Missouri
Autism Report MISSOURI AUTISM NEWS
January 2012
Local Girl Finds Voice Through iPad page 5
Forest Institute Provides ABA Training page 7
How Candida Can Complicate ASD Sypmptoms page 8
Read Gabrielle’s Story pg. 5
MISSOURI AUTISM NEWS
Page 2
January 2012
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MISSOURI AUTISM NEWS
Missouri Autism Report DAYNA BUSCH EDITOR / PUBLISHER
Journalist and Autism mom, Dayna Busch is Editor and Publisher of the Missouri Autism Report DAYTON AULT EDITORIALS / ADVERTISING
Dayton Ault, holds a BA in economics and an MS in He a l t h Ad m i n i s t r a t i o n . Presently he works with medical insurance and is the editorial writer and marketer for the Missouri Autism Report. FREE online subscription: MoAutismReport@yahoo.com More information: www.MoAutismReport.com Contact: (417)209-0103
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January 2012
January 2012 Letter from the Editor Dear Readers, It seems every issue is more exciting than the last, here at the MAR. We are not only providing some excellent information and stories this month, but we are most excited that our magazine is officially going to print! A preliminary list of locations where you will be able to pick up a FREE copy of the MAR will be listed on page 4. Please remember that this is a list in-process. You can email us for an updated list throughout the month. We would also like to welcome Mr. Dayton Ault to the MAR staff. Mr. Ault has many years of experience in technical and grant writing, health insurance and marketing. He has also joined our new board of directors for the MAR non-profit organization. He will be assisting heavily in the marketing and distribution departments. We also say goodbye to Dawn Rethman as transitional editor, but we managed to keep her on our board of directors, so she isn’t off the hook yet! ! More info on page four, on where you can get a copy of the MAR in print! Wishing a Happy New Year to each and every one of our readers!
Inside 1. Cover: Candice Williams and Gabrielle 3. Letter from MAR Editor 4. Where you can get copies of the MAR 5. Missouri girl speaks with Ipad; Sources for Ipads 6. Candida Pt. 1 by Dr. Sonia 7. Forest Institute teaches ABA 8. Governor Nixon appears at Insurance Summit 9. Autism Treatments by Dr. Grant and ACAN program by SCAN of Lebanon 10. Ipad story con’t. 11. Ozark Center receives donation for rebuild 12-13. Springfield, Branson area Events 14. Kansas City area Events/Take a teacher to coffee challenge 15. St. Louis Area Events 16. Jefferson City/Columbia, Joplin Events 17-18. Autism Gossip
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~Dayna Busch, Editor/Publisher
Our Sponsors 2. Comfy Sacks 4. Mosaic Hair Design 6. Health Quest 7. Forest Institute 8. Ozark Center for Autism 9. Dr. Robert Jason Grant Ed.D, LPC, RPT-S 10. Dunham’s Martial Arts, Lacknothing Remodeling Ozark Center for Autism 11. Take the Lead Dance Studio 13. Parmele Law Firm 14. Visioneers 4 Access 16. TouchPoint Autism Services 18. Insphere Insurance Solutions 19. Rivendale Institute of Learning, Vision Enhancement Clinic 20. Burrell Autism Center
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MISSOURI AUTISM NEWS
January 2012
Missouri Autism Report Printing and Distribution News January 2012 - the Missouri Autism Report (MAR) will be “going to print” with several thousand copies, distributed across the state of Missouri. As we go to print this month, we are still organizing the distribution and display locations. We appreciate your patience as we work the kinks out of the program. I think this is called our “learning curve”. If you would like to help with distribution in your area, or want to place copies of the MAR in your business or organization, please fill out 5 short questions at http:// www.surveymonkey.com/s/JPKKC9W or contact us at MoAutismReport@yahoo.com.
Springfield Developmental Center of the Ozarks 1545 E Pythian Burrell Autism Center 1300 Bradford Pkwy Greene County Library: all locations! Rivendale 1613 W. Elfindale Lighthouse Lanes 350 S. Glenstone
At time of publication, the locations listed to the right, have committed to distributing copies of the MAR. For changes and additions, please check our website at www.MoAutismReport.com.
Other Areas CC Counseling 380 E Hwy CC, Suite A105 Nixa
Behavior Intervention Services 10176 Corporate Square. Dr., Suite 220, Creve Coeur Health Quest Physicians 3349 American Ave Jeff City Kirksville Regional Office 1702 E LaHarpe Kirksville Ozark Center for Autism 3230 S. Wisconsin Ave. Joplin SCAN of Lebanon (Terry Faust) 417-718-7081 Skaggs Medical Center Branson St. Louis Arc 1177 N Warson Rd
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January 2012 Events Ipad gift unlocks voice of local Missouri child Young girl surprises parents with her knowledge She wants to go to Greece for vacation, wants to wear blue jeans, and, yes, she has a “boyfriend”. Candice Williams used to think her daughter wasnʼt processing much of the world around her. But, when Gabrielle received an Ipad as a gift, Candice found out Gabrielle (she no longer wants to be called Gabby, because sheʼs a big girl now), was very aware of the world around her. Gabrielle was only four when she was diagnosed with autism. Her parents actively sought out treatment alternatives and saw marked improvement when they changed Gabrielle to an all natural, organic, plant based diet, including, among other things, a regiment of detoxing baths. “She became a much happier child,” says Candice. However, despite the many therapies and treatments, which brought various degrees of improvement, Gabrielle remained non-verbal. When her great grandmother in Arizona saw a TV special depicting a man with ASD using an Ipad to communicate she called the family. “Iʼm sending you an Ipad,” she announced. Within a month, Gabrielle, now 10 years old, was using her new “voice”. Though automated through the Ipad, she can now express her feelings and thoughts. She can finally order what she wants to eat at the restaurant, (mandarin oranges and roast beef, NOT chicken), and can also tell mom what she does and does not want to wear.
