklyn Jackson Jacqueline Bigelow - Charles and Vilma Richard and Barbara Scott, F.M. and Jeanne Shaw, Blish, RuthAnne and Rick Evans, John and Eleanor Sheppard, Carol Hoover, Richard Hunziker and Mr. and Mrs. Phillip Strazis, Lucille Chamberlain, Doris Miller, David and Sharon Till, Carolyn VermiFred and Shirley Sampson, Sheila Verlya, Margie Willis, Nancy and Dennis non, Carmelo and Melissa Vincifora, David Bitner - Andy Gardiner Campaign Yavorsky, Philinda and Ernest Young Barbara Cummings - Lauren CumAccount, Edwin Hooper mings, Tim Cummings Mark Bjorklund - Ken and Donna Natalie Currie - James McNulty Burdzinski, Rachel Gunther, Shelly Dansky - Florence Berg, Valerie Gunther Sonny Bloomfield, Anita Greenberg, Peggy Borek - Gulf Middle School, Milton Jacobowitz and Shirley Perla, Robert and Susan Peters Edward Kourt, Marv and Gert SilverRichard Brooks - Kylee Kelley, gold, Dr. Jerome and Susan Weinstein Lisa Tiberii Rose DeFranco - Mark Brimer Brent Brown - Roberta and Stan Georgia Degrandis - Angelo and Leibowitz Susan Mara R.P. Brown - Ida Brown Rosalie Deitchman - Percy and Walt Burger - Robert Burger Shirley Allen, Irene Atlas, Barbara Linda Bussell - Walter Brown, Jr., and Ronald Berg, Marilyn and George Tom Fuchs, Sheryl Hummel, Berger, Elaine Bergman, Jean Bier, Caroline Jones, Michael Majette Stacey and Richard Block, Lisa BromSteven Cameron - Debbie Bloemsma berg, Fidel and Merly Cruz, James Carson - Sandra Barkley, William and Ellen Deane, Leon DeJohn Denham, Susan Long, itchman, Ira and Minna Dornfeld, Philip and Sara Panciera and Laura Barbara and Dickie Fakier, Esther Dawley, Wayne and Carole Simoneau, Falk, Manny and Janet Feldman, Mary Lou Sylvia Alan and Florence Fidell, George Cythnia Caruso - Patricia Minshall and Arlene Fields, Dr. Richard and Joseph Charette - Kathleen, Michael Deborah Fine, 14
Evelyn Greene, Peter and Lorraine Kane, Irving and Judith Kaufman, Alan and Barbara Kurfirst, Ronald and Cathy LeBouef, Ken and Debby Maisel, Thomas Majdanski, Kevin Merse, Judy and Shelly Minkon, Sam and Carole Novick, Tom and Karen Pizzo, Susan Porter, Audrey and Merwin Rosenberg and Family, Alex Rosenzweig and Barbara Greenvald, Stan and Marilyn Schiller, Selma Selnick, Jean Shornick, Shari Simmons, Kenneth Slutsky, Patricia Williams William Dell - Patricia Dell Oliver Demarco - MonaLin Solan William Dudley - Michael Higgins Cecil Edge - George and Isabel Adams, Rebecca Berson, Richard and Lee Ann Borseth, Electric Supply of Tampa, Valerie LaBroski, Ruth Maund Don Edgerly - Shirl Edgerly Martin Firestone - Ronald and Shelley Cohen, Judy and Marvin Kuritz Francis Flannery - Dr. Michael and Terri Flannery Mary Flannery - Dr. Michael and Terri Flannery Andrew Frazier - Carl Bradford, Centro Cantina, Inc., JJ’s Cafe & Bar, Philip Martino and Christy Soberanis, Julie Nail, Quarles & Brady, LLP, Kelly Skalicky, Southstar Energy Services, LLC, Stearns Bank, N.A., Joseph Vigliarolo Arlene Frey - Treasure Isle Mobile Home Park, Inc. Mary Frey - Clayton Snare,II Edward Friedman - Michael Bruno, Michelle Carmen, Lori Friedman, Robert Friedman, Judith Fries, Gayle and Danny Greenspan, Arlene Syetta, Uniondale Teacher’s Association, Gary Zucker Patricia Gauthier - Philip and Michelle Byerly, Felipe Catasus, Jr., Wendy Cutler, Dr. Ernest and Charlotte Doten, Harvey and Sandy Hartman, Jeri Illsley, Herbert Lozott, Leonard Schenkman Arthur Gee - Janine Myrick Mary Gessells - Leah Wilson
Robert Gideons - Harold and Betty Sue Doty, Merrick Hellyar, Sue Shepanek Jacobs Robert Gosdeck - Johnny Springer Alex Gosling - Carol Gosling, Barbara Lasher Quentin Gray - Stanley and Penny Wright Kenreth Greaves - Patsy Rainford Dr. Donald Guber - Bonnie Bullard, Kathleen Gaudiano, Mary Langley, Brenda Lord, Tom and Barbara Nelson, The Ladies Golf AssociationInterlachen Country Club Carola Gumucio - Sharon and Philippe Bilger, Adiiza Bucary, Eric Carmona, Carlos Casanova, Jr., Myriam Dedrick, Carlos Egipciaco, Kelly Ferraiolo, Doreen Fischer, John Gallagher, Celina Gumucio, Dr. Cesar Gumucio, Dr. Nelson Gumucio, Tatiana Gumucio, Dr. Mauricio Gutierrez, Dr. Jack Hirschfeld, LuAnn Hoellen, Sylvia Jones, Genevieve Komorowski, Nancy Lazar, Clarissa Muniz, Jessica Otto, Dr. Taras and Natalia Roud, James Schneider, Dr. Kathleen Siren, Kimberly Sundook, Renee Tyler Frank Gwynn - Larry and Pat Graber Dennis Hale - Dr. Armen Asherian, Kelly Cooke, Richard Curran, Paula Green, Bruce Nable, Abraham Roiss, Victoria Stiles, Courtney Sutherland, Karl Ziarko Dr. Ralph Harper - Drs. Ray & Mary Bonhomme, Renee Finkelstein, Peter Flad, Florida Institute of Technology, Barabara Gillis, James Harper, Vicky Knerly, Juanita Mills, Daniel Riding and Jennifer Morin, John and Goldie Morrow, John Peters, Terry Raney, Brandon and Shirley Stephenson and Family, Keith Wood John Haug - Chelsea Haug Tim Hawkins - Sandra Hoover Dorothy Henry - Joshua Mora Vivian Hernandez - Vivian Lane Clyde Hicks - Darrell and Wendi Adkison, Stephanie Allen, Assurant Foundation, Christa Bass, Richard Buckner, Jr., Venessa Collins, Mike Delaney, Franklin Dotson, Marty and Gayle Graham, Steven and Ruby Handley, Jennifer Hartt, Hauptmann & Thompson Co., Charles Hicks, Alex Leschuk, Scott Martin, Jerald and Raynelle
Newberry, Nancy Palmer, Reba Peters, Silent Salesman Advertising Specialties, Charles Wiley Jutta Holland - James and Anne Bernklau, Dick and Gertrud Meining, Donald and Mary Nelson, Sam and Karin Schiphorst, Harrison and Lois Steans Bonnie Jorgensen - Chris Bahnsen, and Jill Jorgensen, Nic McMillin and Jane Jorgensen Jerry Kelley - Century Family Practice Rosemary Kilhoffer - Jerry and Julia Rudy James King - Susan King Carolyn Lambert - Mark and Karen Baker and Family, Bud and Judy Cherry, William & Marilyn Cook and Anthony Cook, Dan Crawford, Christopher and Juliane Dandrow, Nat and Debra Doliner, Nora Dwyer, Mary Fisher Holmes, Thomas and Patricia Fox, Sherrill French, James and Mary Anne Hall, Mary Hartney, Joe and Barbara Hudson, Martha Johnson, Elliot Kargauer, Marla Lambert, Connie Lavecchia and Mark Boswell, Jeffrey and Natalie McCulley, Jean Orlando, Joanne Orlando, Sam and Joanne Orlando, Gary Otten, Harold Sigler, Kathleen Troiano, Joan Walker Ralph Lazzara - Suellen Smith Lynn Lee - Will Evans Theresa Lee - June Chin, Lucille Jones, Paula Lee, Tyrell and Diana Lee, Erle and Gloria Mooyoung, Victoria Smith Penny Lehman - Maureen Cosyns, Sheila Wagner Niki Lemonias - Mary Jo Ketter Ronald Lindskog - Evan Finley, John and Elaine Heintz, Michael and Jeri Layfield Daniel Lipman - Sheila Lipman Linda Lloyd - Randy Weisheit through My Tribute Gift Foundation, Inc. Patricia Loving - Jean and Gary Ricketts John Mallinger - Lourdes Mallinger Susan Manis - Joy Busby, Frank Centolella, Steve Creech, Alvin Feller, Sonia Fiddler, Thomas and Sandra George, Susan Grohmann, B. Frances Herbert, Joel and Jennifer Houston, James and Elpinicky Jelett, Henry Morris, Palm Beach County Bowling Association, U.S.B.C., PBCUSBC Women’s Bowling Association, Inc.,
Rexnord Industries, Inc., Elaine Roberts, Gary and Brenda Rodenbeck, Whiz Kidz South, Inc., Terri Wirth John Masciantoni - Susan Arkin Lester Maxwell - Ashley De Avila William Maybrook - Sharon Maybrook Howard McCarthy - Gladys Curtis, Sherry Diamond, Marianne Westall Douglas, Beverly Ellis-Brown, Ann Mako, Adrian McCarthy, Helen McGee, Dorothy and Gene McKie, Ilse Reiner, Trudy Selleck Gerald McComb - Caribbean Isles Homeowners Association, Inc. Mary McDole - John McDole Ronald Medders - Bill and Judy Cook, Lake Wales Charter Schools, Lorry Mitchell, Jr., Jean Stinson, The Wickie Co. Dorothy Meeker-Dugas - Jennifer Adams, David Bahler, Natalie Berzajs, Pennie Braud, Marcie Buckle, Irving Coupel, Betty Crawford, Christy Diercksen, Linda Dornier, Dr. Linda Dove, Jennifer Goodenow, Mark and Diane Haskell, Ron and Evelyn Johnson, Linda Kruschel, Lydia McClelland, Denise McDermott, Eva Medved, Phil and Janice Meeker, Pam Molander, Linda Phillips, Jay Roesch, Joseph and Lana Rohal, Pamella Sharrad, Koen Suidgeest, Tracey Torello, Dainna Tully, Steve and Lisa Wagner, Lynn Wiescholek Marie Mizera - Nancy Hartney Philip Monica - Peggy and Frank Valenza Sylvia Morgan - Tara Pisano, Diana Pollard, John and Ruth Reina Daniel Morrill - Thomas Pinta, II Ernst Mueller - Lakewood Presbyterian Church Tom Muessel - Helen Muessel John O’Day - Jane Sandhuas-Packer and Jeff Packer Richard Oliver - American Legion Riders Post 138 Clyde Padgett - Itta Julie Greathead Arnaldo Pagotto - Cecilia Pagotto Bruce Palmer - Whitney Deblock-Null, Jennifer Eustice Mark Pero - Janice Pero Rita Ratcliffe - Maria Gaviria Deborah Renney - David Selznick Jeannette Rich - Russell Lipford, Jr. Carole Richardson - Douglas and Marianne Bender 15
Sue Ricketson - Ida Brown Robert Ridge - Audrey Ridge Roseann Rosenthal - Paul and Lenore Hirsch Spencer Rosenzweig - Leon Deitchman Arthur Ross - Marilyn Ross Robert Routh - Rebecca Routh Joyce Rowback - Ernest and Mona Masters David Schwak - Sandra Hoover Richard Scott - Shawn Darmody Faye Scruggs - Susan Pon Larry Scruggs - Susan Pon Robert Seidl - Judy Seidl Barbara Seniow - Sharon Schutter, Leisa Plummer Sharon Schutter Dae Sun Shin - Jung In Kang William Skelton - Janice HeimerValoppi Nancy Spring - Patricia Lynn, Robert Marks, Teakwood Village West Social Club, Inc. Rob Squires - Randall Squires Ellen Stansfield - Sandra Albert and Barbara Martens Arthur Stein - Miriam Rich Dorothy Steinert - Dennis and Carolyn Donohue Bill Swan - Susan and Anthony Graziano, Doreen and Tony Stamegna Ruth Tommasini - Joseph Tommasini Eileen Tortorice - Rosemary Bohn, K. Arne and Peggy Booth, Helen Chatlain, Lucille Clancey, Collier/Lee Duplicate Bridge Group, Duplicate Bridge Group of Southwest Florida, Lilian Fisher, Vincent and Nancy Garbo, Mary Gately, Patricia Newman Norman and Irene Powers, Marilyn Sherman, C.H. Twining, Jr. Bruno Tozzi - Elaine Abdan, Mary Barnes, Maria Bertorelli, Barbara Colleluori, Mark and Mary Colleluori, Kevin Cunningham, Kevin and Kathleen Cunningham, Leo and Sue Hines, Martha Izquierdo and James Zuniga, Paul Mack, John Pelersi, Donna Penzarino, Nancy Ribbler, Jorge and Margarita Ruiz, Maria Scarimbolo and Lucia Sbuttoni, Rebecca Waserstein and Jorge Hernandez Vicki Tremble - Theresa Cook, Rita Crockett, Christine Derwitsch, Patricia Janssen, Roberta Masse, Brenda McCallum, Shannon Morgan, Kim O’Kane, Caroline Piper, 16