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“Sometimes itʼs a little painful for Mom,” admits Candice, who struggles
by Dayna Busch, editor sits on the couch watching the large numbers counting down instead of getting frustrated. When it beeps, she closes the Ipad, puts it in her bag and goes out the door.” Other therapies they have tried such as sign language, the Picture Exchange Communication System (PECS) and the Gameboy DS, didnʼt seem to work for Gabrielle. “The best thing weʼve used is the Proloquo2go app [on the Ipad]”, says Candice. “Sheʼs very tactile; she can touch it, slide it with her finger; make it do things.”
Ipad voice con’t on page 10
Ipads and AT Resources: Find out the prerequisites for getting assisted technology (AT) provided through the school system, insurance or other funding at http:// w w w. n e c t a c . o r g / t o p i c s / a t e c h / funding.asp
with her little girl growing up before her eyes. She finds it especially painful when Gabrielle expresses her frustration with Candice or others in the family; yet healing when, in her moments of “hurt,” asks Mom for a “hug”. The frustration level has decreased since the Ipad. She can now participate in her classroom, make many of her own choices and communicate with her parents and teachers. “Sheʼs definitely calmer and more mellow,” says Mom. Candice says she really appreciates the Ipadʼs timer. “She tends to be impatient. If we were going somewhere, she would get ready then follow me around and make her ʻangry noiseʼ until we were ready to go. Now I set the timer and tell her, ʻMommy is going to get ready and as soon as the Ipad beeps we are going to walk out the door.ʼ Now Gabrielle
Apps for Children with Special Needs www.a4cwsn.com is dedicated to getting Ipads to families and schools who need them. Go to their website to apply and to their FB page to learn more: http://www.facebook.com/ a4cwsn Many Assisted Living Centers across the state have Assistive Technology rooms where persons can try-out various technology options. For the center near you, go to www.mosilc.org or call (888)667-2117 Missouri Assistive Technology has the Equipment Technology Consortium (ETC) program which may be able to partner with your school or other organization to “loan” needed equipment. their KAT (Kids Assistive Technology) program provides limited funding which some may qualify for. Go to www.at.mo.gov or call (800) 647-8557
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MISSOURI AUTISM NEWS
January 2012
Is Candida affecting your child? by Dr. Sonia O’Donnell-McGowin The Candida Connection There is much evidence that Candida Albicans can worsen the behaviors and gastrointestinal health issues commonly seen in people with autism. It can contribute to food sensitivities, allergies and immune system suppression. It is important to recognize the signs and symptoms of this problem, as it can affect other treatments that may be in place for your child. What is Candida? What Does It Do? Candida is a yeast found in our intestine, and part of the normally-occurring bacteria in our bodies. We have a variety of flora (bacteria and yeast) in our intestine that work together for digestion, and manufacturing of certain vitamins, like Vitamin K. When the immune system is working well, the Candida remains in balance with other more “beneficial” flora in the gut. However, if the immune system is compromised, antibiotics are taken or when there is a diet high in sugar, Candida can take over, creating a variety of problems.
the intestinal lining being tightly woven, like denim, it is now open and porous, like gauze. Undigested food particles, toxins and waste can now flow into the bloodstream and lymphatic system. This is “Leaky Gut Syndrome”. The leaking of these particles alerts the bodyʼs immune system that something is wrong, and creates both opioid and autoimmune reactions. This ignites inflammation, which in turn decreases the beneficial bacteria in the intestine, making the problem worse. The body is now caught in a vicious cycle, that without intervention, will lead to a variety of symptoms. Symptoms of Candida Overgrowth
There are a variety of symptoms of candidiasis. Most commonly in children with autism, it starts with digestive symptoms, such as constipation, diarrhea, abdominal pain and bloating. One of the tell-tale signs is a child who has self-limited their diet. Usually, they crave what they are most sensitive to, so we see children who will eat only things like bread, macaroni and cheese, milk, etc. It is also common As the yeast proliferate, they produce Candida Albicans for children to have physical and chemical byproducts that are usually behavioral reactions to food. Children may also have only found in very small amounts. These byproducts eczema, red cheeks, red ears, and dark circles under are then absorbed from the intestine into the blood. their eyes. Along with toxic byproducts being produced, the Next month, weʼll discuss the diagnosis and treatment yeast also changes its form. The yeast develop of Candida. “hyphae” or arms that can actually invade the lining of the intestinal tract. As the hyphae bore into the intestinal wall, digestive enzymes are also secreted, Dr. Sonia O'Donnell-McGowin, D.C., is a causing further breakdown of the lining. These chiropractor currently specializing in treating enzymes also destroy the antibodies produced by the children and adults with autism and other body to kill the yeast. disabilities. She is a DAN! / ARI (Defeat Autism Normally, the cells lining the intestine have “tight junctions”. These junctions keep the contents of the intestine contained and away from the rest of the body. When yeast invades the lining as described above, it causes inflammation. The tight junctions are no longer tight, and holes are now present. Instead of
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Now! / Autism Research Institute) trained doctor, offering biomedical treatment at Health Quest Physicians Group in Jefferson City. She has worked in the field of autism since 1988, many years for the Judevine Center for Autism. She lives in Jefferson City with her husband, son and daughter.