Rebecca Ray, Barbara Seminick, Rob Zeleniak Jeffrey Tysenn - Mary Tysenn Raymond Upchurch - Ann Morgan and Bill Moore Reid Vannoy - Heidi Aaron, Kathleen Andrews, Anne Ashby, Gretchen Bertolet, Tana Blair, Pamela Brannon, Jennifer Britt, Steve Bruce, David Charles, Julie Clark, Mary Coburn, Betty Collier, Catherine Cook, Polly Corless, Trelles D’Alemberte, Kimberly Damron, Mary Dodd, Vicky Droze, Allison Eagen, Jayme Featherstone, Ann Galatis, Lillian Genskow, Nancy Gresko, Margaret Griffin, Mark Griffin, Tony Guillen, Alison Harmon, Jennifer Hickman, Dr. Darby Hiller, Institute for Intergovernmental Research, Clay Jester, Karen Kline, Amy Knight, Debbie Koyle, David Landis, Karen Lewis, Donna Lindquist, Jacqueline McDaniel, Sandy McDonald, William McGuire, Linda McNeal, Linda Morris, Susan Morton, Denise Newman, Valynda Nichols, Brenda Olsen, Dr. Brian Porto, Sherry Settles, Andrea Simpson, Chris Snow, Amanda Starr, Nancy Stedman, Susan Stetson, Catherine Suber, Susan Till, James Van Horn, Dr. Dana Vannoy, Karen Vogter, Anne Wadian, Jay Wallace, Ardyce Williams, Jennifer Williams, Carol Wolfe, Thomas Zaccardi Patrick Waters - Jean Tucker, William Young Anne Waterstraw - Glen and Karolyn Spencer Dorris Weise - Alan and Marcelyn Cragg Dorris Weise - Network for Good
RIDE TO DEFEAT ALS & WALK TO DEFEAT ALS GIFTS Ride and Walk gifts of $250 or more made between 1/1/13-8/31/13.
1110, Inc. Dr. Nick Abid Ability Medical Supply, Inc. Tunisia Abraham Joyce Abrams Accredited Underwriters, Inc. John Adams AIG Matching Grants Program Air Mechanical & Service Corp. Greg Akins James Allegro Dr. Philip Altus Anni Altz Kathleen Altz Orrett Anderson Stephen Antosz Illena Armstrong ATP Tour, Inc. Atrium Wallcoverings, Inc. Joseph Audie, Jr. Matt Auker Tyler Auker Automated Building Control Systems Joseph Aversa Linda Aversa Ron Avery Axis Global Systems, LLC Phillip Babbitt Ted Babbitt David Bachan Paul Baertsch, Jr. Elbert Baker, Jr. Shelly Baker Bank of America Matching Gifts Stephanie Barner Johnny Barnes Barnes Drug Stores of Valdosta, Inc. Adam Barrett Stanley Barry Sean Barth Cheri Bates Carmen Battaglia BBG CCE Brian Bennett Ellen Benzon Stanley Berger Terrisa Bernard Stephen Bershad Dr. Roger Bertholf
Beta Sigma Phi DBA Alpha Gamma Nu Big Bend Timber Service, LLC Kenneth Bjelke Fred Blatchford Blessed Trinity Catholic Church Bloomingdale’s, Inc. Florida Blue Boar’s Head Provisions Dane Boggs Bolles School Nicole Bollinger Thomas Bonasera Bono’s At JTB, Inc. Ashraf Boutros Melissa Boyd Yves Boyer Dorothy Bradshaw Louis Breeding Bright House Networks Catherine Brinton Scarlet Broome James and Ruth Brown Kenneth Brown Lou Ann Brown Susan Brown John Browning Brumos Companies Adam Buchwald Marc Buchwald Steven Buchwald Stephen Buente Patti Burger Jody Byers C & C Insurance, Inc. Linda Camp Capitol Solutions, LLC Capstone Consulting, Inc. Markella Carney Louis Carron, Jr. Laret Casella Rita Cassady Brian Cavolt Gregory Celestan Central Florida Oral Surgery, PA Dr. Joseph V. Cerami Dianne Chalmers Synthia Chambers Bill Chappell Check Point Software Technologies Mac Chen Lily Cheng Chevron Humankind Matching Gift Program Julia Chicoski Sam Childers Daniel Ciez
Graciela Clark Macdonald Clark Collins Manufacturing, Inc ComForcare Senior Services James Conforti Scott Conner Bailey Chestnut Partners Cornerstone Parents & Students Jose Cornide John Costas Countryside Ford Countryside Mazda Dixie Couts Donna Covert Charles Cowin Erwin Coyner CPF Investment Group, LLC Craftworks Foundation Wendy Craven Mark Crawford Peter Crawford Gary Crayton Creative Energy Unlimited, LLC Rene’ Crews Dr. Steven E. Crovatto Crovatto & Edwards Family Dentistry German Cruz, Jr. Marie Culbreth Betty Cummings Tim Cummings Collette Cunningham Jeffery Curry Leonard Curry Stephanie Curts Susie Curts Rebecca Cushman D & D Garage Doors Barbara Dagley Jeanette Dalton George Daly Samantha Darrigo Robert Dash Gary Dassatti Cindy David David Development David Singletary Insurance, Inc. DCP Condominium Association, Inc. Martha De Caussin Christian Deater William Dechard Warren Dedrick Jodi Dedyo Sonya Deen Robert DeForest Roger DeHart Cam Deiter Cheryl Denham