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MISSOURI AUTISM NEWS
January 2012
Forest Institute Offers Opportunities for Parents to Gain ABA Training by Will Carter “A few of the lectures have sent me down memory lane. I would think, wow, I remember that,” said Forest student Jennifer Jones*. She is the mother of a child diagnosed with an autistic spectrum disorder, and says the launch of Missouriʼs first masterʼs program in applied behavior analysis was a blessing and an opportunity all at the same time. “God did not open up doors for me to help my son just so I could take that information and walk away. I decided to use what I learned and give back,” said Jones.
Her son was diagnosed at the age of three-and-ahalf. At that time ABA therapy was still fairly new and expensive. Not to mention, it wasnʼt covered by insurance. However, it was exactly what her son needed to develop the skills to live a long and normal life. “He gained more skills in a few months than he did during an entire year of preschool,” she said. Her son is now a high school athlete and will be graduating soon. With that in mind, Jones decided it was time to begin the second half of her life with a new career, one geared at helping other children like her son. “I want to work with early childhood aged children doing one-on-one therapy with them, because the earlier you start the better the outcome,” she said. Jones just completed her first semester at Forest Institute and already feels like the program is helping her prepare. She attributes some of that to the experience of the programʼs director, Dr. Michele Williams, who happens to be the one who developed her sonʼs ABA program. “She has practical experience. Itʼs much more than just book smarts,” said Jones. Williams has worked in behavior analysis since the early 90ʼs and is now a Board Certified Behavior Analyst-Doctoral® and a Licensed Behavior Analyst. Williams says with Missouri legislation now requiring insurance companies to cover ABA treatment, thereʼs been no better time for parents of autistic kids to use their skills to help themselves and others. # For more information on Forest Instituteʼs ABA programs visit www.go.forest.edu. # *The name of the student was changed to protect her privacy.
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MISSOURI AUTISM NEWS
January 2012
by Ginger Luetkemeyer Jefferson City, MO - Governor Nixon made a surprise appearance at the December 3, 2011 Missouri Autism Summit. His unexpected visit was to express his ongoing support of the new autism insurance legislation. The Autism Summit was hosted by Missouri's Dept. of Insurance, Financial Institutions, and Professional Registration (DIFP), to discuss Missouri's autism insurance law and the progress in implementing it. With approximately 70 people in attendance, the day covered a range of issues and topics related to autism insurance coverage, billing, and reimbursement. There were reports from autism
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providers of behavior therapy (ABA) as to their success with billing insurance companies. Discussions centered on the challenges of becoming an in-network provider with insurance companies and the challenges in successfully billing insurance companies. DIFP provided an update of the Behavior Analyst Board, which is in the process of writing rules of ethical conduct for behavior analysts in Missouri. Unfortunately, there seems to be relatively few number of claims being processed, and while the opinions vary as to why, most agree that there is still a "learning curve" for most consumers. The state law only affects group policies, and does not apply to ERISA or selffunded plans. To determine what type of coverage they have, families should verify through their employer who provided the insurance. A shortage of providers in Missouri that offer ABA therapy, and even fewer that are contracted with insurance companies is also causing problems. Insurance companies are now seeking out providers to join their networks, and because of the shortage, some insurance companies have even waived the credentialing process for providers to enroll. Several major insurance companies in Missouri were in attendance and gave presentations on how providers can contract with them. Every insurance company should be able to provide a listing of providers for behavior therapy. Eight videos of the Summit, including Nixonʼs unexpected visit, are now posted the Missouri DIFP Youtube channel and can be accessed by typing DIFP Autism S u m m i t i n t h e s e a r c h b a r. Families are encouraged to contact the DIFP Insurance Consumer Hotline if they have difficulty with accessing their benefits, reading or understanding your policy or benefits, or if you feel you have been wrongly denied an insurance claim. Hotline: 800-726-7390, open 8am - 5 pm weekdays.
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MISSOURI AUTISM NEWS
January 2012
Autism Treatment Navigation 101 by Dr. Robert Jason Grant Ed.D, LPC, RPT-S When a parent learns that his/her child has been diagnosed with an autism disorder, the most common next step is beginning a treatment process. Parents quickly realize that their options are many; so many that the process often becomes confusing and frustrating. Many parents struggle with how to select a treatment approach that will best work for their child and their family. I have found three very useful questions for parents to consider when selecting a treatment approach:
1. What are the anticipated outcomes that align with a particular treatment, and are the outcomes in harmony with the needs of my child and our family?
2. What are the potential risks associated with the treatment, is there any risk to my child or family in participating in this treatment?
3. What are the most effective means of evaluating a particular treatment, how will I be able to evaluate and see that my child is improving? Some good starting points for “weaving” through various autism treatments exists. The National Autism Centerʼs National Standards Project (www.nationalautismcenter.org) describes several autism treatments. The Association for Science in Autism Treatment (www.asatonline.org) is another great resource that provides descriptions for several autism treatments. For more information, join me on February 11th when I present the free 2 hour presentation, “Navagating the Spectrum o f A u t i s m Tr e a t m e n t s , ” f o r T h e Southwest Autism Network of Missouri (SWAN). The presentation will be from 1:00pm – 3:00pm at The Wesley United Methodist Church in Springfield MO.