Katharine Dennis Megan Dennis Frank Derango John DesRuisseau Sherry Diamond Dick Peddicord and Company, Inc, Tony DIMare Denise DiMare Natalie DiMare Paul DiMare Paul DiMare, Jr. Dana Dittman Stuart Dix John Donaldson Adam Doner Dave Dooley Inge Doria Lynne Dougherty Jesse Drake Pauline Dubin Sean Dugan Pam Duke James Dunn Denise Eberly Margaret Edmiston Edyth Bush Charitable Foundation Maria Ellis Wendy Elston Brad Emmons Michael Emmons Michael Ernst Excavation Point Inc. Fail Properties Lloyd Fay Dr. Ross Federgreen Joseph Ficarrotta William David Ellrich and Becky B Moore Fund at Fidelity Charitable Gift Fund Fill the Bus Tampa, LLC Susan Filskov, PhD Debbie Finke and Norman Raven Katherine Fiore David Fisher Neal Fisher FJS Inc. Michael Flannery, MD Oralia Flores Florida Capital Bank Florida Crystals Corp. Florida Delta Chapter of Phi Delta Theta, Inc. Florida Surplus Lines Service Office Frank Folmar Dr. Elias Forma Ferdinand Formoso D. O., P.A. Alphonse Fortier
17
Maureen Slattery Miller Care Fund Providing funds for home modifications, transportation, and other necessities of patients in financial need.
Richard Berka Tim Cummings The Krismanth Family The Murray Family Gift Fund through the Fidelity Charitable Gift Fund Robert Miller Patricia and Thomas Reilly Ann and Earle Traynham
Every attempt has been made to ensure the accuracy of each gift and each name. If we have made an error, please accept our apology and let us know by contacting Gabby Harrison at: gharrison@alsafl.org.
Josephine Foster Adrienne Fournier Dr. Arthur Fournier Dr. Suzanne Fournier Fowler White Boggs Banker PA Mark Francl Scott Frank Alfred Friedman Fritzi and Herbert Owens Family Foundation Brian Fulwider Deb Fulwider Cheryl Gaeta Eileen Gaffney Melvin Gale Joan Gambro William Gardner Lynn and Gary Garner Brian Garrow 1st Place Sports Cheryl Geiger Germantown Realty Investment Group Larry Gilbert Justin Gimelstob Paul Glassburn MaryJane Glover-Dodds Sam Goforth Laura Goldblatt-Jessen Andrew Golden Marion Golden Irwin Goldfarb Francine Gonopolsky Sandra Goode Herbert Gordon, Jr. Dr. Michael Gordon Denise Gorham Rhonda Grable Brian Gracely Robert Gracey Lisa Graganella Diane Graham Lewis Graham, Jr. Grainger Matching Charitable Gifts Program Leslie Gray GrayRobinson, PA Brandee Graziano Mary Lisa Gredler Martin Greenberg Michael Greenberg Sharon Greenberg Lynn Greene Weinstein Albert Groccia Ronald Grodsky Dr. Karen Gross John Gunlogson Alissa Gutierrez
Julius Guttman Wendi Guyer Dr. Patrick Hale Mary Halford Francis Hallman, Jr. Alvin Hamlin Teresa Harden Robin Hardin Hargreen Enterprises, LLLP Courtney Harris Karen Harsh Kris Harwell O. Hawkins Hildegard Heard David Heintz Adam Helfant Scott Helfrich Steve Herman Kent Hermes Dorothy Hicks Lisa Hicks-Waggoner Monica Hillin Michael Hinn David Hodges Richard Hofstetter Sukanya Holcomb Barry Holliday Vickie Holmberg Peter Holtermann Bob Hopfenberg Raymond Hopkins Jennifer Howard Amylynn Hoyt Gail Hoyt Chien Hua Hsiung David Hull Greta Hummer Arthur Hutchins James Hutchins, Sr. Richard Hutchins Hutson Companies, LLC Joseph Hyer ICPA, Inc. Inis Cairde, Inc. Iota Chapter of Alpha Delta Pi Sorority Stephen Irwin Linda Jaffe Manoj Jain Amy James Bill James M. Jarvinen Barbu Jeler Pamela Jellison Jocelynn, LLC Frank Johnson Joseph Johnson Marian Johnson
Gail and Francis Johnston Kris Johnston Alecia Jones Bonnie Jordan Anonymous Sally Joslyn Ann Jurenovich Ira Kaplan Jay Kaplan Moises Kaplan Andrew Keefer Keller, Keller & Caracuzzo, P.A. Keith Kemp Kendall Pain Relief Center Peter Kennedy Kershaw, Cutter & Ratinoff, LLP Key Buick-Hyundai Allon Khakshouri Carl Kilhoffer Nancy Kinnally Thomas Kittle-Kamp Kiwanis Club of Wauchula, Inc. JoAnn Klay Aviva Klein Timothy Knight Brian Knipfing David Koffman Jack Kogan Robert and Stacy Koppel David Koza Jane Kreusler Walsh Marion Kuhns Leonard Kulick Greg Kupperman Diane Kurinsky Edd Lancaster Michelle Landers Helen Lane Stephen Lary Laurel Builders, Inc. Lawrence Plumbing Properties Lawton Chiles High School Melvin Lazar Jason Lazarus Stephan LeClainche Rick Lepley Dr. Theodore Lerner Levin & Papantonio Family Foundation, Inc. Lewy Family Foundation Lex Terrae, Ltd Keith Lincke Blucher Lines Matthew Linky Chris Logan Day Ann Logue Diana Logue
Anne Loiterman Robert London Ramon Lopez James Lose William Lowman, Jr. LPL Financial Matching Gift Program Michael Luevano M. Tarter Transport Co. Leonidas Macedo Harvey Mackler Macy’s Matching Gifts Program Celestino Magpayo, Jr. David Mai Mama Rosie’s Co., Inc. Kayla Manis Lynn Manly Kappe Manuel A-C Manz Richard Margolies Bob Marler Rob Marler Oddrun Marrone Stephen Mattman Mayo Clinic Jacksonville McCabe Law Group, P.A. Russ McCarroll Hugh McCulloh Joanne McDermott David McDonnell Michael McEldowney Allison McGean Patrick McGrath Robert McGruder Karin McHugh Patrick McKenna Kathy McLear McMaster Family Foundation Genie McNally Elizabeth McRae Jack McSherry Marcia Mederos Hobart Meharg Jim Meil Roxie Merrill William Young given through Merrill Lynch Dr. Carolyn Merry MFB Financial Inc. dba The Bailey Group Dr. James E. Midkiff Harriett Miller Lisa Miller Phyllis Miller Dr. Todd Miller Robert Milligan Carol Mills Mike Mills
John Mingus, Jr. Minnesota Life Insurance Company Steven Misotti Mobility Express Mobility Freedom Allen Moczul Sandy Mohler Azilee Monroe Monroe Welfare Foundation Sandra Montgomery Don Mooers Paige Moore Antonio Moreno, Jr. Pamela Morgan Marianne Morrissette William Motley Daniel and Heather Mowrey Andrew Mueller Nancy Mueller Charles Mull, Jr. Richard Mullaney Sherry Murray Karen Muscavage Peter Musselman MYCOR Holdings LLC Jeff Myers Walt Nason James Neill Steve Ness Jerald Newberry Benagh Newsome Jon Newsome Joan Newton Robert Nickerson Jack Nicklaus Gail Nixon MaryEllen Noris-Adams Penny Norrie North American Rescue, LLC Northern Trust Mark Nouss Julie Oakes Patricia O’Carroll Ocean Conversions & Mobility, Inc. Randy Ockman Dr. Kevin O’Connor Joan Oklevitch Paul O’Neil David Oppenheimer Louis Padova Julie Page Jacques Pare Donald Parsons Deborah Patrick Jim Pearson Michael Pembroke Algis Penkiunas
Permobil O.J. Perryman Barbara Petrocelli Liz Pettis Stephan Pettit Gregory Pichardo Kristina Pickens Pink Sneakers Productions, Inc. Martha Plesher Wray Plogher Nancy Poe Jeptha Pope Nancy Pope Potamkin Hyundai, Inc. Michael Powell James Pressly, Jr. Rebecca Price Joseph Profaci Mario Pucci Diana Quinlan Racon’s Friends Jake Raiken Mark Ramos Jacob Rappaport Michelle Ratthe Todd Rauchwerger Katherine E. Egolf Foundation within the Raymond James Charitable Endowment Fund Martino Family Foundation within the Raymond James Charitable Endowment Fund Rick Reeby Dr. James Reed Julia Reed Carol Reese James Schauweker Memorial Fund at Renaissance Charitable Foundation Inc. RespiCare of Central Florida RespiCare of South Florida Robert Reynolds Lana Rinaman Danielle Rivard Jeffrey Roach Mark Roberts Eric Robinson Rock by the Sea, Inc. Roger Roddy Brett Rogers Adam and Allison Rohlman Roland Garros Philip Rosenthal Ross Sunday School Class Carl Roston Tod Roy Rosalind Roystone
Murray Rubin Ronald Rubin James Nelson Rudolph PA Joan Ruffier Edward Russnow Ryder System Charitable Foundation Marcel Sablan Sam Salem Betty Sanders Mark Sanders Debi Sauls Dalton Saunders Elizabeth Scanlan David Nelson Marqueta Schauweker Carol and James Scheffer Neil Schriever Fred Schumpert Adam Schwartz Scott McRae Automotive Group, LLLP Meghan Serrano Shane-Erin Shelton Paula Shields Virginia Shields Shoulder Fun USA LLC Alyssa Shutty Andre Silva LeAnn Silva John Skelly Tom Slade, III Tim Sleeth Ann Smedberg Jane Smith Stephanie Soler Chris Sondergaard Stuart Soroka Paul Sorrentino SOS Global Express, Inc. Matthew Spaier Theodora Spencer Tom Spencer Steven Spooner Amy Spracklen Copytronics Information Systems Shirley Stallings Michael Stambaugh Jerry and Darlene Stanton Star Farms Corp. Adam Stein Samuel Stephens, III Sarah Stephens Michael Stern Janet Stevens Larry Stewart Kathleen and DeWitt Storm Emma Strong Student Housing Solutions
James Styring Suncoast CPOA Suncoast Pine Shavings, Inc. Timothy Sweeney Ellen Swenson Richard Swinson Barry Switzer Tampa Honda Land TelecomPioneers Florida Chapter #39 Scott Thayer The Benjamin School Alex and Caroline Graham Charitable Fund at The Community Foundation C & H Graham Family Fund at The Community Foundation The Food Group The J.M. Rubin Foundation The Parts House The Regency Group, Inc. Thomas and Mamie Houser Charitable Foundation Maggie Thompson Tyler Thompson Becky Thomton Anders Thoresen Bonnie Thorne Thun Family Foundation, Inc. Thylan Associates, Inc. Donald Tormey Trinity Fellowship Inc. Len Tucker Robert Tudi UBS Matching Gift Program University of Miami Ashley Vale John Valentine ValueCare at Home Paulette VanderGraaf Laura VanTil Verizon Foundation Ken Verner VITAS Innovative Hospice Lee Vodra Luke Vuksanaj Kathy Waggoner Dr. David Wagoner Lisa Walsh Shane Ward Anne Warner Graham Warner Todd Warner William Warren, Jr. Patricia and Ray Washington Wauchula Lions Club, Inc. Brande Webb Richard Weisinger Eric Weiss
Robert Welch Cheryl Wells Scott Welty John Wendel Eric Wendler WheelChair Vans of Florida Cassie Whipple Gregory Whitworth Bill Widmann Jeffrey Wild Wilde Productions, Inc Herbie Wiles Matthew Williams Marc Williamson David Wilson Kathleen Wilson Steve Wilson Timothy Wilson Wilton Simpson Campaign Account James Winston Nyle Wiren Matthew Wise Dag Wittusen Beverly Wolfe Gary Wolsiefer Donna Wolski Alan Woltz Women’s Tennis Association Dr. Saul Yanovich Regi Young Victoria Yurso Mike and Liz Zanski Kaliopi Zaronias Robert Zumbado
GENERAL GIFTS