SCAN of Lebanon launches ACAN chair program by Dayton Ault, staff writer Supporters of Children with Additional Needs (S.C.A.N.), has launched the “Additional Chairs for Additional Needs” program (ACAN) in Lebanon, MO, which they would like to see expanded throughout the state and beyond. Under the program, S.C.A.N. is encouraging eating establishments to make available, specialized portable highchairs / booster chairs with high-backed five-point harnesses to help secure children with special needs. “Children can be placed in the chair without the struggle of trying to get legs that donʼt bend and leg braces through the openings of traditional restaurant chairs,” says Terry Faust, organizer of the program. Surprisingly inexpensive, the chairs can be purchased for $52 each at local Walmart stores. “ADA says that restaurants need to make their place accessible to enter, but where do the children sit?” says Faust. Mike Yeah, the owner of Cornerstone Subs and Pizza, Lebanon, agrees. When asked why he supports ACAN, Yeah said, “Why wouldnʼt I? This is such a small thing to do for these kids.” From the perspective of a pragmatic business owner, he added, “It is also a liability thing. If a
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family canʼt seat a child safely, the restaurant may be liable.” Businesses who participate in the program will be provided with a window decal to alert customers that they have these disability-specific chairs available. The Missouri Autism Report supports the statewide expansion of this worthwhile effort that we see having great value for the disability community. We applaud Faust for her effort and Yeah for being the first in the area to participate. We encourage other restaurants to follow suit and autism parents in the Lebanon area and in other areas of the state to contact Terry Faust of S.C.A.N. on Facebook or at (417)718-7081 scan4kids@yahoo.com to help further this program.
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MISSOURI AUTISM NEWS
Ipad voice con’t from page 5 According to Dan McCool, Speech Language Pathologist and owner of Ozark Therapy Institute in Springfield, being a tactile learner with good fine motor and visual skills is a key factor to success with the Ipad, which is “not right for everyone, even if it is the coolest toy in town.” If it does turn out to be compatible with the xxxxx
January 2012
learner, the applications are vast. “Itʼs possible to replace textbooks with ereaders and ibooks which can be purchased or rented. There are even audio books available. They are in the early stages of development and sound a little robotic, but it will only get better from here.” McCool, who provides Ipad trainings for parents and clients, suggests the Ipad for the family or therapist to use as an articulation or language skills prompter, even if the person is unable to use the tool himself. He says verbal success is often achieved when the focus is taken off of the childʼs performance and directed instead on making the Ipad work. In the Williams home, life will be forever changed since their nonverbal daughter now has a voice. She consistently surprises the family with how much she knows and what she has learned. Recently, for the first time, Gabrielle wrote two
paragraphs for her teacher, which included a “thank you” to her teacher for helping her. And, this year Gabrielle was able to tell her parents what she wanted for Christmas; a stuffed dog. Of course; she already has the coolest toy in town!
YOUR BUSINESS COULD BE HERE Call NOW to be a sponsor of the Missouri Autism Report TODAY! (417)209-0103
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jonathan@lacknothing.com www.MoAutismReport.com
MISSOURI AUTISM NEWS
January 2012
$3 Million donated to fund construction of new Ozark Center for Autism Edited from Press Release JOPLIN, Mo.—A $3 million donation from local and nine great-grandchildren. residents, Bill and Virginia Leffen, will fund the The Leffenʼs donation will enable Ozark Center for reconstruction of Ozark Center for Autism, which was Autism to place all its services in a single, state-ofdestroyed by the May 22 tornado. The new facility, the-art location, including its diagnostic center, which will be located at 2808 Picher Avenue, will be kindergarten through 12th grade classrooms, and named the Bill and Virginia Leffen Center for Autism, preschool. This new facility will also feature mock in honor of the h o m e couple. environment “The rooms, a small impact of this theater, a gift can never kitchen for be measured,” c o o k i n g said Paula classes, mock B a k e r , communityF r e e m a n experience President and rooms, and a C h i e f multipurpose Executive gymnasium. O f fi c e r - e l e c t Planning for a n d construction of administrator the Bill and for all autism Virginia Leffen programming. Center for “It i s Caption: Back row: Paula Baker, Freeman Health System President and Chief Executive Officer-elect Autism is impossible to and administrator for all autism programming, and Jennifer Kirby, Ozark Center for Autism Clinical u n d e r w a y, measure the Director. Front row: Virginia Leffen, Bill Leffen, and their daughter, Beth Cole. though a impact of completion changing a childʼs life. Thanks to Bill and Virginia date has not been set. The school is currently Leffen, Ozark Center for Autism will return better and operating out of its second temporary facility, located stronger than ever. On behalf of our staff, our at 3230 South Wisconsin Avenue, Suite D. It will students, our parents, and all of those who have yet remain in this location until the Bill and Virginia Leffen to be touched by the school, I offer our most sincere Center for Autism is completed. gratitude.” The donors are long-time Joplin residents. Bill Leffen, one of the first babies born at Freeman Hospital, is an avid supporter of the Freeman health system, former Navy man, banker and 25 year Board of Trustees for Commerce member in Kansas City and St. Louis. In 1972, he served as chairman of the Freeman Hospital Fund Drive. Wife, Virginia, a retired interior designer, now enjoys her six children, 15 grandchildren,
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January 2012 Events Events for Springfield, Branson and surrounding area... SWAN Invitation Southwest A u t i s m N e t w o r k , (SWAN) is a place for your child to socialize while you meet and learn from other parents of children with ASD. Children are supervised by trained, caring respite staff with structured activities. Sibs are welcome. Respite is FREE! Meetings on the second Saturday of each month. Contact: Annette Brandenburg 3burgers2go@opexonline.com
(417)655-2235
swautismnetworkmo.weebly.com
Tuesday, January 10 Parents Encouraging Parents (PEP) meetings (2nd Tues.) for families new to the area or newly diagnosed with ASD. Locations announced on SWAN website each month: http:// swautismnetworkmo.weebly.com/ SSEPTA Board Meeting at the Library Center on S. Campbell at 6:30pm. Special speaker Lisa Slattery, former SSEPTA president will report on special education activities on the state level. “Like” Springfield SEPTA on facebook. Contact Dawn Rethman (417)886-9312
Thursday, January 12 TouchPoint Adult Social Group Movie Night at Springfield office, 6-7:30, ages 17-adult. DMH referral required. RSVP at (800)420-7410 or email jackie.mace@tpamail.org.