Gifts of $250 or more, made between 1/1/13-8/31/13. Robert McGruder through the Allstate Giving Campaign Joanne Gonseski through the AT&T Employee Giving Campaign Barnes Group Foundation, Inc. William Becker Betty Rosenberg Revocable Trust Christine Bright Diane Bruton Chevron Humankind Matching Gift Program Velva Clark Clerk & Comptroller Palm Beach County Carl and Elizabeth Stieler Fund at the Community Foundation of Greater Sun City Center David C.G. Kerr Memorial Fund at the Community Foundation of Tampa Bay, Inc. Community Health Charities of Florida, Inc. Copperhead Charities dba Transitions Championship Charles Acree through the CSX Corporate Citizenship Susie Curts D’Agostino Foundation Ralph Droz Enterprise Holdings Foundation Escarosa Combined Federal Campaign #0194 Mark Fantozzi Thomas Farrell Florida Public Utilities Gannett Foundation Scott Arntsen through the Give With Liberty Employee Donations Glenn Anderson Memorial Golf Tournament Hiram and Fredia Green Gulf Winds Track Club, Inc. Gerry Harkins Bradley Herremans HTK Holdings, Ltd. Iron Order Motorcycle Club Tampa Chapter, LLC Bradley Lesher Sharon Maybrook Miami Postal Service Credit Union Ingeborg Michaels Wanda Miller
Marie McCasland through MorganStanley SmithBarney James and Jane Murphy Brian Newton Richard Orechovsky Palma Ceia United Methodist Women Estate of Frances Phillips Constance Ray Rays Baseball Foundation Polo Park East Community Rubin Obstgarten Family Foundation James Nelson Rudolph, PA Dean Ruelle Claybra Selmon Suburban Republican Women’s Club, Federated The Walt Disney Company Foundation Jeb Townsend Ronald Turner United Way of New York City United Way of Northeast Florida, Inc. United Way of Palm Beach County Zumba Fitness, LLC
HONOR GIFTS
Gifts made in honor of a friend, loved one, special occasion or event between 1/1/13-8/31/13. In Honor of Leonard Anderson Marilyn Butler In Honor of Nina Auker Karen Gallagher In Honor of Kathleen Blizzard Jerry and Julia Rudy In Honor of Pat Chase Sally Chase In Honor of Tim Cummings Tanya Hicks In Honor of Sandra Diamond Vita Shay-Mastrota In Honor of Margaret Duncan George McInally In Honor of Charlotte Flowers Jill McCullars through Network for Good In Honor of Keith James Karen Gallagher In Honor of Richard Jenkins Susan Chenault Albert and Geraldine Heister Alecia Wagner In Honor of Andrew Knapp Audrey Knapp
In Honor of Chrystine Lose Krista Conn Susan Vega In Honor of Dr. William Luke Paul Stanton In Honor of Harvey Mackler Randi and Robert Windheim In Honor of Beth Maxwell Phyllis Etter In Honor of Larry McCraney Karen McCraney In Honor of Don Morrow Raymond and Vivian Byrne In Honor of Mary Nelson Cape Coral Irish American Club, Inc.
In Honor of Anne Sisk Louis Skinner In Honor of Edward Snow Lisa Paterra In Honor of Anna Tozzi Mary Barnes Marilyn Coffey Barbara Colleluori Mary and Mark Colleluori Martha Izquierdo and James Zuinga Donna Penzarino Jorge and Margarita Ruiz Rebecca Waserstein and Jorge Hernandez In Honor of Gary “Doc� Welt Friendship Chapter No. 1008, Order of the Eastern Star
In Honor of Hosein Ramjohn Shaiana Ramjohn In Honor of Dr. Michael Russin Dr. Paul and Eileen Swaye In Honor of Susan Shallbetter William Shallbetter In Honor of Carole Shearn Jennifer Wagner
LEGACY SOCIETY
Recognizing and honoring those who have advised us of their plans to leave a future planned gift to The ALS Association Florida Chapter.
Peter Sidney Churchill
Richard Nimphie
Marie E. Turianski
Anonymous
Francis F. Oppedisano
Eleanor Weidemeyer
Mrs. Patricia M. Franks
Jacqueline A. Oppedisano
John H. Weidemeyer
Leon Ganung
Becky Rizzuto
Anonymous
James M. Robertson
Kim A. Hanna
Ruth Shively
Sherry L. Murray
Thomas D. Stevens, Jr.
Italicized names reflect members who are deceased. For more information about The Legacy Society, contact Kim Hanna at 888-257-1717, ext. 105 or Khanna@alsafl.org.
IN MEMORY We extend our sympathy and continued support to the family and friends who have recently lost their loved ones to ALS. We remember their courage in living and keep their spirits alive in our memories and hearts. Descedents from 01/01/13-08/31/13.
Marjorie Ainsworth Karl Auserehl Diane Bailey Susan Bakke Olga Bemko Sondra Berberich Jacqueline Bigelow Mark Bjorklund Willard “Woody” Brittain Albert Burgunder Linda Bussell Gene Chapman Joseph Charette Mary Chesser Beverly Christy Robert Colpitts Phyllis Conklin James Conlon Petra Danbe Rose DeFranco Georgia Degrandis Rosalie Deitchman Gloria Diez Florence Dudley Glenda Duncan Sarah Dye Roderick Edenfield Cecil Edge Mary Eisele Robert Evans Martin Firestone Andrew Frazier Patricia Gauthier Danny Garner Arthur Gee Robert Gideons Kathy Giovanetti Wilfredo Gomez Alex Gosling Quentin Gray Kenreth Greaves Deborah Griffin Dr. Donald Guber Carola Gumucio Frank Gwynn Marjorie Hague Dennis Hale Ann Hamp Dr. Ralph Harper, Jr. Lebrone Harris Loree Haugen Nathaniel Haywood Thomas Hedges Clyde Hicks, Jr.
Alba Ocampo Deborah Hill Kevin Ogden Darlene Hinckley Richard Oliver, Sr. Jutta Holland Paul Oswald Nancy Homan Carolyn Otten Alex Hopkins Robert Penrod Helen Horowitz Ion Pitigoi Mickey Ingman Mark Polansky Michael Jacobson Debbie Pratt Martha Jamerson Ruby Ray Keith James Jeannette Rich Cathie Johnson Carole Richardson Frank “Heyward” Johnston David Roberti William Jones Maria Rodriguez Bonnie Jorgensen Joyce Rowback Pierre Joseph Robert Rumph Jerry Kelley Ann Russell Joseph Kim Christine Samuel Jennifer Kingsley Sharon Scarborough Zoltan Kiss Rosalie Schockweiler Dr. Garron Klepach Richard Scott Selma Kron Steven Seniow Carolyn Lambert John Serovinski John Lara Jonathan Shaudys Ralph Lazzara William “Jack” Sidoran Phuong Le Steve Skotzko Theresa Lee Daniel Soyka Penny Lehman Nancy Spring Niki Lemonias Susan Stafford Linda Levsen Marianne Stager Ronald Lindskog Dorothy “Dottie” Steinert Louise Lipinsky Myrtle Stewart Robert Lipp Joan Struble Michael Lubin Jonathon Sutton Irma Machin Mark Teloh Joan Majewski Daniel Toler John Mallinger Ruth Tommasini Susan Manis Eileen Tortorice Doug Marans Vicki Tremble Patricia Martin Patricia Tubergen Grace Marvill Joseph Umosella Beth Maxwell Raymond “Greg” Upchurch Howard McCarthy Joyce Uttan James McCasland Helen VanTine Mary “Delores” McClain Patrick Waters Gerald McComb Natalie Watson-Bouvrette Ronald Medders Dorris “Dodie” Weise Dorothy Meeker-Dugas Thomas White Neva Merckle Robert Whitehouse Kenneth Merrill Annie Williams James Miller Rodger Young Philip Monica Peter Zachary Victoria Monk Sylvia Morgan Robert Neirynck Always in Our Hearts...
A Young ALS Ambassador Francesca Marinello, age 14, lost her great-uncle, Larry Fein, to ALS. She has raised funds for his Walk team ever since. She was recently nominated for the “Golden Knight Scholar, Athlete Award,” sponsored by the Archdiocese of Miami, and had to write an essay about how she became involved with ALS. This wise, beautiful, young woman is also the President of her Freshman class at Chaminade-Madonna College Preparatory in Hollywood, Florida, and a member of the varsity volleyball team. Below is her essay.
Francesca Marinello for my my mom waiting ng outside with years and I was standi grandma’s house used to.” I was five ’re my at you s n wa I tha , different I was five rry looks a little he came out I remember when La en cle wh Un for a, ed esc par t pre “Franc mom said to me However, I wasn’ uncle minor accident. Uncle Larry. My had happened. My leg or got into a ething dramatic ybe he broke his som ma t lize ugh rea tho to I tely died enough old, so, una art ort sm unf s he wa s, I , nth but tle for 15 long mo have been young, a courageous bat mentally inof the car. I might 2004 and fought ease. It not only S in January of a very unique dis AL is h e, wit eas sed Dis gno g’s st renowned was dia u Gehri mo Lo the as to wn him kno k nly r the world, too ALS, more commo cle Larry all ove my uncle, in April of 2005. My family flew Un er the passing of sically damaging. re is no cure. Aft phy the o ly, als is sad t it , Bu S. the man jures you of AL or hon him e to p cur hel to to ld y cou er. I wanted d everything the n Florida Chapt atio family oci my Ass doctors, and trie S at AL ed with The to go through wh e extremely involv nt other families life, I didn’t wa my family becom his d nge cha pletely before ALS. before ALS com ed how they were Uncle Larry was ts to be remember nted ALS patien wa I h, oug thr went called to “seek as humans we are pation. This means ociation t of The ALS Ass munity and partici par com ng ily, Bei fam e.” to abl are called and vulner never give As Catholics we ecially the poor to esp me all, ght of g tau ein has ll-b a better place. It mon good and we ry person nity and make it together the com pier. I believe eve help my commu taught me how to ALS a little bit hap h has wit er ng apt livi Ch a are Florid is life and s who m live gra ’s ple pro L peo g CS a cure and makin that is part of my things, second principle up on trying to find important than a disability. The t people are more even if they have tha py us, hap cio be pre to is es an person.” person deserv ry hum eve the t of tha y e nit iev dig bel an person. “We ances the life and threatens or enh h themselves dignity of the hum tion is whether it ts to be happy wit I can help patien re of every institu er asu apt me Ch the a t rid tha n Flo and -confidence of atio self oci the Ass up S ng AL e bri Chapter is to ticipating with Th ociation Florida n Florida I hope that by par rk at The ALS Ass The ALS Associatio e a disease. My wo end. I hope that hav y can it the en ugh wh w tho even S and an AL never kno by you ed e ect aus aff bec s are currently ch them to love life 30,000 American alone in the patients and tea ed and not alone. S patients are not ts that they are lov ple per year. AL ien peo pat 00 ws 5,6 n sho tha er re Chapt ich is mo wh , day h eac ple are diagnosed average of 15 peo e. reatening diseas against this life-th t figh s to uou tin con ng age. I learned a lot at very you it does. I learned d il rne unt lea ily I g, fam tin r to you or you up and keep figh e it could happen have to get back You never imagin cks you down you h the same thing. kno oug ing thr eth ng goi som p others who are learned that when k to my or them is to hel never give up, I wed me to give bac the best way to hon person and has allo ed one is hard, but ter lov bet a a ing me los de t discovered tha has ma and it , de ma sad y has ver er s wa n Florida Chapt sing of my uncle The ALS Associatio I went to one Although the pas able to be cured, speech and when take away your though ALS is not can en S a Ev AL y. nit ier. eas mu com S a lot talk, but she had AL ’t h ldn wit cou ng She livi ke her battle. patients that ma t talk to us about ien pat many things for ual act they had an . walks I remember was trying to say of my very first ted the words she chair that projec eel wh her on ts. small screen easier for patien er is making life n Florida Chapt ing about until The ALS Associatio talk how ’re of les