Saturday, January 14
First of Springfield monthly Tuesdays, January 3-31 People meeting (2nd Sat.) 11am - 12:30pm. At Troop 2 meetings for Boy Scouts of Wesley United Methodist church, 922 W. America, every Tues. at 7-8:30 pm at Republic Rd., Spfd. For more Arc of the Ozarks. Contact Teddy information contact Marisa Clary at Heaton, (417)883-6680 886-7180 or marclary@aol.com. teddy.heaton@wfadvisors.com www.ozarktroop2.com SWAN (Southwest Autism Network) Thursday, January 5 meeting (2nd Sat.) 1-3pm at Wesley Families4Families meeting (1st United Methodist Church, 922 W. Thurs.) at 6:30 pm, Tom Watkins Nbhd. Republic Rd., Spfd. This month Ann Bldg., 2100 W. High St. Contact Bledsoe from Mpact presents “I am the I billiespall_1@yahoo.com or Lynn (417) i n M y C h i l d ’ s I E P ! ” G o t o 987-0811 swautismnetworkmo.weebly.com to for respite care. Attendees may Saturdays, January 7-28 register bring refreshments to share. Contact SWAN Tae kwon do classes for p e r s o n A n n e t t e ( 4 1 7 ) 8 3 3 - 9 3 5 9 Elementary Social group, (Saturdays), 3burgers2go@opexonline.com 10-11am at the Living Room Studio in Mama Jeans, 1727 S. Campbell for only Thursday, January 17 $5 per child! Space is limited. Please Enabled Service at Central Assembly RSVP at 3burgers2go@opexonline.com of God Fusion Center (3rd Tues). o r h t t p : / / w w w . f a c e b o o k . c o m / Contact Ethel Campbell at (417) SWMOAutism 343-9027 or info@enabled2serve.org
Saturdays, January 7 February 11
SCAN and Lebanon Optimist Club provides 6 week program of bowling at Starlite Lanes of Lebanon, 10:30am. All DX and sibs invited to participate. $5 per bowler. For more info, scan4kids@yahoo.com
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Monday, January 23 SCAN of Lebanon support meeting back to regular schedule in January (4th Mon) at Hilcrest Baptist Church, 399 Hoover St., Lebanon! 6:30-8pm. Childcare provided at Stringbeans C h i l d c a r e 5 11 H a r r i s o n S t . 6:20-8:10. ! RSVP on Facebook or
Contact Terry Faust(417)718-7081 scan4kids@yahoo.com TouchPoint Art Group for ages 8-12 at Springfield office, 6-7:30pm for families with DMH referral. RSVP at (800) 420-7410 or email jackie.mace@tpamail.org.
Tuesday, January 24
Sensory Night at Jump Mania, (4th Tues) from 7-8:30pm. 2745 S. Kansas Expressway, (417)881-5867
Thursday, January 26 B r a n s o n Touc hpoint Si b- s ho p: Workshop to share and learn how to support a sibling with autism.5-6pm. Sibs ages 5-10. Location TBA. Must have DMH referral. RSVP at (800) 420-7410 or email jackie.mace@tpamail.org.
Friday, January 27
Through the Roof worship services for individuals with disabilities and their families (LAST Friday) at Living Hope Fellowship, 1624 E. Blaine, Spfd. contact Rebecca Hosack ttrspringfield@gmail.com or call (417) 894-7844.
Saturday, January 28 Autism Speaks Awards Banquet, tiam and location TBA. For more info, contact Linda at (417)380-6152.
MARK YOUR CALENDAR! SCIL Youth Swing-Dance Instruction with Obi Simpson from Take the Lead Studio
Thursday, February 2 6-6:30pm snacks and social 6:30-7:30pm dance instruction ages 14-25 Limited space available RSVP to Nathan at (417)886-1188
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January 2012 Events Events for Springfield, Branson and surrounding area... Aaron Likens to Speak in and around Springfield Aaron Likens was diagnosed with Aspergerʼs Syndrome (AS) when he was 20 years old. Now author of the book Finding Kansas: Decoding the Enigma of Aspergerʼs Syndrome,” he now is raising awareness about Autism Spectrum Disorders through his presentations with TouchPoint Autism Services. Many families have benefitted from hearing Aaronʼs story and have gained an understanding of AS that helps them to support their own family member with the diagnosis. We invite you to come hear Aaronʼs story.
Aaron Likensʼ SW Missouri speaking schedule: Joplin: January 17 – 6-8pm at TouchPoint office, 1211 South Illinois, Joplin. Limited respite available for families referred by the DMH. MUST RSVP for respite at least 48 hours in advance. Springfield: January 19 – 6-8pm at the St. John’s C.H. “Chub” O’Reilly Cancer Center, 2055 South Fremont, Springfield. Limited respite available for families referred by the DMH. MUST RSVP for respite at least 48 hours in advance.
Springfield Basketball through March 3
Swimming Gymnastics & Aquatics Mid-January TBA Boys & Girls Club Musgrave Unit 720 S Park
Clinton: January 23 – 6-8pm at Henry County Library, 123 East Green Street.
Nixa Basketball
Mountain Grove: January 24 – 6-8pm at Days Inn, 300 19th Street/US Hwy-95 & US 60.
through March 3 Nixa Jr. High School
Monett: January 25 – 10am-12pm at ARC, 1010 Old Airport Rd. Lebanon: January 25 – 6-8pm at Laclede County Library, 915 South Jefferson. Branson: January 26 – 6-7:30pm at Developmental Connections, 1533 East State Hwy 76. Presentations are free and open to the public. Please call 1-800-420-7410 to reserve your seat.
Februrary 11, 2012 SWAN Meeting: Navigating the Spectrum of Autism Treatments Dr.Robert Grant, CC Counseling presenting. 1-3pm Wesley United Methodist Church 922 W. Republic Road Childcare provided; for more info, go to swautismnetworkmo.weebly.com
“Learn how to critically evaluate treatment approaches for individual effectiveness.”
Disability Law Social Security “It’s all we do” www.parmelelawfirm.com
417-889-2570
Branson Basketball through March 3 Location TBA
Swimming January 17- March 6 Box Car Willie Champion Athletes of the Ozarks mission is to build self-esteem, self-confidence and everyday life skills, enhancing the lives of children and adults with disabilities through education, sports competition and new opportunities.If you are interested in volunteering jontact our office at (417)890-1599. To register an athlete or for more information please call (417)890-1599 or e-mail sqmiles@championathletes.org
PARMELE Law Firm, P.C.
830 E. Primrose St. Dan Parmele Former Senior Staff Attorney Springfield, MO with the Social Security Administration
Mo Supreme Court Rule 4-7.2 The choice of a lawyer is an important decision and should not be based solely upon advertisements.
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January 2012 Events Kansas City Area ASD Events . . . . . Monday, January 2
LEE'S SUMMIT - MOAFAA meeting (Missouri Advocates for Families Affected by Autism) (1st Mon) 7pm at Legacy Christian Church of Lee's Summit, 2150 East Langsford, Lee's Summit, MO Phone: (816)554-3017
Tuesday, January 10 Cass ASD Support Group (2nd Tues) 6-8pm, Casco Area Workshop, 1800 Vine, Harrisonville, MO.
Wednesday, January 11 Blue Springs/Lee’s Summit support group meeting (2nd Wed) 7-9pm at Blue Springs Christian Church, Room A234) 7920 S. 7 Hwy, Blue Springs, MO. Please use east entrance.
Thursday, January 12
North Kansas City Support Group, (2nd Thurs) 7pm at Autism Works, 915 Hwy H, Liberty, MO. Contact Jenny at radioturtle@hotmail.com
Saturday, January 21
Caffeine Addicted Moms of Kids with ASD meeting, (3rd Sat)11am 1pm at Cupini’s, 1809 Westport Rd., Kansas City
Thursday, January 26
Northwest Autism Spectrum Family Support Group (last Thurs) 7-8pm at Christ Episcopal Church, 207 N 7th St., St. Joseph, MO. Contact Jamie at (816)390-8545 or Robin at (816)792-2823.
Jackson County Parks & Recreation’s Special Population Services presents:
Penguin Prance Dance: Friday, January 27 6:30-8:30pm $2 per person Roger T. Sermon Center 201 Dodgion Independance, MO 64050
Door Prizes * Drinks * D.J. Must be 16 to attend More info at (816)763-5130
You are being invited by a parent, to join the “Take a Teacher to Coffee” challenge. Teachers in this program are requested to take the FREE online version of the Introduction to Autism workshop, developed by Project ACCESS, and share your opinion of the workshop with the Missouri Autism Report.!There are no prerequisites required for taking the workshop. Required skills include the ability to use email and a web browser, as well as basic word processing efficiency. Workshop goal is to provide basic information about autism, as it relates to providing services to students with ASD. We, in turn, would like to know if this information is pertinent and helpful to you as an educator. It will also prepare participants to take more advanced workshops offered by Project ACCESS. The Workshop is free and self-paced.! To take the course, go to http:// education.missouristate.edu/access/76307.htm. Your evaluation of the program can be sent to MoAutismReport@yahoo.com.
When you have completed the workshop, I would love to celebrate with you by taking you out for coffee!