you at mp re things are exa ple don’t know wh areness. We cancer. Most peo This and many mo rida Chapter is aw eases like breast S Association Flo nown as some dis AL ll-k e we Th as at ’t ls isn goa S AL e due to ALS or the main los of a e ed On enc e. eri eas ple that have exp Lou Gehrig’s Dis you tell them it’s is also hard for peo te anything to ead the word. It people to elimina involved and spr es it’s easier for get etim to Som ple tle. peo nt bat wa eous ir story. rag the cou re sha and e to S enc AL ut there experi ients affected by patients to talk abo families and pat s. We encourage e out of their live eas dis the h e learned wit do spiritually. I hav w mentally and has helped me gro eone er som apt t Ch los I a rid ago ociation Flo y eight years with The ALS Ass ping others. Nearl S This experience did not allow AL e spin on it by hel ily itiv fam pos a my t put tha thankful ething negative and to a family. I am il a cure do unt ld ing how to take som cou try e p eas sto dis at this e. We will never e of ALS. I saw wh one day find a cur close to me becaus ers and hopefully g’s Disease. ir story to help oth hri the Ge d u use Lo y out the help us strike to stop them, ourage others to enc I and ily my fam is found. I hope
Rhonda
Judie
Christine
Our Care Services staff provides help and hope to people living with ALS in our state. Patti
Annie Heran
Aimee
Jessica
The
GIFT
of Education
The ALS Medical Futures Scholarship Fund’s First Recipients
T
he 2013 ALS Medical Futures Scholarship Fund winners are Leslie M. Porter of Callahan, Florida; Debra L. Clark of Sanford, Florida; Katherine L. Ballowe of Saint Johns, Florida and Amanda Auker of Altamonte Springs, Florida. Sherry Murray made The ALS Medical Futures Scholarship Fund possible, in memory of her late husband, Rick. “My husband was a great advocate for The ALS Association Florida Chapter, it
was important to him,” she said. “I was a teacher and education is very important to me. When I was thinking about ways to honor Rick’s memory, a scholarship fund for the children and grandchildren of ALS patients seemed like the perfect way.” Rick Murray passed away in 2007, and Sherry has celebrated his life and his dedication to fighting ALS through a number of activities. In 2010, she co-founded a surviving spouse’s social renewal group called Next Chapter. The group meets every month, giving surviving spouses a chance to embark on the next chapter of their lives, post-ALS. As
well, Sherry is the Team Captain for The Next Chapter’s Walk to Defeat ALS team. “My husband never lost an opportunity to help someone,” she said. “And I know there are so many people whose lives have been touched by this disease who want to give back in some way.” All of the recipients of The ALS Medical Futures Scholarship Fund have been touched by ALS – they’ve lost either a parent or grandparent to Lou Gehrig’s Disease. In addition, scholarship recipients must pursue a career in the medical field. “I was elated that we have four recipients this year for the scholarship,” she said. “Maybe one of them will unlock the mysteries of this disease someday!” For more information about The ALS Medical Futures Scholarship Fund, go to www.alsafl.org.
Rick and Sherry Murray with their son, Mark.
Leslie M. Porter is a senior at the University of North Florida. After graduating with a B.S. in Health, she plans to pursue a Doctorate in Physical Therapy. Her grandmother passed away from ALS in 2009. Watching her grandmother’s brave fight with the disease fueled Leslie’s passion to enter the medical field. Leslie currently works with special needs children at Hope Haven Children’s Clinic and Family Center in Jacksonville.
Debra L. Clark is currently pursuing a second career as a Physical Therapist Assistant at Seminole State College of Central Florida. She spent more than 20 years in Indonesia as a missionary with New Tribes Mission. In 2009, Debbie’s mother was diagnosed with ALS and she returned to the U.S. to help her father as a caregiver. While caring for her mother, Debra became acquainted with a Physical Therapist who helped her family learn how to properly move and lift her mother. Through this interaction, she was encouraged to become a Physical Therapist Assistant.
Katherine L. Ballowe is a senior at the University of North Florida. She is currently enrolled in the Nursing program and has been chosen for a Nursing Externship at St. Vincents Medical Center. Katherine participated in the care of her father, Larry, who passed away from ALS in 2010. She has been active with The ALS Association Florida Chapter’s Walk to Defeat ALS, with her family’s Walk team, Ballowe’s Bunch.
Amanda Auker is in her second year of nursing school at Seminole State College of Florida. She’s in a dual program with UCF, where she is taking classes to earn a B.S. in Nursing. Amanda has always wanted to be a nurse, just like her mother, Nina, who lost her battle with ALS in September of this year. She plans to use the skills her mother taught her, and vows to always take care of her father and younger brother.
NONPROFIT ORG US POSTAGE
The ALS Association Florida Chapter
PAID
The ALS Association FloridaChapter, Inc. 3242 Parkside Center Circle Tampa, FL 33619-0907
2014 Walk Dates/Locations: Broward/Miami-Dade - March 1 Vista View Park Greater Tampa Bay - March 8 University of South Florida Central Florida - March 15 Lake Eola Palm Beach - March 22 Okeeheelee Park Sarasota - April 5 Payne Park Jacksonville
- April 12
Seven Bridges/Tinseltown
TAMPA FL Permit No 2910
Support Groups Join us at an upcoming resource group to find practical advice on day-to-day living with ALS and a safe place to express your concerns. Everyone is welcome. Boynton Beach Charlotte Daytona-Ormond Beach Fort Myers Gainesville Highlands Jacksonville The Villages Manatee-Sarasota Melbourne
Naples Ocala Orlando Pensacola Tallahassee Tampa Treasure Coast/Stuart Weston Vero Beach
Visit www.ALSAFL.org or call us at 888-2571717 for support group dates and directions.
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