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Parent’s name
Phone number/ Email
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January 2012 Events Events for St Louis and surrounding area Saturday, January 7 ICAA monthly autism support meeting (1st Sat.) at 6pm, at 200 Crestwood Plaza, St. Louis. Families welcome. Refreshments served. For more info, go to www.icaaonline.org or info@icaaonline.org. Dad’s Disability Support Group, from 5:30-7:30pm. Location TBA. For more info, go to www.slarc.org or call (314)817-2211
Thursday, January 12 Advocacy 101 Workshop from the St. Louis Arc, 6:30-8:30pm will help prepare you for legislative day in Jeff City on January 18. St. Louis Arc, 1177 N. Warson. To register go to www.slarc.org or call (314)817-2211 Families with Transition Age Students Support Group from 6:30-8pm at St. Louis Arc, 1177 N. Warson Rd. To register go to www.slarc.org or call (314)817-2211
Friday, January 13 Assessing Inappropriate Behavior/ Promoting Appropriate Behavior at St. Louis Arc, 1177 N. Warson from 9am-4pm. Presented by Thompson
C e n t e r. To r e g i s t e r g o t o www.slarc.org or call (314)817-2211 Families with Young Children (under 7) Support Group from 9:30-11am at St. Louis Arc, 1177 N. W a r s o n . To r e g i s t e r g o t o www.slarc.org or call (314)817-2211
Saturday, January 14 Functional Assessment & Behavior Plan Development at St. Louis Arc, 1177 N. Warson, from 9am-4pm. Presented by Behavior Solutions. To register go to www.slarc.org or call (314)817-2211 Mom’s Disability Support Group (2nd Sat.) from 9:30-11am at the 2nd Fl lounge, Schnucks at 12332 Manchester Rd., Des Peres. For more info call (314)817-2211
Wednesday, January 18 Legislative Day in Jefferson City sponsored by Arc of Missouri. For more info, contact (314)817-2275 Giant Steps Make Mine Music Workshop on the benefits of music for children with ASD. Suitable for parents and professionals 7-9pm at 7281 Sarah St. Maplewood, MO. 63143. Cost $20 / Respite $10 per
Volunteers Needed for a Research Study on The Effect of a Music Therapy Technique on Word Learning in Children with Autism
Children must have a diagnosis of autism and be between the ages of three and five, with English as their primary language, and have no other known disabilities other than Attention Deficit Hyperactivity Disorder (ADHD).All sessions will take place at TouchPoint Autism Services in St. Louis, MO.For more information call Jennifer Cooley at 573–772–0585. The Recreation Council of Greater St. Louis has hours available for After School Extended Day Family Voucher Program which may be utilized during winter break and spring break. These funds are available to St. Louis County Residents with Developmental Disabilities, ages 13-21, whose parents are working during the hours of 3-6pm, who need to access either an after-school care program or a provider to either come into their home or take them out into the community to attend either after-school activities or programs in the community. Availability is on a first-come, first-serve basis. If you know of a family that might benefit from this program please have them contact the Recreation Council, 314-726-6044. Interested parents may download the After School Voucher Application on the Recreation Councilʼs Web site: www.recreationcouncil.org <http:// www.recreationcouncil.org> or call our office to request an application by mail.
hour, scheduled in advance. RSVP at bberger@giantsteps-stlouis.org or call (314)932-1051
Wednesday, January 25 Monthly ASD Support Group (4th Wed.), from 7-8:30pm at Gateway Center for the Arts, 204 Elm St., Washington, MO. Contact Kim (636) 239-8939. S u m m e r Vo l u n t e e r a n d Employment Programs for Teens between ages13-20, will be discussed at this workshop from 6:30-8:30pm. St. Louis Arc, 1177 N. W a r s o n . To r e g i s t e r g o t o www.slarc.org or call (314)817-2211
Friday, January 27 Teen Meet Up Group, merges with St. Louis Aspergers Teens on (Last Fri) at 6:00 pm at Masonry Institute, 1429 S. Big Bend Boulevard, St. Louis. $10 per participant and $5 for family members. Pizza Served. For more info, go to www.slarc.org or call (314)817-2211 Children’s Meet Up Group for ages 5-10, all abilities (last Fri) at 6:00 pm, St. Louis Arc, 1177 N. Warson. To register go to www.slarc.org or call (314)817-2211
FREE NAMI Basics Education Program !The fundamentals of caring for you, your family and your child with mental illness Wednesday, March 7, 2012 Wednesday, April 11, 2012 9:00 – 11:30 a.m. Grace Church 2695 Creve Coeur Mill Rd. St. Louis, MO 63043 Room B211 314.962.4670 jjohnston@namistl.org
New Miriam Learning Center schedule will begin in January. Includes social skills groups that are using Arnold Goldsteinʼs, empirically based, Skillstreaming, fun OT, Lego and creative cooking classes. Enroll by contacting Beth Rose at 314-961-1500 or email atolan.te6k53@miriamlearningcenter.org. www.miriamlearningcenter.org.
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January 2012 Events Jefferson City /Columbia area Events . . . . . . Thursday, January 26 Cole County Autism Support Group, (last Thurs.) 6:30 pm at 1908 Boggs Creek Rd., Jefferson City. For info, call (573)634-4555
Saturday, January 21 Imagining the Future Together training program for youths with disabilities and their parents, presented by the Community Network, 1-3:15pm at Boone County Ramily Resources, 1209 E Walnut, Columbia, MO 65201. To register, call (573)874-1646 or mohrenberg@silcolumbia.org. Online flier at www.dbri.org/ parenteducation
Moments of Magic Benefit Reception and Comedy Show hosted by Special Learning Center
Thursday, March 1 5:30 Reception 7:30 pm comedy Show featuring comedian, Jon Reep Miller Performing Arts center Jefferson City For Tickets contact Special Learning Center, Heather Renkemeyer, 573-634-3070.
Sundays All Godâ&#x20AC;&#x2122;s Children Special Needs Class 11:00 am
Broadway Christian Church 2601 W. Broadway Columbia, MO. Please contact Teresa to fill out intake prior to attending at wiegandteresa@yahoo.com (573)634-4555
ANNOUNCEMENT: Capable Kids and Families program now offered in Jefferson City through Special Learning Center. It is a community program that assists families by providing support through home visitation, networking/playgroups, therapy equipment loan program, and Friendship Circles. For more info/to enroll contact Special Learning Center, Terri Glassner, Amy Edwards, or Debbie Hamler at 573-634-3070.
JOPLIN AREA EVENTS . . Tuesday, January 3
Ozark Center for Autism Support Group, Joplin (1st Tues.) 6-8pm, location TBA. For info, contact Heather (417)347-7600.
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Friday, January 6 TouchPointâ&#x20AC;&#x2122;s Visual Strategies Workshop, Joplin Office, 11am-12noon. Learn visual supports for coping and predicting the environment and events. Free and open to the public. RSVP at (800)420-7410 or email jackie.mace@tpamail.org.
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Autism Gossip.....Autism Gossip......Autism Gossip...... SCIL Accepting Nominations for Disabilities Wall The “Honoring People with Disabilities Wall” at Southwest Center for Independent Living (SCIL) recognizes the people living in the Ozarks with disabilities for their past and present efforts. Nominations are now being accepted to honor people with disabilities from times past and today, from these categories: Advocacy, C o m m u n i t y S e r v i c e , P e e r, Mentoring, Role Model,
Determination, and Leadership in the Community. A new honoree will be announced in each SCIL bi-monthly newsletter issue and a photo of the nominee will be displayed on the “Honoring People with Disabilities Wall” at the Springfield office beginning January 2012.
Nominate someone online Download the nominations form
ASD transition stories for publication deadline approaching The Journal Narrative Inquiry in Bioethics is currently looking for parent stories and experiences that involve the transition to adulthood for families with children with ASDs. The Journal's focus is to provide a forum to explore issues in bioethics through the publication and analysis of personal stories. The stories should give a sense of what parents find rewarding as well as challenging during this time. Stories about any aspect of the transition are welcome, ranging from navigating the health system to romantic relationships. We want your true, personal stories in a form that is interesting and easy to read. Inquiries or proposals should be sent to the editorial office via email: narrativebioethics@gmail.com. We will give preference to story proposals received by Jan 2nd . For more information about the journal Narrative Inquiry in Bioethics, the guidelines for authors, and privacy policies, visit our webpage with Johns Hopkins University Press at:http:// www.press.jhu.edu/journals/narrative_inquiry_in_bioethics/guidelines.html.
Plan to attend the Autism Coalition Summit in Jefferson City, MO. February 2012
More info to come! Watch for updates on on the upcoming Autism Coalition Summit at http:// www.missouriautismcoalition.com/ providers and keep watching the MAR for info!
www.MoAutismReport.com
Please mail forms to: SCIL Honor PWD Wall, 2864 S. Nettleton Ave., Springfield, MO 65807
Power Up 2012 Conference & Expo April 2nd & 3rd, 2012 Holiday Inn Executive Center
Columbia, MO Conference Contact: Missouri Assistive Technology 1501 NW Jefferson St. Blue Springs, MO! 64015 (800) 647-8557 (voice, within Missouri) (800) 647-8558 (TTY, within Missouri) (816) 655-6700 (voice)
SAVE THE DATE! ! April 18, 2012 Annual Autism Rally Jefferson City, MO ! More info to come!
http:// www.missouriautismcoalition. com/providers
Pamela Cooper, consultant Ozark, MO 65721 Ph: 417-595-7153 http://www.marykay.com/ pamelacooper
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Autism Gossip.....Autism Gossip......Autism Gossip...... Evidence-based interventions to be released Announcement from the Missouri Autism G u i d e l i n e s In i t i a t i v e : Ef f e c t i v e , e a r l y intervention is the key to improving the quality of life for individuals with ASDs. In 2010, the Autism Spectrum Disorders: Missouri Guidelines for Screening, Diagnosis and Assessment became available. The new companion publication, Autism Spectr um Disorders: Guide to Evidence-based Interventions will soon be released. The Guide is intended to help identify eďŹ&#x20AC;ective evidence-based treatments more quickly by distilling the findings of recent reports and gathering this information into one clear, accessible, practical guide, providing the tools needed to make informed decisions about selection, implementation and evaluation of evidence-based interventions. The Guide has been developed through a collaborative process of concerned organizations and will be published in Summer 2012. To pre-order, go to h t t p : / / w w w. a u t i s m g u i d e l i n e s . d m h . m o . g o v / orderMaterials.asp
SOS Mentor Training planned for February
First Annual Developmental Disabilities Statewide Event
THE FUTURE IS NOW: SUPPORTING REAL LIVES, REAL PEOPLE
March 15-16, 2012 Holiday Inn Executive Center
Columbia, MO ! Registration is limited! Only $89 if you register before February 15. ! If you are a Self-Advocate, Family Member, Employer, Service Provider, Educator or Direct Support Professional DO NOT miss this event!!!!! ! For more info, contact Carol at 314-821-3316 or e-mail cracarol@aol.com
Announcement from Springfield Special Education PTA (SEPTA) is hosting the Sharing Our Strengths Mentor Training on February 28 at the Library Center in Springfield and would like to invite others in our region to attend. Please forward this flyer to parents and extended family members of people with disabilities, adults with disabilities and professionals. If you would like mentor training scheduled in your community, please call Judy Wanko, Family Support Coordinator/ A u t i s m N a v i g a t o r, S p r i n g f i e l d Regional Office, (417) 895-7446
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